[bandityogaParticipant]

Thanks Vicki and Colin

I am now nagging Ian to do more Physio so he can get back on his feet and then home.

Maureen x

[bandityogaParticipant]

Hi you have given us hope for a future. Hope your house move goes well.

Maureen

[bandityogaParticipant]

Hi Eva

Sorry to hear that Slim's myeloma has returned. I hope they will find a cure for it soon as lots of research is being done.

I will have to cut down on my visits to the hospital to once a day on some of the days as it is very exhausting but Ian doesn't understand.

I'll say a prayer for Slim

Maureen x

[bandityogaParticipant]

Well done Peter, you must feel a great relief. Have that glass of champagne when your taste buds get back to normal. You deserve it.

Maureen

[bandityogaParticipant]

Hi Eva

Ian's mum and dad who are in their 80's visit twice a week in the afternoon and some of his workmates usually go in once a week. It gives me a break from afternoon vists and I have more energy to visit at night. My sisters ar eno help. One hasn't spoken to me in 8 years and the other only sends text messages. I have good friends who support me.

I probably do too much housework and should relax more.

Maureen x

[bandityogaParticipant]

Hi Tom

Ian had as good a birthday as possible. I baked him a cake and bought him the series of the wire. He got nice face creams and lots of cards, including one from his work. His nickname was soapy as in oor wullie as he had curly hair and they designed a card with his name and a monkey on the front. He did laugh.

Thanks for your advice.

Maureen

[bandityogaParticipant]

Hi Eva

Ian's birthday went as well as can be expected. I baked him a cake and bought him the series of the wire on dvd. He also got nice face creams and lots of cards.

We had good news that his light chains are now down to 147 and paraprotiens are now 5 but his myeloma his mostly light chains.

He used to like playing games but has lost interest and also the hospital has no wifi but he can get 3g on his samsung tablet.

I got a letter to attend a stress class in June. i declined and went back to doctor but he says it will take months to get a one to one councellor. I will ask to be referred to ian's councellor and hopefully that won't be too long. I get so tired sometimes and feel I am going to crack up.

Hope you are keeping well.

Maureen

[bandityogaParticipant]

Hi Dai

Hope you have managed to escape the lurgy. I have 2 small grandchildren and I stay away when they have the sniffles as I seem to pick up everything from them, but I love them to bits.

Maureen

[bandityogaParticipant]

Thanks Tom

Hope we get good news about Ian's light chains next week. Bed sore now starting to heal.

Maureen

[bandityogaParticipant]

Thanks Helen

Ian is cranky when he is on the steroids and I am exhausted when I visit twice a day so I'm afraid I haven't got much patience. Trying to get Ian to use his tablet and take his mind of the things that go wrong in hospital. Trying to motivate him more.

Hope we get good news about his light chains next week.

Bed sore now starting to heal.

Maureen x

[bandityogaParticipant]

wishing you well. Hope Pete recovers soon

Maureen x

[bandityogaParticipant]

Your story has given us hope. My husband is still in rehabilitation after 4 months in hospital for spinal operations as he has partial paralysis. He is has just finished cycle 2 on CTD and we get his results tomorrow.

Fingers crossed the treatment is working and we can get him home soon.

Maureen

[bandityogaParticipant]

Hi Sue

Sorry isn't enough but you will also feel releived that Michael isn't suffering any more. I know you will miss him terribly but also have happy memories of your time together.

I do wish they would find a cure for this disease.

For now take comfort in your family and friends and when you are ready live life to the full.

Love Maureen x

[bandityogaParticipant]

Hi Helen

It is a big shock to discover that you have myeloma but as you say Ian can make progress. I try to get him to think of the positive things that have happened but it must be hard for him to lie in bed every day. He is on day 12 today a dex day so he will be stronger to do more physio.

I find I need a release and try to get some of his friends and family to visit in the afternoon and I visit at night. I am really tired trying to do 2 visits a day.

Hope you are in remmission for a long time and work is not too much for you. You have to get back to some normality and I also went back to work for 2 half days and 1 full day otherwise I sit about and don't get anything done.

Not too confident about Ian's care in the NHS. Doctor has now said Ian can get up for 1 hour and sit in his special chair so that cheered him up.

Take care

Maureen

[bandityogaParticipant]

Hi Eve

Thanks for your advice. I have started massaging his pressure points but as he is not in a room on his own I can only do some of them but Ian does like it. Doctor has decided that he can get out of bed and sit on a special chair for one hour per day.

Not very impressed with NHS as Ian is always worried about his care and the inconsistancy. Yesterday he was lying on his back as the padding to tilt him 30% was not put in place properly. Staff nurse who put in the padding tried to make light of it andsaid Ian must have moved, but he can't move. Really worrying sometimes.

Maureen

[Author]

Posts