Hi Pat
yes its does frighten you especially when its difficult to breath lets hope this next round of treatment puts you right so you can get off to Canada and hug that grandaughter Geoff took me to Dorset for the weekend it was a bit wet but a nice break
Take care Love Jo x

Thanks Maureen for your kind wishes
Love Jo x

Hi Eve AVOIDED THE SWORD THIS TIME!
Glad Slim is doing ok Tom and Jean posted on face book and my daughter answered them as my husbands does not do forums i dont know about slim but Geoff is not keen any way starting velcade again on wed:-P
Take care
love Jo x

Hi Mary
My husband cornered the antibiotic wipe market, cleaned everything i was ever likely to touch and stopped all visitors and tried to cook. He managed 3 days cooking then self preservation stepped in and it was better to do it myself. I only ate very bland stuff for months and still don't eat as i used to. We changed beds and towels every…[Read more]

Hi I agree with Eva here, the drug arsenal for mm is still small so if a drug works and you can tolerate the side effects it's worth persisting and getting as much mileage out of it for as long as possible, then using it again in the future if you can. I have now spent the last 2 years on Revlimid with a few months off over transplant but each…[Read more]

Hi Charlie and Mary

SCT already seems like you were new on here not long,you had a few blips and now going forward for SCT.:-)

Well you have has good advice from above,it is hard work once there home,are you having it done in Southampton or Kings,try to get the SCT out of the way first,. My advice is do not bother to buy new clothes…[Read more]

Hi Mary

What Tom says is right. The cleaner the better. Frank came home after SCT 2 weeks ago. He did try to climb stairs as soon as he got in but didn't make it. Couple of hours later he did. Now it is his daily exercise – climbing the stairs. I would add to vet all visitors. Mind you I only allow the family and no one else. They know that if…[Read more]

Hi Sue and Helen

Thank you for information Sue,my daughter tells me the lesions on the shoulder blades will be very hard to define new lesions as it does not show up very well, he is having difficult taking clothiers off because of pain,the lesions on the skull are easier to spot,he has told us no more lesions on skull,this is when I approached…[Read more]

Dear Sue
That is just an awful short time for you, I can only sympathise and hope all goes well on this next lot of treatment. It's such a tough road. Keep us posted on how you are getting on with it. I've been on the Revlimid for18 months now and had annoying but low grade side effects only.
Love Helen

Perhaps all we need to get better is more sunshine and beer! Love Helen

Hi Dai

Just a quick one have you seen the home page on drugs available !!!!!!!!

Hi Tom

Coach trip seems a good idea,as you say no driving,I drive now for long journeys.

We like the freedom a Motorhome gives you,but must admit will want to know we're the hospital is. I am determined this Myeloma is not going to take everything away from us. We will still take trips to France but only within a 24hr distance..
This is…[Read more]

Hi Andy and you to Vicky

Vicky we are all a bit paranoid ,that's why everyone says its like a roller coarser lots of highs and lows,you are both expecting to much,if you look at SCT as major surgery,then you would not expect to be fit. Andy Tom everyone else will say listen to your body.

Andy I am so pleased for you,it is an awful…[Read more]

Dear Eve
It's really hard isn't it? And it feels unfair when you look and feel well! Make sure you have lots of anti midge stuff for Scotland, but it's always very pretty.
Love Helen

Well Tom, am envisaging you in the onesie:-P with a/bs and sorry face:-( hope you better soon
Love Helen

Oh how lovely, I hope you get them sorted, and next year I expect you to post a picture
Love Helen

Dear Vikki
I don't know what is normal and not normal still! I took nigh on a year to recover enough after sct to go back to work! So maybe Colin is trying too hard, who knows . Like Ali's mum, we have to do what we feel is best on that day! I have good days still, then I have really bad days where I struggle to get in to work, need lots of…[Read more]

Hi ladies

With Slim being deemed to be out of remission and will have to have BMB every time they need to know how is myeloma is doing,plus more blood .it has made us rethink are plans.

We thought France safe to go only to find your European Health card will only cover 79. Percent of emergence treatment, so getting caught out could be…[Read more]

Hi Jane

There is no point SE is all the same medical team,I know this team well after 2. 1/2. Years I might have my moments with the consultant,but most are the same,when they get that high up, I did think may be general treatment at another hospital might be quicker but I think overall the unit has improved I will let you know if I am…[Read more]

Hi Tom

Your local club must have had there takings hit. Lol you know I sympathise with you,not having to go to work,you poor thing!!!its a hard life. I hope it clears up and you are soon back on your feet,missed you on Facebook. Love Eve

Slim sends you his best wishers.