Hi Kerry

There are books you can get to tell you all about MM if you ask Ellen the nurse I am sure she will send you some,plus what ever hospital,Melvin goes to should have given you some.

I asked and was told they do not do staging any more,which was completely different from what the books said,when we went to Kings in London,I was told…[Read more]

Hi Kerry

I have just found your original posting,full of so much detail,it does explain why you feel so frustrated and angry,I can only say I am sorry I missed it completely,like so many others.

After reading this,I think you should sit down with your consultant,and ask a few questions,the compression of the spine is not good,I do not know…[Read more]

Hi Sarah
They will not use radiotherapy on your spine unless you have compression of the spine and cannot bear the pain,chemo will do the job just as well.

Just concentrate on your tablet regime,it helps to do a board with the days and times you have to take them,as it is easy to forget what day you are on,some hospitals provide a chart worth…[Read more]

Kerry just let it out ot must be so hard for you to see Melvin suffer so much and the children must be suffering to not knowing what will happen to their belooved dad you sound a strong person so i am sure you will get through this
Love AND A (((HUG))
jO

Hi Andy
It was good to catch up again, I thought you both looked well bronzed after the holidays, it's a shame they go so quickly. Hope the results pick up again soon, you'll feel so much better then.
Love Helen

Hi Wendy
Yep they are all different, today they were quite excited at the hospital over my whooping cough result:-/ apparently my immune system is working overtime on it, in a good way, and there were the right sort of antibodies in large numbers….. That's supposed to be the silver lining then! Anyway it was good enough to go back on the…[Read more]

Dear Kerry
You just keep shouting girl, 🙁 it won't take the pain away but you might feel better for it. I still feel like shouting, crying and swearing and I'm in a much better place than most at the minute. You should read Mins lovely post yesterday, it doesn't change anything but puts into words some of the heartache we all experience. Our…[Read more]

Hi Chris

All sounds good,ask your wife to bring your favourite mug in,it helps with the drinking,rather than have hospital mugs.

It all takes a few days to kick in,do not worry,nurses have seen it all before,you should be able to have a walk round when it is quiet.You will not see them much as they keep away only do what is needed,because of…[Read more]

Hi Kerry

I think Tom has summed it up,you are just feeling what we have all felt at one time or another,you will work your way through this,but find some space just for yourself,instead of being a task to walk the dog,make it a pleasure,your own space.
The only time you have to worry is when you are bawling at strangers,or crying in front of…[Read more]

Kerry Frank would not go to the counsellor. He won't go to Info days – just wants to know what his consultant tells him. It is good that Melvin will go and talk to someone. I think it would do frank good but when I bring it up it causes a row. So I don't talk about it. I had to go back to the counsellor about 18 months ago as things were getting…[Read more]

Hi Kerry

I am also a carer (how I hate that word) to my husband Frank and I know exactly where you are coming from. Please, you are not being selfish and do not beat yourself up. Myeloma causes an enormous upheaval in you and your family's life. I have had 6 years to try to get my head round it and believe me I'm still not there. It's the first…[Read more]

Hi Andy

glad your readings are a bit better hopefully you will find a match so you will be able to go ahead with your SCT
kEEP WELL
Love Jo

Hi Mary
This thread is getting so long,it will be a record soon,IF you sign in and go to the section you want example General or Carers.Scroll right down to the bottom and you can start another discussion.

Mary Slim had a good few infections you will get use to it,first sign of low blood pressure or temp or just not very well,ring the…[Read more]

Hi Ali

Tell your mum not to rub the site after injection,this is what causes the bruising,try not to touch it,hold the tummy firm,and make sure ,to use alternative sides.

Slim has very little flesh,but never had bruising only the flesh getting a bit hard.

Polly I know it,s hard,I make a better carer than patient,I know all the theory but…[Read more]

Welcome to the site Polly. My husband is on his 6th cycle of CDT. He injects Clexane every morning. At first it was a bit of a hassle for him but now it's 'old hat'. I hope things go good for you. Do keep in touch to Let us know how you are getting on

Jean

Hi Polly
Well my advice is to go on the trials,you will be randomised for CDT or CDR first one is standed treatment second one is a new version,both available as first treatments.It is the Velcade which is second line treatment that is important,Velcade at the moment is second line treatment that is still under trials,so could be with drawn,but…[Read more]

Hi Chris

Just want to wish you all the luck in the world for tomorrow, will be thinking of you. You will need the rest after the rest after the weekend you've had!! Good luck and the best of wishes

Love Jean x

Hi Helen
It's the dam Dex that is causing the most problems. He is ok when he takes it but when he stops he's not on the same planet as the rest of us. His Protein is still at 2 and this is supposed to be the last cycle. He said if its necessary he will continue with it. That really surprised me. Am phoning the myeloma nurse on Wednesday. She…[Read more]

Thanks Jean
Another nice new picture too, how is Frank doing with the chemo, ok still I hope?
Love Helen

Hi Vikki

Have you got a new date for the SCT. hope you are both bearing up. Love the photo

Helen glad to hear the whooping cough is getting quieter. I remember one of my boys had it and it was frightening listening to it. Keep getting better
Love Jean xx