Hi Maureen and Ian
The hospital should be taking bloods on a daily bases if there is an infection,they do tend to give more tablets as a precaution,and this can cause Ian to be confused.when you go in check if his general ops are ok plus bloods,if you are not happy ask to see doctor who looks after him on a daily bases as consultants come every…[Read more]

Hi Tom;-)

All good news,but I swear you have more vodka than blood in your veins.8-) Slims just had another BMB as only way to tell what is going on,at the stage were you feel it might just give you a tap on the shoulder.

Lovely to hear,you have the all clear ,no wonder you went to Asda to buy more vodka Love Eve

Hi Tina

You are just behind Slim,he was randermised for no treatment ,but we are ok with that,we go to hospital every 2 months ,just to check every thing is ok.

slims just had another BMB as his. Does not show in bloods or urine,so 6 months BMB just to check it,s ok, will have results in March. Eve

Hi Robin

Myeloma is a cancer with no cure,but saying that your dad can have a lot of time in remission ,so all though it sounds bad,the more you learn the better you will understand it.Myeloma is such an individual cancer,and people react differently to treatment,one thing you will find on here is people who have travelled this path before…[Read more]

Dai great news. Hope things go on improving. I too love reading your post, keep them coming

Hope Janet is doing well and the new baby bringing you loads of joy

Take care
Love Jean xx

Hi Tom

Brilliant and long may your consultant smile 😀 I'm sure the vodka has something to do with. Bet you and Elaine are down in the club tonight celebrating your consultants smile and valentine. Enjoy 😉
Love Jean xx

Hi Pat

Angela is great now. Thanks for asking. Little Ben is just lovely a bit jaundiced but doing well.

Pat it is a pity that you can't be with Beatrix. Although we have 5 grand children the only one born here in Northern Ireland is wee Ben. Grand daughters were born in England so we were not around to see them developing, it's only with…[Read more]

Chris Frakn is also a fit 69 year old. We have been told that they won't do the STC after 70 which Frank will be end of April. At the time he said it was discrimination and as long as he was fir he would fight for a second SCT. Now I'm fighting him for the first one.

Take care Chris and go from strength to strength
Love Jean x

Hi Chris

In December when cells were harvested they told us that the stem cell co ordinator would come to talk to us, but she was called away. Every time we have been to the hospital we are told that she will be in contact very soon. We are still waiting. I wanted to,phone her but as Frank is having second thoughts he told me not to. We go…[Read more]

Hi Chris

In December when cells were harvested they told us that the stem cell co ordinator would come to talk to us, but she was called away. Every time we have been to the hospital we are told that she will be in contact very soon. We are still waiting. I wanted to,phone her but as Frank is having second thoughts he told me not to. We go…[Read more]

Hi Maureen
Phone the hospital, could be sub clinical infection, or anything especially if temperature isnormal. Tell them about the confusion, can't harm and will put your mind at rest.
Love Helen

dia
I agree about IV anti'bs I certainly had an upset stomach when in Hospital a couple of weeks ago when on a high dose I thought I got a DOSE OF c diff oh no! but it was the meds so I think you are probably right, on my chemo at the moment i am on half doses of everything except Velcade and its working this is because of the renal failure so…[Read more]

Hi Ali and Suzy
I swore by Aveno and the itch seems a common problem.
Love Helen

Thanks Tom and Wendy
I will do my best visiting all the high spots – tops of towers etc! Never been before, he did say it could be some months before I might need more treatment. Ironically the cough seems to finally be going.
Love Helen

Dear Wendy
I'm following you now! as of today my lambda light chains have jumped to 58, a gradual climb over several months to 26, then doubled!
No treatment changes so far, watch and wait – but it's still so disappointing. I'm off to Barcelona on Friday. Good luck for the 15th
Love Helen

Hi Ali I have PM'd you. Thanks
Love jean xx

Vikki that information is very helpful. I didn't know that about the cleansing. Thanks. Hope Colin goes from strength to strength

Love jean x

Hi Carryanne

My hubby finished SCT in December. There was one month when both his feet and legs swoll up. When he phoned the unit they told him to go up. The doctor gIve him agood examination and sent him home. Eve told us to raise his feet and that seemed to do the trick. Hope things improve

Love Jeax

Thanks for that Megan and good news for Phil. It's always on my mind and just wish we could get it started. We go on Thursday week to hospital and this time I am going to ask to see consultant – even if we have tow wait, I have such a sting feeling that she is deliberately avoiding us – hope I'm wrong but will see. I also emailed Ellen so waiting…[Read more]

Hello Carryanne
I am sure you will be ok on CDT i think it is probably the DEX that makes your feet puff up have a word with your DOC when you go it makes my ankles swell a bit I also have pramidrinate once a month which seems to be ok no real side effects
good luck with it all:-)
Love Jo x