Hi Mavis Megan Joanne and Jean

Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.

Jean I think Slim would be the same about going,I think they…[Read more]

Hi Tina
Well I have to say Slim never found the energy to get dressed until near the end,and lots of clothes just got thrown away,you will not expect them to be taken home.

Take things in that are around you at home,like your favourite mug,I would also take anything,that you like to drink in,as this is so important,as food and drink do not…[Read more]

Hi Joanne
Sorry you Dad is having a rough time of it,at least they found out what it was,and he is on his way to improving,just forget about the Velcade for a few weeks,just work on getting your dad in better shape and in the frame of mind to start Velcade,because that will be the last thing he wants to do.

Slim had pneumonia and was 21 days…[Read more]

Hi Eve

Yes going in Saturday to info day – needless to say Frank not going. Off to'hospital tomorrow, consultant wanted to,seem him (2 weeks since last visit) because of infection he had in bladder she though caused by chemo drug – so she gave him another one to take with the chemo to help. Had no infection but side affects not good. I was so…[Read more]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then…[Read more]

Dear Eve and Slim

So glad to hear your very good news. Enjoy all you trips!!! (Our scrabble is still on!!!!!!!)
Love Jean xx

Hi Gill

May I say you should be very proud of your self,because you not only gave Stephen a good send off,but you did it in style,

I have enjoyed reading your post,I did not cry but smiled and laughed,I can only say,it was like hearing you talking about Slim,even to Rod Stewart. If there is another life,you can bet he will be looking down on…[Read more]

Hi Emma,
Great blog – I just had a look! I recognise a lot of what you're saying. I'm 33, also on the PADIMAC trial (as is Alex who also just said hi), also a civil servant, even have a May birthday 🙂
Hope your treatment goes well. I started in June and have finished the chemo bit, having the stem cell harvest quite soon. Happy to answer any…[Read more]

Dear Gill

By no means was your post waffle. I read it a few time with tears on my face. I had followed your and Stephen 's journey for some time. I loved your trips to France and your wee dogs. Stephens farewell sounded so good, although sad, it was a celebration of his life and in a contradiction of terms -happy. I would love to have seen the…[Read more]

Hi Tina
Well that is good news,it means by Christmas you will be home and recovering,have to get your christmas presents before you go in.

Slim was sorry he did not take a mug for tea in with him,so if you have a favourite,I would take it in.It will be over in no time,ask any questions you want about the SCT more advice you get helps you to…[Read more]

Hi Tina

That is brilliant news. I'm sure you will look great in your wig. Best of luck
Love Jean x

Hi Mary

Well everyone is saying the same you will get over this hurdle,as for felting the garden shedddddddddddd,he is going to have to slow down a bit.:-P

Mary I never take pills,but at one stage I found my self tearing a piece of a complete stranger,so that little white pill keeps my emotions under control,nothing worst than crying or…[Read more]

Hi Mary i'm so sorry that Charlie is having such a terrible time and wish him a a quick recovery. I used to say "the light at the end of the tunnel is another blo**y train coming. But it's not its a light. Come on rant, rave and scream if you want , most of us have been there. As Vicki says take care if yourself

My best to you both
Love Jean…

Hi David
IF you can get a PET scan out of them,it will show any form of Cancer outside of the bones,but they cost a lot of money.
I do not know how they will decide if Slims is coming back as they have told us only way is BMB.
Have another holiday ,then you might forget about the 3 months again.Eve.
Dai is very quiet anybody know if he is OK?????

Hi Mary

Sorry to hear about Stan,Slim was about 4 cycles on CDT,when he was rushed into hospital with septic pneumonia ,9days ITU 22 all together in hospital a weeks rest then back to next cycle tough but doable.Lot of damage to lungs holes and mass blood clots,only to be told at end of 6 cycle it had not worked and his condition was worse,then…[Read more]

hello Ann

I had swollen ankles and got really numb toes while havig CDT I think it goes with the territory toes are better now but still a bit numb on the two outer toes on each foot hope all goes well for his SCT
love Jo

good news David

heres to the next three months my Para have been 8 since last sept all other bloods ok so no panic yet
Keep well
Love Jo

Nicola Sorry about that txt – this predictive text can be a curse. After I re read it I wondered how you could understand it!!! Frank at last is feeling good. He even made breakfast this morning. Takes the chemo on Monday and he feels bad for about 18 hours. He was taking them in the morning but changed to take them at night so he could sleep…[Read more]