Hi jean

Symptoms are palpertations,but have to be very low,drugs are awful to take,so stuff him with bananas plus apricots,make sure he eats at least two a day,that a potassium aby way.if he starts to feel unwell it's a bit like starting a heart attack,it is important that it is corrected,why not go and collect physcription.

Have a good…[Read more]

Well done Andy that's a great amount

Love jean x

Hi Keith

When my son was 18 months (now 30) he was covered in bruises. Just lifting him for his cot caused massive bruising. Went to hospital where his platelet count was 8. After tests they decided to do some procedure (for the life of me can't remember what). Just before they took him down test showed that platelets had risen slightly…[Read more]

Hi Megan,

It sounds like Phil is doing very well, considering – it's a good sign he's well enough to feel bored!! But I'm so sorry you're having to deal with the anxiety of him being in a shared room. I'm not surprised you went into meltdown…. I honestly thought it was normal for people undergoing SCT to be in isolation, although others may…[Read more]

Hi David

What great news! Have a great Christmas, a healthy new year and a happy happy birthday

Love Jean xx

Hi Keith

Alarm bells start ringing at under 20,Slims went to 17, need platelets below 20' your blood is low to,so I see a transfusion coming,give you some strength for Christmas ,it,s worth it Keith,try to have a good Christmas .love eve

Hi Val
Good news indeed, I'm hoping you get lots more years, have a good Christmas
Love Helen

Awwww David, drug free Christmas and birthday sounds good, it's funny, I don't know what drug free is like! I have no idea if I'd be better off the Revlimid than I am on it, but I'm not planning on stopping to see, if that makes sense 🙂
Have a good Xmas
Love Helen

Val brilliant news. Don't have to tell you to have a great Christmas but I will anyway. Have a great Christmas and and long may your good news continue. 😀

Hi Stevo
CDT is cyclophospomide Dexamethasone and Thalidomide my creatinine
was 500 on collapse i was at about 350 when it was considered but there would have been grave danger of the aggressive chemo fully destoying my kidneys i didnt want to risk it but i am a lot older than you your body
may take it you may need a long discussion with your…[Read more]

Christmas blessings to you mavis

I hope all keeps well for you for a long time to come

Love Jo x

great news David
A drug free christmas and it looks like quite a bit beyond this what we want good news
seasons greetings yo you and yours
Love Jo x

Wishing you all a happy Christmas ,and for those who are going through a bad time,I hope things improve,my thoughts are also with the people who have lost loved ones,and people who are near the end of there journey .

New Year. Will for me a journey going back home,leaving NZ at 23.59pm so we will pass many countries welcoming in the new year…[Read more]

hi Steve

I was diagnosed jan 2009 MM renal failure and pnuemonia i had CDT which gave me 3yrs 6months remission I chose not to have an SCT as would have put in dialysis kidneys still hanging on I have just started sub Q velcade on second cycly with reduced doses of some of the drugs to protect the kidneys so chin up i am sure you will be ok i…[Read more]

Hi Tina so glad that you have turned "the corner" 😀 I am sure each day you will feel a little better. Hope you will be able to enjoy Christmas lunch. Have a good Christmas and a fantastic new year

Love Jean x

Dear Vivki and Colin

So sorry to hear that Colins dada has passed away. My sincere condolences. Best wishes to u both

Love Jean x

Hi Sue

Well I think this is worst it can get the only way is up now,surgery done,see how his mobility goes,do not be afraid to use a wheel chair until he feels a lot better, then start on the chemo again,he is not the first and will not be the last.

As for him feeling low,it is understandable,try to do something every day,even if its just…[Read more]

Dear Ali, Andy, Sandy ,Helen ( so right – good name:-D ) David, Michelle, Tom, Jo, and Vikki
Thank you all, yesterday and today have been really good days despite the horrible zometa, at last I feel really well.
Ali it is very kind of you, I'm only doing what others did for me to keep me going in the dark hours, do have a lovely Christmas with…[Read more]