My dear Roz

I really feel for you – you are having such a horrible time. I really don't know what to say to you that would make you feel any better. I hope it is a comfort to you to know that SO many people on the forum or thinking of you both. I hope that you try to take care of yourself as well as caring for Michael. My thoughts and love…[Read more]

Hi Bridget

Rant away. At least here we listen and supportive!.Dog doesn't lisen either. I have a Westie and compltely ignores me.

I hope you cold improves. I had it for a week (just remnants hanging on). Frank has it and even I have to admit it was bad. We are sitting watching the United Arsenal match and Frank has all the cold remedies…[Read more]

Dear Min

It has all been said. Of course (we carers – hate that bl***y word) get angry. Frank and I have been living with this disease for over 4 years. We all handle it differently. I know you have been living with this longer than me. The Myeloma word is not mentioned in our house (unless Frank is feeling unwell) He lives from one…[Read more]

Hi all

Thanks so much for all your kind words. Talk about sods law. Frank stopped anti biotic and runny tummy disappeared. He woke up this morning and said the tooth aches was feeling easier and he thinks the cold is breaking. He still has an awful cough. Wanted to get the doctor out but he said no – you don't get the doctor out for a cold.…[Read more]

Hello Gill
so sorry this d.a.m.n thing has reared its ugly head again I have been reading the reports from america and it looks like so many new treatments are being tested so even after a second SCT there will be much hope of new things being used glad about the champagne we must all stay positive or we might go under I have not been able to…[Read more]

Hi Gaye and Bridget

Things are no better. Frank now has the most horrible cough. We get into Southampton tomorrow (can't wait) dropped of at airport at about 10am but flight to Belfast is not to 4,00pm. Just want to get home. I think this has put me off holidaying for good.

Hope have better news when I get him home.
Love Jean xx

Hello Gaye
I am glad your biopsy went well I have only had three and dread the thought of the next one I shall ask for a sedative, my bone the doctor said was difficult to aspirate so they have to dig deeper so its good to hear doctor cared about the pain level. All our snow in Hatfield Herts went at the weekend but it has been so cold with…[Read more]

Hello Kathleen

We can never win can we at the moment I am at least two stone over weight because of the steroids what ever I eat seems to put weight on me the season now is comfort food steamed puddings you can get induvidual ones dumplings stews with lots of beans and potatoes hot c:-) rumpets and butter all really fattening but I suppose…[Read more]

Hello Norman

I have had a monthly infusion of Parmidronate for the past 18 months the first few times caused a bit of bone ache in my legs but since then I have been fine only problem is I have deep veins so it takes two or three digs to find one
Keep well Jo

Gaye that gave me such a laugh. I just wasn't expecting the last 2 lines. Nice way to start the morning.

Love Jean

Hi David

Just want to say that I am thinking of you and wish you well. I think you are an inspiration to us all. I have followed your posts and I cannot remember reading a post that made me think that your were feeling down.

My very best wishes to you and look forward to reading more!

Love Jean xx

Yes understood. Very good. I have a cold and when I got to the end started to laugh, cough and choke!!! Thanks very much.

Love Jean

Hi Scott and welcome
My husband was diagnosed with Smouldering Myeloma on September 2006. His blood tests have been stable (or within range!!) Thank God he has not started treatment yet. This site has been a God send to me. If you have problems or any queries, someone on the site will be able to help you.

All the best
Jean

Hello Kathleen

so glad you made to this new site as for normal who is normal here
not many of us
Keep well Jo 😎

HELLO DIA
TRIED TO ANSWER YOU WITH A FEW ASTERIX WOULD NOT POST SO MIND YOUR P'S AND Q'S
kEEP well
Jo 😉

And me. Good luck and all the best.
Love Jean

thank you Dia

I am a complete muffin where computers are concerned

Hope you are well
Love Jo:-S

Hello Gill
glad you have arrived we still are missing a few friends lets hope they get here soon
Jo x