Hi Helen

Slims ok about BMB he has had at least 6 says its not pleasant ,but would rather know the situation with Myeloma.

Only because we have been hear before the symptoms are all there,fatigue big time,body aching all over,colouring not good,appetite small,going backward with health,Slims a stubborn man takes a lot to admit to pain,but…[Read more]

Hi Everyone

By the time Pat reads these post,cleaner hired plus making lots of arrangements,away from work!!!

We were lucky we had a good head start on all of you,over a short period a long time ago,we made big decisions completely changing are life's ,sold business kept a small flat to let,and off we went,dog as well,travelling everywhere…[Read more]

Hi Dai
Hope the gcsf continues to lift your neuts and mood. Good luck next week
Love Helen

Hi Pat
I think you just have to do what is easiest and best for you, like Eve says ' no one ever regrets leaving work' I'm still plugging away at it but I'm very lucky, though not sure for how much longer. After I start the velcade I will see how I feel and maybe make the decision.
I hired a window cleaner today, and am seeing a cleaning lady…[Read more]

Gordon Bennett !! Wendy, you must have been really up and down, what a horrible few days for you. I'm glad you have plateaued again. Stay there for as long as possible please. I don't know why they decided to treat now! I was in same cart as you until last week, then out of the blue really, I expected next Revlimid prescription but got 4 more…[Read more]

Hi Dai

Well I must have read it wrong as well,Revidimide and Velcade had to be used before eligibility for Muks 5 .Which if only patients who were on CDR then Velcade then relapsing would be eligible,I would think they will be hard pushed to find patients!!!!

I would seriously question eligibility !!! Good luck Dai. Love Eve

Hi Everyone

Getting a cleaner is the best thing I did,only 2hrs but makes a difference,mind you she sought of hinted about my 20 year old dyson,and she did bring her own steamer,I went out and bought one the next week,no doggy smells to be found,when Slim has a moan about her moving things,I have to have words with him,he has old man syndrome…[Read more]

Hi Eve
been meaning to ask you how is slim doing is he well now did you manage to get his scan i know you were worried about it
Regards Jo x

Go for it Pat

If you can afford it why not I am not a great house wife if you dont move things you dont notice the dust we go out a lot if we can Your results sound good so perhaps not much longer for treatment I am on cycle5 get swollen ankles a bit but ok other wise the graduates sound fun they must have tsken you under their wing a surrgate…[Read more]

Hi Pat

Yes there is,I stand in amazement at people who do not get help in the house ,but if cleaning floats your husbands boat????,it's ok. I intend to spend as much time with Slim,not cleaning,less cooking and more going out.

As for depression it must come with the territory ,its the ability to recognise it,do something about it,and not…[Read more]

Hi Helen

Like you, our one son started uni 4 weeks after my SCT and the other a year later. We hardly see them now they are living away from home, until they return for holiday periods or phone us for money, help with accommodation problems or lifts back home.

You are right, you never seem to stop worrying about them. You try to offer…[Read more]

Hi Sandie

I think your mom at aged 87 is coping really well with taking her drugs and still managing to look after herself with your help. I know I would have struggled without my husband's help, especially dealing with the side effects of fatigue and bone pain. My husband had to take over all of the cooking, cleaning, washing, etc because I…[Read more]

Dear San, Pat and Elaine
Thank you all for your advice, I went to the hairdresser today, they are so lovely. I'm now sporting much shorter cut, have a bottle of stuff to apply to scalp before treatment starts and an appointment for 5 weeks time to see what's happening. Today it was a bit like yours Elaine, with the bleach stuff touched on the…[Read more]

Hello Liz
Well done you, like Etta I drank lots, walked round the plane every hour I was awake, watched all those films I never got round to and slept as I could. I didn't eat much. I took a course of antibiotics and a thermometer and took my temp every day just to be sure. My consultant also gave me a course of acyclovir as he thought shingles…[Read more]

Hi Liz

Hope you have a brilliant time – bit green with envy 🙂 frank is 7 weeks post SCT and Frank is also looking forward to a nice holiday. He smouldered for nearly 7 years so we travelled a lot. I am a bit paranoid. We use Quinessence Synergy. We have been using it for years. Before we board flight put a few drops on hanky and just stiff…[Read more]

Hi Sandiex

Your mum should only get zometa side effects for a short while and it does work wonders with bones for a short period. Why Warfarin and not Claxane you could do them for mum they will do the same job but cost more, I would consider Claxane to be very important as chemo side effects are blood clots!!!,

Sandiex Osteo Cronosis of…[Read more]

Hi David

Have been told war horse is a wonderful stage production,my granddaughters loved it,might get to see it myself one day.

The new combo of drugs should see you through the paracetamol gives an extra dimention to any morphine drug,plus if you have liquid back up as well.Slims on combination ,just about keeps pain under control,he is…[Read more]

Hi Clare

my MM journey was diagnosis in Jan 2009 pneumonia' renal failure and MM had CDT which gave me 3 and a half years remission kidneys still only 20% but hanging on started Velcade at the end of last year hoping to get a good remission again this is very much a personal journy I think at your mums age she needs to take her time and take…[Read more]

Good luck Scott. Hope you get a long remission

Jean x

Hi Clare

Welcome to the Myeloma club!!,patient,carer or family,I hope you get a good response to all questions.

My husband is 69 this year he had SCT after two courses of chemo,CDT plus Velcade., He only got 6 months remission. After the 100 days,he went to Kings I can assure you these top notch London hospitals,know there job,they do it all…[Read more]