Hi again Harmony,

I’m pleased you’ve found the mindfulness techniques useful. They emphasise that it is a practice and you have to keep practising! One of the key principles I learnt was to be kind to yourself if you don’t feel you’re doing it very well and look at the way your mind wanders with a kind curiosity.

Don’t worry too much about the…[Read more]

Hello everyone!

Thanks so much for your replies and for telling me about your experiences Andy, Nick, Eve, Jean, Angela, Helen and Mavis. I really appreciate your help and good wishes. Angela – it really cheered me up to think of you going out and having a good time and enjoying life – particularly the karaoke. It has helped me to feel less…[Read more]

Hi Andy
As I’ve finally managed to login again! I wondered how you and Steph and the pomalidomide was going? I’ve not gone back to work yet…. Got shingles for Christmas on top of the numb Velcade feet! Fortunately all is resolving now.
Love Helen

Liz that should be Kev. New site at the moment doesn’t alllow you to correct mistakes

Jean

Hi Liz

Before Frank starts treatment we insured with Columbus and after treatment we took out a yearly policy with All Clear. I hope you can get sorted as we feel Bret when we get away

Best to you and Kecia
Love Jean x

Well it’s all very interesting….. We were not given any dietary advice … In fact were told there is no evidence to suggest that there is any problem with any foods as gastric acids continue to do their job!
I have eaten anything I liked or felt like eating since day 1, nearly 3 years ago, I’ve had induction chemo, SCT, relapse and second lot…[Read more]

Stuart

I’m sure you are tired hearing from me but the spammers have hit new comers section

Jean

Stuart same with this post. Last line missing

Sorry Stuart but site mis-behaving again. I posted to Sarah on newcomers. When I posted I went into post to fix errors. Only half post was there and when I clicked on it – it highlighted itself and disappeared. When I reopened it half the post was back. Tried a few times with the same result

Sorry Sarah site playing up again or my IPad is. Part of the post was missing and wouldn’t let me correct my mistakes. But anyway I wish you and M the very best
Love Jean x

Hi Sarah

Frank had his SRCT in Belfast City Hospital in March. He was also told of all the same things not to eat. Just like a pregnant woman’s diet. I was not allowed to bring him packaged sandwich from the hospital shop. The thing he missed the most was farmhouse pate. Like Megan I used bacterial wipes on every surface. I drove my grand…[Read more]

Hi Andy

Well do you feel,you have had your hand slapped!! Lol

Andy after all these years on this site and your countless experiences of so many,many different chemo,and people with different opinions and approaches!!!

Hope you intend to go out for Sunday lunch and enjoy a pint of real ale,treat it the same way as the BT .lol.

As for…[Read more]

Hi Harmony

I do not know much about counselling as I chose not to take that root,I am a firm believer that unless you have had the same experience how an earth can you help some one,there are very good books on dealing with people who suffer a trauma.

As for telling people or not to tell is a hard one,try not to have regrets about it,people will…[Read more]

Nick – I know why you got the same food advice. Looked at your profile and saw you mentioned your blog, which I quickly scanned. You’re being treated at the same hospital! Hope that doesn’t sound stalkerish!! At this stage it is helpful for me to find out as much about people’s experiences as possible – there’s something bizarrely reassuring about…[Read more]

Hi and thanks Megan and Maureen,

Isn’t it strange that we’ve been given all this advice about food when you didn’t get any? It’s basically about keeping to “clean foods”, which means avoiding the sorts of things that pregnant women get told not to eat – blue cheese, raw eggs, probiotic yogurt, raw or lightly cooked shellfish. I guess that rules…[Read more]

Well, the chemo started today. It’s now Velcade,  cyclophosphamide & prednisolone. They had to get special permission to use this combination, but it’s because M suffered such a severe reaction to dexamethasone last year that every effort is being made to avoid it. We’re not sure how often he’ll have to go to hospital, as the nurses don’t seem to…[Read more]

Stuart tried to edit above post right away and it through me out. Don’t know what I’m doing wrong

Hi Stuart

Went into a post that I submitted and pressed edit button it brought me into my post but when I clicked to add something the complete post was selected and disappeared. When I closed down and reopened it post was there but couldn’t edit. I posted it yesterday, maybe to much time passed to allow editing

Regards Jean