Hello Pat

thanks for your thoughts I found the rush of love for my grandson as soon as he was born it was marvellous for Geoff as well because we were an all girl household before that even the cat was femail.
My hair has gone a bit sraggy as with you my hair is or was very thick not so at the moment so i am going as short as poss but i just…[Read more]

Hello Dia

ANother bit of good news Ethan James didnt want to wait I hope you will be able to see him soon love to you and Janet and the new little one
Love Jo xx

Hi TEBEBE

i hope you get on well with the CDT I did ok on it I think the days that you are down are probably due to the DEX it has a bad effect on me that way
Good Luck and keep well
love Jo x

Dear Joe

well done at university I am sure your dad is with you and so very proud I think its wonderful that you are still running and raising money its eople like you that raise awareness that will bring MM to the fore keep up the good work i echo Jean post your just giving page
Love Jo x

Hi Joe

It's very good of you to come on and let us know what you are doing. I remember you dads journey and its hard to believe that nearly a year has gone by.

From me thank you so much for what you are doing. Myeloma has to be put on the map and what you are doing will contribute greatly to that. I'm sure your dad will be with you all of…[Read more]

Hello Mavis
thanks for your thoughts I hope you are keeping well and still in remission
Love Jo x

Hello Carryanne

so sorry you have had to join I was diagnose jan 2009 and had CDT this gave me 3yrs 6mths remission I did not have a stem cell as my kidneys were badly damaged CDT was ok for me a few numb toes but no pain the only down side was from the DEX a bit hyper and not much sleep while taking it I was 61 and 1/2 when i diagnosed it was…[Read more]

Congratulations Dai and Janet

I'm sure you are both over the moon – I know the feeling. Best wishes to you both and the new parents 😀

Our wee man isn't feeding so they are force feeding (!!!) him at moment so will be in Hospital till its sorted

Take care
Love Jeanx

Hi Jo Jo

Thanks. He is so lovely but his nails are so long that he has scratched the face off himself ? they have put mitts on him,, they hope to get home tomorrow but as Angela is diabetic they may keep her in a bit longer. She won't like that as she wants home so badly

Hope you are well and truly over you chest I fiction

Keep…[Read more]

Congratulations to you too Pat
we only have one grandson but he is the love of our lifes just as i am sure your little granddaughter will be for you:-) hope you are getting on well with the VCD
LovE jO X

Hello Jean and Frank

what wonderful news a little boy something to celebrate at last
Much Love jo jo 🙂 >:-) 😉

hello John
i have regular infusions of pamidronate once a month no real side effects a bit achey at first but after that no bother
I hope she does well this medicine may help keep MM at bay for a bit
Regards Jo

This sounds like good news Dia

keep it up this might be the one to give you a bit of drug free remission
Had three days in hospital this week Geoff took me into A&E 5 o'colck in the morning with a temp of 39 3 days on IV anti B's bad chest infection started with a cold and got worse a lot better now I usually get a winter cold but was probably…[Read more]

hi Stevo
CDT was ok for me had a bit of PN in my feet two outer toes on each foot went very numb but not painful so i could live with that and at night it gave me a good four hours sleep even on the DEX time, doesn't suit everyone but it did me
Keep well;-)
Love Jo x

Hi John

My hubby had Zometa for 2 years back in 2006. He then started it again in June and on both occasions he has had no side effects at all. Hope all goes well for your wife

Love Jean

Hi Pat and Tom

Thanks for your good wishes. Just back from hospital and they had to prise him out of my arms. They have called him Benjamin Francis (Francis after Frank). Too adorable

Pat Beatrix is a wee poppet – she is so tiny, dear love her. I'm sure you can't wait to meet her. This 'face time' is brilliant. I use it all the time to see…[Read more]

Dear Sal

So sorry that your dad has lost his battle with this horrible illness. I know it's difficult and maybe hard to hear but it is a blessing that as you say it was "short and sweet". To know that your dear dad is not suffering must be of some comfort to you. My thoughts and prayers are with you and your family

Love jean x

Hello Maureen

I am so glad to read that Ian is progressing and glad that he may walk again. Everything crossed for him. When Frank was on CTD they had to reduce the Dex as he had bad side effects. Great to hear that Ian is handling it well. My very best wishes to you both

Love Jean x

Well done Stevo

lets hope you have a break after eight or one over the 8! i have had a temporary break from velcade been in hospital with a chest infection temp of 39 and all that, after a few days on IV anti b,s nearly back to normal as for MM Murky Mud Blood disorder from the depths of hell come to mind:-
Keep well love Jo x