[bandityogaParticipant]

Thanks to all for your good wishes. Ian walked a little more with the zimmer yesterday so he is feeling better about himself and getting home.

I am going to enjoy my few days in Nice and then retire. Don't think I'll miss the alarm going off at 06.45

Love Maureen x

[bandityogaParticipant]

Hi Tom

Just read the report and it is great news. Hopefully they will find a cure soon.

Nice to know you are doing well.

Maureen

[bandityogaParticipant]

Hi Mari

I am saddened that Stephen has passed away but at least it was quick and peaceful. You will miss him terribly and I hope that you will find comfort in the good memories you have of him.

Love Maureen x

[bandityogaParticipant]

Hi Helen

I would have loved to have seen The Rolling Stones as I saw the film and they are still full of energy especially Mick Jagger. You look like you had a good time.

Nice to see your light chains come down so drastically and hope you continue to do well. Ian's light chains are now 271 but not concerned yet as all other bloods, kidneys etc are good. Getting out of hospital soon.

I am off to Nice next week for a few days with my daughter. I am really looking forward to having a break.

Enjoy to trip to the Borders.

Maureen x

[bandityogaParticipant]

Make the most of every day.

Maureen x

[bandityogaParticipant]

Thanks Vicki & Colin

it has been along time and I can't wait to have Ian home. He will get physio 3 times a week and I am going to ask if he can use the gym as an ouptpatient in FVRH. We also have a hydrapool near us so I hope he will be able to use it in the near future.

Hope you ar bot well.

Maureen x

[bandityogaParticipant]

Hi Mavis

Ian thinks he should stay in hospital until hethe doctor thinks he will not get any better but we have a meeting on Monday 19 August for a discharge date and I hope they talk him round. I think he has been in hospital too long and is a bit frightened he might not get enough support.

I am exhausted travelling to hospital every day and will hae to cut back if he decides to stay in. He has been told he will get physio at home three times a week and we have a hydrapool near us. He has to transfer into a car next to get home but I don't see that as a problem as he can walk a little with the zimmer and get up on a turner.

I'll let you know what happens after Monday.

Maureen x

[bandityogaParticipant]

Mari

Ian's had compression of the spine at C6/7 and T1/2. He had an operation to remove the tumour and 2 pins were put in his back to support his spine. I don't know why he wasn't given plasmacytoma. One of the pins had to be taken out as the wound wasn't healing fast enough for him to restart chemo. He has had a bad bed sore which has delayed physio but he is making good progress now and should be out of hospital soon and physio have said he should walk again.

I hope Steve is doing better and they find a cure for this awful disease.

Love Maureen x

[bandityogaParticipant]

Thanks Mari

Did Steve have a compressed spine and how long did it take him to walk after his operation. I do think miracles can happen and feel positive about Ian's mobility.

Sorry Steve is going through a bad time but do not give up hope.

Love

Maureen x

[bandityogaParticipant]

Dai

I keep telling Ian I need him home to do the gardening and ironing lol. Seriously it will be so good to have time in the house together and I'm not rushing about looking at the clock all the time before visiting hospital.

Hope you are progressing well.

Maureen

[bandityogaParticipant]

Hi John

sorry to hear about June. My husband had sepsis and was out of it for about a week but he sruvived and has come a long way since being diagnosed. Hopefully he will be mobile and come home from hospital soon. He has been in hospital for 10 months as he had to have an op for compression of the spine. Everything is scary at the start but we learn to adjust. I just keep praying and find comfort in my faith.

Hope June recovers soon.

Maureen

[bandityogaParticipant]

Hi Etta

How was your mobility affected by the myeloma? Ian is not getting SCT because he is not mobile. Her will get physio at home 3 days per week so hopefully it won't be long until he is walking.

Ian doesn't post but perhaps he will when he gets home.

Thanks for your kind words.

Maureen

[bandityogaParticipant]

You too Eve. Hope you are both well.

Maureen x

[bandityogaParticipant]

Hi Tony

Got Rob's email. Looks like he had a good time and raised a lot of money for myeloma. Is he a little sore?

Maureen

[bandityogaParticipant]

Sara phoning me today

Maureen

[Author]

Posts