Hi Trigger

It is very much an individual choice,and it is your mums choice,I would advice that you get a second opinion ,65 is not old.
You do not say what Myeloma your mum has,or what damage she has,or if it’s effected her kidneys these are very important in any decision she makes.

My husbands consultant advised us to go to Kings and speak to…[Read more]

Trigger I forgot to mention after 100 days he had all tests including PET scan and is in complete remission

Jean

Haha!!

I had guessed it might be something like that, but thanks for the laugh. I’m sure if you covered your face with enough gunk it would have the same effect and keep the germs at bay – plus your skin would be glowing! On second thoughts, maybe the Mund Schutz would be the best option 😉

Hi Trigger

Sorry to hear bout your mum. Others will be along who have more experience than me but I will tell you of Frank. He had his STC in Match 2013 one month before his 70th birthday. It was no picnic but he got through it. He’s also like your mum “healthy”. With Frank it’s only now he is coming back to himself. Even though we still had…[Read more]

I’d expect to get a mud pack too
Love Helen

A packet or tube of some gunky stuff to put on your skin to reveal the beauty beneath! 😉

Dear Sal
I’ve had mm for 3 years now, 56 when diagnosed. Given induction chemo, had SCT, relapse and next course of chemo. I’ve taken a lot of sick leave and am now back at work. My husband hasn’t given up his work either. I don’t take him to the hospital,( he’s a bit squeamish) and I found having him clattering about the house after my SCT was…[Read more]

Hello David
glad you have got it sorted it just shows you have to be persistant as for you guys it send me mad I often tell especially youngsters excuse me we are not guys my rant for the day
Regards Jo

Hi Carol

Frank has never had radiotherapy. She mentioned thyroid and I can remember her saying “none of my patients have ever had to have it removed “. Really don’t know what that means. I have some questions for her when I see her on Wednesday.

Carol I have been following your SCT journey and as you know things will get better. There is light…[Read more]

Hi David

Revilimid is known to cause DVT ,it will be your consultants approach to it,if you stay on it or not.When Slim was on the Revilimid he was on a preventive does of Claxane 40m but this still did not prevent an artery blockage from hip to knee although he had low platelets?????,

There is a tablet called RIVAROXABAN that does the same job…[Read more]

Hi Vikki

Longg time no hear. So glad to hear that Colin is doing well. I have to say This past week is the best Frank has been since transplant last March. His form is good although consultant says there is something wrong with thyroid! she’s referring to some other consultant. His potassium is low as is vitamin D. Cannot take medication as it…[Read more]

Dear David
I do hope you are going to point this out to the consultant you saw? I was on aspirin all the time I was on Revlimid with the injections when in hospital or flying long haul as DVT is A KNOWN complication of Revlimid. I hope it settles down and is trouble free soon. But you will need the injections all the time as you are high risk…[Read more]

Thanks Jean,

I appreciate you taking the time to get back to me on this. I can really relate to not being able to concentrate and worrying about going off to do other things. I know I tend to make quick decisions about all sorts of things so I’m deliberately holding back at the moment.

I hope Frank continues to improve and that you find…[Read more]

Thanks Vicki,

It really helps to have encouragement from others who know what it is like. Prawns make me nervous at the best of times, so no trouble steering clear of those. I’ve told M that I think the treatment is tiring – for me! We were at the hospital twice yesterday, and the second appointment was about 90 mins late. I always go prepared,…[Read more]

Hi Grega

I know GCFS injections boost white cells in the blood,if you contact Ellen or Maggi on the free number above they can explain. Eve

HI Andy
sorry not commented for a while just managed to get on the site again Lucky you have Steph to look after you and they managed to catch the infection in time and the low nuets so you know what you are dealing with
Keep well JO

Hi Sarah

This is a very difficult decision to make and takes a massive lot of thinking. My husband was diagnosed in 2006 with smouldering myeloma. I taught at the local university and loved my job. Frank was smouldering and although, sounds funny, was healthy. He didn’t need me around all the time. But I couldn’t concentrate at work, he was…[Read more]

Hi Andy

Well done Steph ,I do not know if you keep a BP gauge at home ,but I find this invaluable ,Slim never hits a high temperature ,but his blood pressure goes down,and he is not confused,but there is something not right about him,I have learned this is a prelude to bloods not being right plus,his temperature spikes very quickly,I am talking…[Read more]

Hi Dave

My husband (70 last April) renewed his licence and he said that “if you suffer from a condition that precludes you from driving …….” Myeloma does not fall into that category. He had no problem. He said thT it so Lu for 3 years

Best wishe
Jean