Hi Gill
No it is not suppose to be ok,far from it,its learning to cope with the fact that people,do not know what to say to you,and by saying nothing,in vase they upset you,they do not realise this hurts more.
As you know my daughter lost her child Matty,and she has got to the stage she puts people in colours RED AMBER and GREEN
Green are…[Read more]

Hi Tina

I know I felt the same way about Slim,it seemed like you have had it get on with it,but who is in charge.

It hits you after a length of time in hospital,they do realise this,but I think everyone would agree you will make better progress at home.
I would say follow procedure extra cleaning,fresh towels plus being careful about…[Read more]

Hi Everyone
Well I feel less stressed out just reading these posting,so may be that is the answer come on here and talk about it,because the people who reply are all in the same boat,and if they are not,some time in the future they will be.So we help each other.

David I loved the bit about your grandson,same as one of are grandsons,he wants…[Read more]

Hi Marlene

This is just to say hello and welcome.

I cannot help with your questions,but I am sure someone will come on and give you some answers,may I ask how long was your husbands remission and what arm of the trials he was on.?????est of Luck Eve

Hi Sue
You are right it could have been approached in a different way,people say when you have news that shocks you,you only hear what your mind will accept.So may be no matter which way it was put,it would have had the same effect,

I do not think any one can give a person a time limit,yes they can say,the treatment is no longer working,and no…[Read more]

Hi Sarah

I think Dai is right concerning the chest infections,when henry had the SCT he was given lots of tablets to stop different infections,I am not talking about normal antibiotics,in theory if Henry has been treated with antibiotics plus steroids,his chest should clear up,unless he has damage to his lungs.

You must trust your own…[Read more]

Hi Dai
Do not worry I do not take everything to heart,lol!!:-P

You have managed without knowing it explained a few of the things that have been bothering me for some time.If I may explain.

1 Slim was a commando marine for 24 years.
2 Slim also been a diver for for well over thirty years,professionally for
about 6 years when he…[Read more]

Hi Winston

No not much help,I am more interested about the run up,because I am assured,the bloods,will be the first marker,so how did you get in the position of compression on the spine???,as I said they should have discovered you going out of remission,I have my own reasons for asking,can you help.

Hi Dai
With out taking over Stan and Mary,s thread I would slightly disagree with your figures,If they could only find why some people respond well and others do not,I can honestly say I do not know if Slim will get 6 months or 6 years,and i do not think the experts know either:-P

As for stress,mine was because I found people not doing the job…[Read more]

Thanks Nicola and I'm glad to hear that your dads legs are back to normal. All these horrible side effects are such a worry. No sooner get over one and another rears it's ugly head We are off to see the consultant tomorrow. I really hope that this is the turning point for your dad and he goes from strength to strength

Best wishes to your…[Read more]

Swollen fete have disappeared!!!!! Back to normal. I think it was the d**m steroids that was the cause. But just thankful l that they are both normal. Thanks all for advice and tips

Love jean x

Hi Peggy
That's what I had, maybe they do the other stuff after collection where you are.
Love Helen

Hi Winston
Welcome to the club,2003 until 2012,that not bad going at all,sad you are of remission but you gave it a good run,what did you first treatment consist of. 7 years which in it.s self gives everyone on here some hope.

I would have thought as they new you were in a situation,that they new it would come back,how did it get to the point…[Read more]

Hi Polly

I agree with Eve. If it is possible to go home and go back. Franks drugs are ordered roundabout 11.00am and they are not ready till 4.30pm. We are fortunate that we live about 20 mins from hospital. One thing I will say is check the drugs yourself before you leave. Frank is just finishing 6th cycle and the drugs were never right. For…[Read more]

Hi Polly

Well you are getting there,do not mention the pharmacy:-S :'-( >:-(,this is the one thing you will have to look forward to at the start of each cycle,in the hospital we went to they just could not get there act together,I can honestly say the drugs came up to the unit on time only once,and they would not even let me collect them,its…[Read more]

Hello,Dai, thank you for the information, you went through the wars. . Frank has been on Clexane for the past 6 months. He is still,sleeping do not sure how he is now but yesterday the swelling in both legs had come down a bit. When we went to the Unit on Friday they seemed more interested in his low temperature. Saying that they did give him a…[Read more]

Well put Dai

I think you do go through a time when you want to scream at the world,but you do get past that,and just think we will make the best of the time we have.

Mentally over the last 2 years I have mourned and buried Slim,looking back on it,I think it was just a way of preparing myself when he was very ill.We have talked about it and…[Read more]

Hi Nettie I was asking Tom the same thing. Hope all is ok with him

Love Jean x

Hi Mary

Frank takes the chemo every Monday. He feels off all day Monday but by late Tuesday he is feeling better. It is the Dex that he suffers from. The dose was cut in half but it still takes it out of him. When he's on the Dex he doesn't leave the house for about a week – the chemo – about 36 hours. As you know everyone rects differently.…[Read more]

Vicki I was just thinking about you and Colin this morning. Hope all goes well. Best to Colin. Keep us informed when you can. Hope Frank will be having his soon – 😉 everything crossed
Love Jean xx