Hi Helen

To be fair about the unit,they have improved,opened another section,have taken on more staff,volunteers who help in hospitals fetch and carry drugs,before poor nurses were doing it,and would not let carers do it. So they did listen after written complaint, I do think they might be dreading us returning. LOL.

May I suggest you take a…[Read more]

Hi Eve:-/

Fed up cleaning :-/ but it has to be done. I read on face book about your new motor home – good health wished on you both to enjoy (don't know if that's an English thing but we say it here when you get something new). I hope that you get good news on tomorrow and that you can get back on the road again theres a song with that title…[Read more]

Hi Helen

You are having a bad time 🙁 . I hope things start to improve soon and you get back to your old self soon. Re the day clinic; we went yesterday and Frank has started Zometa again. Normally when we go in, bloods are taken, wait begins, we see consultant and then sent to wait for a chair to become available for the infusion. This as…[Read more]

Hello Eve Tom Tony and Pat
Eve I think you should be the secret weapon, can we just bottle you and send you into the department of health? I know I should write letters saying what I think but I'm so lacking in the energy to do it except at 3 am on dex!

Tom you do make me laugh, if you walked into our day unit I'd speak to you! I was just…[Read more]

Hi Mandy

Nice to hear from you also good that you are being positive.

I originate from Liverpool,I remember the Royal is it the same old hospital,???? It was a good hospital 40 years ago, I had a baby in the Royal,we had a saying . Book your bed and then get pregnant..?

Make the most of your freedom why the still allow you out of the…[Read more]

Tom and Dai

First Tom,it shows in the eyes.

Dai in the south the woods are covered,next week you will be lucky to see them,the blossom on the trees is going due to wind and rain,we watched a niebour with here young daughter picking up handfuls of blossom like confetti ,throwing it up in the air,gone until next year.

Such a lovely time…[Read more]

Hi Tom

We started travelling many many years ago,I alWays said I would never take photo,s if truth be told I would bore my kids ridged with them.

To me the whole point of an adventure,is for Slim and I to share,it belongs to us,wonderful times,lots of travel,my kids and grandchildren have to find there own adventure,my photo,s are in my…[Read more]

Hi Jo and Jean

Hope you are both keeping well.
I bet the house is spotless Jean takes time to get them back on there feet.:-)

We are waiting on results,phoned but they said they were not in!!!!Consultant Friday!!!

We have just bought a new Motorhome!!!! Other one was to big for me to manage chores ,but the new one is more manageable…[Read more]

Hi Helen

I am the carer,and cannot blame the dex8-)
Hospital waiting times,grrrrrr organise yourself s if I started,I would need more than this topic. I found it horrendous ,far easier to do a 60mile round trip,specially when Slim was not feeling to good,I have been known to take Slim home after Velcade and go back on my own for tablets…[Read more]

David what a lovely photo 🙂

Love Jean x

Dear Tom and Tom 🙂

Well, I've survived, the first velcade and the dex is working well, headache and shattered, not much sleep last night. I have an enormous bruise on my tum:-( not hurting but……. We did everything right, no rubbing etc is this common? , clearly I will not be getting the bikini out!:-(
Thanks for the driving advice,…[Read more]

you are right Eve the bluebells are beautiful at the moment the woods near us are one carpet of blue and the smell is heavenly it gives you a lift just to see it I am glad Slim managed to get into the woods, any news on his scan! yet are you keeping well
Love Jo x

well Tom

I think a double is called for wonderful news for you and Elaine you will be able to sit back and relax for a couple of months
BIG (HUGS):-P
lOVE jO X

Hi Tony and David

Spring might be late this year,but its worth waiting for after such a long time not being able to enjoy it.

Slim was in hospital for 22 days first time, I use to drive with windows open along the A2 on the way to hospital at 8am back at 9pm,so spring passed me by.the next time Slim was in Kings having SCT,good hospital,but…[Read more]

Hi Dan

That's wonderful news,give your self a pat on the back,you are doing wonderful. Please take time for your exams ,they are your future and very important,make sure the appropriate authorities know your problems,it,s important.

There is no magic formula ,the general feeling is your dad should get 1/2 the remission ,but lots of factors…[Read more]

Hi Christine
That's all right then! I was told that getting back to pre mm fitness was going to be very very slow and not to push myself at all in the first few months. I never did get back to that point before I relapsed.
Let us know how you get on tomorrow.
Love Helen

Dear Pat thanks for this info, it's sometimes good to have an idea of what to expect even though we all differ so much. I'm not in contact with patients much at the minute, we are at the end of an enormous study looking at depression and have lots of tidying up to do. Once that is done I could sit back a bit, I am very lucky where I work, I can do…[Read more]

Just want to add my best wishes Geoff take it one day at aime

Love Jean x