Good news Phil keep improving!!
Take care
Love Jean x

Wendy a very moving post.

Love Jean x

hi Colin

not sure what all that maens why dont you give Ellen a ring she is very good and may be able to explain it to you the doctors dont always do that I think they should
Regards Jo x

Hi Ali

I have been following your mums journey and over the moon to read your news. Long my the remission continue and I hope your mum enjoys every minute. It's also been hard on you so hope you can relax a bit and take it easy.

Love Jean x

Hi Dai

Awake like you,had my tea and toast,Good night .Eve

Hi Ali
Good news for your mum and the rest of you, and hope side effects are few, I have just completed my first year on Revlimid since my SCT. I'm still improving even now.
Hope all this progress continues and life returns to a more even keel.
Love Helen (still coughing)

Hi Mari

I thought I had problems,by gum,you beat mine,one of my mantra,s is there is always some one worst off than you, I am feel better already(joke);-)

We know the body copes with what ever it has too,it,s when every thing has passed,Myeloma has been put in its box,I have put a padlock on the box and thrown away the key.another learning…[Read more]

Hi Helen
I have seen this coming and should know better,the only way I can explain it,is every part of my body has for gotten how to relax.Any way a few more days tying loose ends up.We fly next Sunday evening,Slim as usual is taking it in his stride,
In past years when travelling in the Motor Home,all christmas shopping was done in the summer…[Read more]

Hi Eve
I think they are all correct too, while you've concentrated all your energy on Slim, your body hasn't had a rest. Now that the constant adrenalin rushes are over, your body is trying to regroup. This holiday is what you need, go and enjoy it, I hope you have a magical time with your grandchildren. When do you go?
Love Helen
P.s. next…[Read more]

Hi Vikki
Sounds like he's doing ok, I couldn't walk anywhere when I was in hospital, so going up and down stairs is good. I spent 2 weeks going from bed to loo, and back only!:-( No sitting in a chair, no tv, no reading ,knitting, or magazines. I used my phone and iPad a bit. It took me all my time to shower every day and drink enough to keep…[Read more]

Wow Chris
Doing well, eating and drinking 🙂 make the most of it, back numbers of old Dallas to watch? congrats on getting out.
Love Helen

Hi Chris

Sounds if you are doing wonderful,a glass of beer!!!!!!!!!!:-P Slim cannot even look at beer,every now and then he has a sip of my wine,and pulls a face.I am saving thousands of pounds;-)

Please look after yourself this period is so easy to mess up,Love Eve

Hi Deirdre

I will not say I know why you are so confused,its either something that has gone drastically wrong or lack of knowledge about mm,and some were along the line you have extra complications.

Even if your husband had smouldering Myeloma,some one should have been keeping watch on his bloods,from your answer" only having Zometa"Well it…[Read more]

Hi Deirdre

Sorry thatmyou are now part of our club, but welcome from me. My hubby was diagnosed 6 years ago with smouldering MM no treatment only Zometa which he had for a year. June this year he started CDT and has just finished and is waiting for date for SCT and he has started Zometa again. Deirdre if you phone MMUK (no at top) and ask they…[Read more]

Hi Dai and David
I think I upped the stress limit with this trip to NZ,getting everything ready doing all the organisation,plus producing Christmas presents for the people we leave behind,specially the grand children.Have not seen one of my Kiwi grand children for 3 years,so this trip is a must.I also feel it has to be now rather than later,I do…[Read more]

Hi Jet

Nice to hear from you,must have been heavy going with back to back SCT,they do say it is the best thing to a cure.Have not heard about vaccination for shingles,but do know if you catch it early,have less side effects.
I believe you have to have all your childhood injections again with donor transplant:-S Helen got whooping cough,seems…[Read more]

Hi Kes and welcome from me to. This is the best place for you to be. We are all a friendly lot and there is a mindful of I formation, advice and friendship here. It is hard coming to terms with Mm. My hubby was diagnosed 6 years ago with smouldering MM and started CDT in June and has just finished his last cycle and waiting for date for SCT.…[Read more]

Hi Deirdre
Welcome to the site,yes the whole thing does seem so unreal,it is all a bit mind blowing,how are you managing in yourself are you getting enough rest??

It must be hard work,going to the hospital 3 times a week,why are they talking of ( crancking up the chemo??? )

How long has he been on treatment and what chemo treatment is he on.??Eve

Hi Vikki
I didn't have much gcsf after SCT 2-3 doses I think but I can't remember and my diary is packed somewhere while our bedroom gets decorated! Anyway, I was on lots of morphine for weeks so the pain was usually under extremely good control (I'm a nurse, I don't do pain 😛 ) However, prior to my Stem cell harvest, my first posting on this…[Read more]