Hi Ali

As Helen says ,it’s good that life has been normal for sometime and the Myeloma locked away!!

They usually pick up the Myeloma in the bloods,so the cat scan could be old damage,did mum have damage in the same area last time!!
If it is a new Plasmacytoma it can be dealt with on Chemo,Slims old damage and new damage showed on a MRI Scan,so…[Read more]

Hi Andy

We have been having whoops!!!!,so I thought I would tell you about it! So you have some idea about Whoops,s!! Lol

As you know Slim was in hospital discharged yesterday at 1 pm, home tired and looking forward to bed!! I was reading his discharge letter,because I had asked early about blood results,only to find his HB read 75,eventually I…[Read more]

Hi Ali
I think its good to just pop in now and then, it means you are finding other things to do! Like holidaying with your lovely boys!

Plasmacytoma might mean increased myeloma activity in one of the bones….worth asking if this lesion is new or was present before on previous bone scans and has changed. Either way your mum should be on close…[Read more]

Hi Stuart
The photos I posted a couple of weeks ago will not let me edit or remove or resize them….. So it looks like an idiotic post… Can you fix it please?
Helen

I’m really sorry to hear about your loss. I hope you have good friends and family you can talk to. It’s very tough losing a parent, however old you are.

Do try to find someone to talk to if that would help you.

Sarah

Hi Andy

Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.

He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they…[Read more]

Hi Eve
Have sent you message, hope Slim is sorted soon? When do the family arrive?
Love Helen

Hi Andy

You are at the stage of the game were it’s important that every thing is under control,and you are making the right decision ,so all good,try to think back when you were a novice at this!!!!,now you go in and know more about your condition than most of the people you are dealing with!!!! Or do you go straight to unit and by pass…[Read more]

Hi Andy
I’m just back from holiday and it seems I can’t turn my back and you have posted another whoops! How are you doing now.
And hi Vicki ..how was Mauritius?
Love Helen

So sorry to hear what a tough time you are both having. I don’t have experience of SCT yet. Hopefully my husband will get to that stage later this year. However, I do have experiemce of him being confused and disorientated (and much more besides). In his case it was psychosis caused by steroids – namely dexamethasone, which is a recognised…[Read more]

Great news Jean. Hope Michael goes from strength to strength. Take care
Jean x

HI EVE
my home mail address is mamajo.russell3@gmail.com
love jox

That is good news with your love and care Michael should get better at home good luck and best wishes
regards Jo

That is good news!

I hope you both can catch up on some rest now. You must be exhausted as well as Michael, Jean.

Sarah

Hi Sindy

Sorry you had to join us but welcome to the site. They are. Great bunch of people here who will be there for you to help in any way. Have you a tarted treatment yet? My husband had SCT March 2013 and is in remission. Thank God. See you along the road

Jean

HI Vicki and Colin
thanks for your kind thoughts I seemed to have managed the MM better than the kidney issues strange but true
Keep well love Jo

So far so good. M had his chemo on Friday and took 20mg of dex on Fri and Sat. He slept really well on both nights, has had a few hiccups, which he controls with breathing exercises, and has seemed quite “normal” (he’s a bit quirky at the best of times :-)).

I know the side-effects of some drugs build up over time, but is this the case with…[Read more]

Hi Polly

I read Pat,s and Arnie,s opinions as well,interesting reading??.?

I like the way you substitute fat for curvy lady,and as I am fat,I won,t be singing,!!! Lol

Seriously Mandy,start fighting,I hate the word fight!!! But your attitude,your will to live will carry you a long way
I would urge any doctor not to have a set agenda!!!,they are…[Read more]

Make sure you keep in touch!!! One day you just might see me there,never say never is my motto!! Life is on hold!!!!but Myeloma makes you realise,dreams have to be lived. Love Eve

Hi David

No surprises there then!!!

Saga was originally a family organisation,a couple of years ago the man who owned it sold it to the AA.They have since sold it on to an American company,it is now far removed from the original company.

I live 15 miles away from Folkstone which is the main head quarters ,I use to have all my insurances with…[Read more]