[bandityogaParticipant]

Hi Eve

I have been thinking of you and hope that Slim got good results from the consultant today.

I too have hayfever, no bluebells here but lots of daffodils.

It's our anniversary on 30th May, 5 years as it's my second marriage but we have known each other for 10 years. Ian is getting out of hospital to go to a restaurant for lunch. It will do us both good.

Keep me posted.

Love Maureen x

[bandityogaParticipant]

Hi Eve

Ian is cycling half a mile a day on the foot pedals and also lifting weights so building up the muscles. It is very hot in the ward just now and he is only allowed 1 hour in the wheelchair or I would take him outside.

Got gardener sorted out, now thinking of getting the ironing done.

Hope Slim's BMB will show a good result.

Maureen x

[bandityogaParticipant]

Hi Scott

Sorry to hear your SCT didn't work. Go to spain and enjoy your holiday. What part of Spain are you going to?

Maureen

[bandityogaParticipant]

Hi Eve

Packs arrived and I will take the to the local gp's and hope it can save someone in the future from late diagnosis.

Ian is getting stronger but still only getting out of bed for 1 hour to let the bed sore heal. He is getting to the gym and cycled for half a mile so it seems promising. His mental state is so much better. I am going to ask around for someone to cut the grass as I can't do it all.

Hope Slim get good results on 24 May. I have asked for a print out every time Ian gets his bloods taken.

Maureen x

[bandityogaParticipant]

Tom

I would complain to the consultant you saw privatley and ask why you didn't get an mri scan.

Maureen

[bandityogaParticipant]

Eve

I phoned Ellen and the packs are on their way. I will distribute them to all the local gp surgeries.

Hope Slim is keeping well and gett appropriate treatment.

Maureen x

[bandityogaParticipant]

David

Can you email me the article for gp's to look out for myeloma.

email address maureen_cerdan@yahoo.co.uk

Thanks

Maureen

[bandityogaParticipant]

Hi all

We all have to complain about poor gp's and doctors. Ian's surgeon said he would back us up if we need him. He also said that Ian had classic signs of myeloma and the gp and a good physio should have pciked this up.

No SCT planned for Ian. Got blood results today and light chains now 130 but consultant said all other bloods etc were good and he will not get any chemo hopefully for a few years.

Love Maureen x

[bandityogaParticipant]

Hi Eve, Tom & Tom

Ian first went to his gp in April suffering from back pain and tingling down both arms with weak hands. Sent away with pain killers. Went back several times to gp as back pain increased in the cervical thorasic area and he had a lump in his back. He was sent to see a specialist at our local hospital. Specialist advised he was a bit stiff and to go for physio. No x ray no mri nor a follow up appointment. Ian had physio for 13 weeks which actually made the tumour in his back grow and caused the compression. He went back to his gp to be referred privatley as he wanted an mri scan. NHS do not want to spend money. Saw consultant privately, who also works at our local hospital and he said he would have sent him for an mri scan if he had seen him in June and he would have strong words with his colleage.

Ian had to have surgery for compression of the spine which has left him partially paralysed. The surgeon at Edinburgh Western General said we should put in a complaint as Ian had clasic signs of myeloma and there was a drive on in Scotland for doctors to look for the signs of myeloma.

I have complained to the hospital board against the specialist and also our gp and got a phone call and letter from a very nice woman who is looking into the complaint and wants answers from all concerned.

Maureen

[bandityogaParticipant]

Peter

My email address is maureen_cerdan@yahoo.co.uk.

Going to ask consultant why Ian will get no maintenance so I would appreciate if you could email me the article.

Hope you are still keeping well.

Thanks

Maureen

[bandityogaParticipant]

Peter

Can you email me the report on maintenance?

Maureen

[bandityogaParticipant]

Hi Eve

Might take a leaf out of your book as am running around trying to fit everything in. Every time I feel like baking or not using the dishwasher, I can hear you say make it easy on yourself. Still working 2 half days and one full day, running to the hospital and taking in meals for Ian. His bed sore is healing and he is now allowed up in a wheelchair for 1 hour a day. He is also in the gym doing some weights and excercising. I keep hoping that he will be home soon. Back to larbert on 13 May to find out if the myeloma is stable. Fingers crossed.

Sorry to hear Slim is having a hard time of it. Ian is on no maintenance drug but I am going to follow this up as we still have private medical insurance.

Hope life gets better for you both.

Love Maureen x

[bandityogaParticipant]

Hi David

Hope you are feeling better and the pain has subsided. Enjpy your trip to London.

Consultant advised that Ian wouldn't be going to my daughter's wedding in London on 6 July. I haven't told him yet as I am still hopefull. He is still stuck in bed with this bed sore.

Maureen

[bandityogaParticipant]

Hi Helen

Sorry you have had a relapse but try to stay positive. I will put up a prayer for you.

Love Maureen x

[bandityogaParticipant]

Hi Dai

Ian's treatment stopped to allow his bed sore to heal as it is quite deep and could have gone into his bones. It is looking a bit better but still have a few weeks before it has healed. He is not allowed out of bed and is on a 30% tilt to take the pressure of the wound, so we cannot go forward until the bed sore is healed.

No SCT at the moment until we see how mobile he can be.

Hope you are well and have got the myeloma under control.

Maureen

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