Hi all
Andy sorry to hear that you had another stay in Hotel NHS but just look and how they looked after you. Don’t worry about the brewers, Frank will keep your end up. Enjoy Greece. Great to get away

Maureen I too thought I was seeing things on your post but it gave me a laugh. Hope you have a fantastic time.

This is the third time I’ve tried…[Read more]

Hi Vikki
Am saving very hard for ……holiday….. Hope its a cheap wedding! Think it will be a bit home spun… She’s a very creative type.
Have a good time in Mauritius …. Now there’s a place I haven’t been!!
And Ali I’m really glad to hear your mum is doing ok, and I love the pic of you and your very smart boys.
Dear Maureen I laughed out…[Read more]

Dear Carol
Well done, may you have a very long remission. Make the most of it.
Love Helen

Great news Carol. Franks new cells where 1 year old yesterday. He’s also,in remission. Thank God. Just loved your photo

Hope it’s loooooooooong

Love Jean

Hi Vicki and Colin

Bloods where good except for phosphates and vitamin D. Said shingles were drying up nicely and that he was lucky. Said he needed natural vitamin D so we left hospital and booked 11 days in Lanzorato. Never been so looking forward to it. Going 16 March. Mauritius how fantastic. We lived in South Africa for 10 years (much younger…[Read more]

Dear Andy
Glad to hear you are out again and back on the beer. Keep up the good work.
I’m doing ok at work but I’m using up holiday just now and I think I might have to retire after the summer. I will be 60 in May so was trying to get to that milestone! And I like the salary as we have a wedding to pay for at the end of the year as my daughter…[Read more]

Hi Andy

38.1 a bit of back pain and they took you in!! Now that is service,not taking any chances with you,!gSF injections as well.all good Andy,then a couple of pints at the local,real ale plenty of iron in it!!!,and to top it up the lovely Dex,all good.
You have now passed muster for the next round!. I call that a good service Andy. No one…[Read more]

June it must have been terrible to get a late diagnoses. When the rash appeared Frank phoned our hospital day unit and described the symptoms. Registrar rang him back and said it sounded like shingles but to see his dr who said right away that it was shingles. He has been lucky in a way as the spots have all scabbed over. He has awful back pain…[Read more]

Hello Frances,

That sounds horrible. I would definitely get it checked out thoroughly if you haven’t already. My husband had dreadful muscle spasms over Christmas and further investigation revealed multiple spinal lesions and a fracture. Getting out of bed was really difficult as every movement brought on more spasms. If you have had scans etc…[Read more]

Hi Frances
I take it the doctor Came to that conclusion after MRI,plus full body x ray!!

My husband has had a resent pain in shoulder unable to lift his arm in and out of clothes,did have fully body x ray,no change,told not every pain is MM,since then he has had a MRI Scan that can track new Myeloma,As you can guess the pain was new Myeloma…[Read more]

Ji Jeff

This site is about helping one another,and I know sometimes I come a cross very blunt and straight to the point,but no offence is intended,I can just tell you we have been there so know exactly how you feel,and not to give up!!!!
Lots of people on here have and still do help me,I suppose in many ways I have learnt to ride the roller…[Read more]

Hi Vikki

Great to hear from you hope all is well with Colin. I read Ali’s post that you have booked a holiday. When and where? You might have mentioned it before but I have a head like a sieve. Wherever it is I hope you have a great time

Shingles have been awful but today’s he’s been on good form. He took a shower and it didn’t hurt and he says…[Read more]

Hi Eve how long since you have seen the family. I’m sure You are both excited. Shingles are awful. He says the pain from the spots has eased a bit but back pain is terrible. (He had been free of it form months)

We have a cruise booked for 8 May. Don’t like booking that far ahead but it gives Frank something to look forward to.

Long May Slims…[Read more]

Hi Jean

She is coming the start of NZ Easter break with Kiwi kids,husband arriving on business a couple of weeks late,and yes something to look forward to,the whole family back together again for a short time.
So all good at the moment!!
Sorry to hear about the dreaded shingles!! So so painful even when spots are gone,Slim has been on the anti…[Read more]

Hi Eve

So glad to read of your news. I hope it goes on for a long time. When does your daughter arrive. Something to look forward to

Best wishes to you both
Love Jean x

Hi Everyone

Thought as I am on would keep you up to date,

Slim has had his first month of treatment,after being told there was nothing they could do!!

Well we have had a good month,the weather in are little corner of the world has helped,most days out and about,lovely to see the daffodils in bloom,the sunshine helps even thou the south wind is…[Read more]

Hi Jeff

I do not know much about your present state to comment on it,feeling if you have been abandoned ,I can understand,your PP are going up,but your tiredness is I would say because of your bloods!!!,even if they have given up on you,you are entitled to have a quality of life plus may be second opinion. I can only tell you my husbands…[Read more]

Hi Jan

Thanks for getting back. Frank has been lucky as far as infections go. He’s had the odd cole, which like you takes him about 6 weeks to get over. But no infections, thank God. Shingles has been the worse. I record his bloods in the Myeloma diary and they are all within range. He I’d have low potassium and phosphates but they are now…[Read more]

Hi Jean,
I’m not sure whether a light chains increase with myeloma patients when they have an outbreak of shingles. A couple of years, I asked this question at a myeloma information day to one of the consultants and the answer was possibly, mainly because the immune system will be fighting the shingles virus which leaves the immune system more…[Read more]