Hi David

I see you are quoting me, At the time I ask Slims consultant about possible maintenance ,with Velcade I explained Slim had had CDT then Velcade then SCT and wanted to know if there was the possibility maintenance. As at the moment it is 10 percent in bones. I was just putting a possibility forward rather than possibil round of…[Read more]

Thank you Andy and Sue

Andy at least we got SCT stage,will be your turn,a doña we hope..xxxxxx

Sue how are you doing,now the rush is over,I hope you are managing to sleep,give yourself time to recover.

I am off today for afternoon tea,( Mother's Day present from one of my daughters ) I have invited Jenny who has become a friend,her…[Read more]

Hi Eve
I've not started any on any more treatment yet, but I had the long discussion about the options available and it will be velcade and possibly a trial which is coming up with velcade and something else, I don't even know what it is called, then second SCT with the hope I will get 2-3 more years!….he said!! . I was a bit shell shocked…[Read more]

Dear Jean and Eve
I'm beginning to think that the boys get better looking after than the girls!!! I was doing all the cooking within a couple of days of getting home! I didn't do the shopping though, but was on my own a lot when hubbie went off to work, 'business as usual' being our mantra
Quite clearly I needed a wife!
Hope frank is…[Read more]

Hi Helen

Just thinking about you,it's worst second time round.

First time you are just grateful you at last know what is wrong,second time round used up CDT. Plus Velcade ,the options reduced,It is a shock,we thought Slim might get a couple of years,but 10percent in 6 months,that's not a bit in the bum,it's a shark attack.

As I said…[Read more]

Thanks again everyone

It is nice to have your best wishers.

Tom sold the van today,exchanged it for a smaller one,which will be easier for me,cost me money,but it will be easier to take out for weekends plus the odd weeks ,the other one was made for staying away for long periods, the last thing I want is for Slim to be stuck in doors ,he…[Read more]

Dear Eve
It's such a tough journey isn't it? You try so hard to keep optimistic and forward looking then it gets up again and bites you on the bum. I really do feel for you and Slim.
Thinking of you, keep in touch
Love Helen

Hi Ali
I've been to stay with friends for a few days and shopped with my son, we are out for our 30 th wedding anniversary dinner tomorrow, so he needed a while outfit! Poor student see.
The vaccination thing is different everywhere and must be a bit of a pain. Like everything connected to mm nothing is simple, bmb for me this week….. I'm…[Read more]

Hi Baba and Jean

We have known for a month now,it is just getting you head round it and getting over the disappointment ,we have both picked are selfs up again,plans changed and ready for the next round,stopped feeling sorry for myself,given myself a kick.(and that's just me) .Slim deals with it differently than me.

Selling large…[Read more]

Dear Eve

I am so sorry that this damn disease has reared it's ugly head again. I know you are a very strong woman and very knowledgeable. You and Slim have been through a very rough time. I don't know what to say to you Eve but my thoughts are with you and Slim and I will pray that there is a treatment for him.
Love Jean xx

Hi Jean

Good to know Frank got home,it does take a lot out of them Jean,when Slim came out the idea of going home gave him energy,I wanted him to have a wheel chair to the car,he refused,we made it from Kings in London to Kemsing Sevenoaks,had to stop as he could not go on,had a rest,then rushed like mad to get him down to Deal took 3 hours…[Read more]

Hi Ann and Vicki

Frank got home – we arrived about 2.00pm. Our sons came round but never brought children or their wives. He watched the Liverpool match and fell asleep. The only thing he had to eat was a yoghurt. He woke at 6 and asked me to take him back. He was exhausted. before we left the hospital the doctor said the calcium had risen…[Read more]

Hi Maureen

I never realised you had difficulty getting diagnosed,what did you doctor say about it???

How are things going,are you managing to get any rest.Love Eve

Hi Baba

Well 1year on,and lots of years in front of you,congratulations .

I know you go to Canterbury ,so is it just Zometa now and a visit to see consultant every 3 months??

Let me know your next appointment,it may just fit in with one of Slims,I think we will be on the old route again.
Have a nice Easter.Eve

Hi Jean

Sorry to hear Frank,s still in hospital,did not realise as I do not look in on here a lot at the moment, I thought Frank would have been out by now,kidney,s leaking,that's a new one on me,is he in any pain!!! I use to shower Slim when he was all hooked up,some times I ended up wetter than him,he had a shower but a wet room would have…[Read more]

Hi Vicki and Colin

Has Colin got over the gastroenteritis yet I do hope so. Franks electrolytes still low but have improved a bit. Really don't understand it but this is what is leaking from kidneys. Anyway his consultanstis off for the long weekend and another one has taken over. He seems quite nice. If everything goes to plan he says Frank…[Read more]

Hi Dai

You have just reminded me were I was 2 years ago at Easter and it was not avery good time with Slim.

I think you are asking are you being a little bit neurotic,well the answer is NO,any one who understands your position knows all the possibilities ,and the thought of going to any hospital during a holiday period, is worrying. Yes…[Read more]

Hi Dai

Slim has already had Velcade ,!!! I was hoping the doctors ,might consider a form f maintenance ,as BMB are the only way to tell Slim has Myeloma,you would not believe how good his bloods are !!, most properly healthy than mine.

We should. Have the answer once we have results of MRI and body scan,by the time we see consultant it…[Read more]