Hi Gill

I nearly had a fit when I saw these postings this morning. Didn't know what to do about them. It is a disgrace

Gill how are you doing? iIthink about you often
Take care
Love Jean x

Hi Sue

It must be very hard for you at the moment ,people do not know what to say,must find it very hard to send a card,wishing you a happy Christmas,but as Gill said we do understand what you are going through. At least you have your daughters around,I would suggest if you have a good friend reach out to her,no one wants to upset you,but if…[Read more]

Dear Jean
I've just read what Dai wrote on here a few days ago and can't add anything to that, I took 11 months to feel normal after my SCT, it is a terribly slow recovery sometimes. Now I'm able to do so much more but I did think I'd never get to this point. I felt really well for a couple of weeks after my harvest settled down too so it sounds…[Read more]

Hmm, oh dear it's not easy is it? It's a good job you were there! How is your mum today?
Love Helen

Phew, good news Wendy, now relax and take time to enjoy that Merry Christmas you probably haven't had time to prepare for yet?
Love Helen

Great news Wendy well done so uplifting to read good news
Jean x

Hi Vicki and Colin

Good to hear from you and glad that Colin is on the right road. What terrible news about Colin's dad. It's never good to hear news like that but at Christmas it just seems so poignant. I do hope you have a brilliant Christmas. I'm a bit worried (there is no satisfying me) this is the best Frank has felt in a long time. He…[Read more]

Thanks Pat for your greetings

I am glad the experience was ok and you are reponding well fingers crossed for 6 cycles not 8 I am not doing to badly on the velcade but it does knock my Hb out so have had a couple of transfusions I hope you and yours have a lovely christmas and you can keep well keep in touch I have a big furry brown fleece on…[Read more]

HI Wendy

saw on your face book no PP really good news you can relax a while yet
Regards Jo

Hi Emma
2 things, if mouthwash stings ,and is her tongue very red? with white patches? If so I'd very tactfully suggest your mum has mouth swabs taken, could be thrush, very common on high dose dex, then she needs correct treatment . Soon or she wont feel like drinking if her mouth gets too sore. Try not to get too het up about the ward, it's…[Read more]

Hi Sue

Welcome from me as well. I know you don't want to be here but you will get the support and friendship that you need. Ken has had a rough ride but David is right this d**n disease is so individual. My husband smouldered for 6 year and started treatment in June. I knew about the Dex and dexitude from the postings on the forum but when…[Read more]

good luck Pat

I hope all goes well glad you are ok on the velcade I have just started second cycle not been too bad except it knocks out my red blood cells so i have had a couple of transfusions keep well and strong 😛
Love Jo xx

Hi Peter

this is very interesting to me as I havnt had an SCT
Regards Jo xx

Terry what a terrible terrible time you have had. Sorry I can't help with any info but I'm sure someone will come along who can help. Best wishes to you and loved the car 🙂

Love Jean x

Dear Emma
Good to hear your mum is not confined to bed, that wouldn't be easy to endure. I hope you don't have too far to travel to visit her and that the weather stays kind to you. Love Helen

Hi Ann and Pete

Frank went today for the high dose chemo and starts the injections tomorrow . We were told that there may be aches and pains in back, legs, or chest. Nurse said this is a good thing as it means marrow producing cells!! We have to go back next Wednesday early in morning and they will take blood and we have to go to canteen were…[Read more]

Great news Dia

lets hope this is the one everything crossed keep well and stay strong
BIG BIG (((HUG)))
lOVE jO XX;-)

Dai some more great news. Well done!!! Take care
Love Jean xx

Michelle that is really great news. Frank is going for harvest next Wednesday. It is so inspiring to read posts like this. Thank you and have a fantastic Christmas

Love Jean xx

Hi Wendy
I have my fingers and everything else crossed that all is ok, like you any little pain is a worry, I don't know what is serious any more! Let us know how you get on, hope it is nothing major.
Love Helen