Myeloma Forum | BasingUnit | Activity https://forum.myeloma.org.uk/members/basingunit/activity/ Activity feed for BasingUnit. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 587c6d3afe48fd7d68567264c38bfa04 BasingUnit replied to the topic CVD in the forum Side-effects http://www.myeloma.org.uk/forums/topic/cvd/#post-119982 Tue, 16 Dec 2014 07:10:32 +0000 I’ve just finished my 7th cycle out of 8 of CVD, sleeping is a big problem so my consultant lets me spread the Dex intake over 2 mornings which seems to help. It is difficult to determine which of the drugs are causing the  other side effects such as disorientation, forgetfulness, tiredness, weight gain and visual disturbances, to name but a f…[Read more]

]]> 1fcd9553ee096af084789af1aebb8ecd BasingUnit replied to the topic Dex and Weight Gain in the forum Side-effects http://www.myeloma.org.uk/forums/topic/dex-and-weight-gain/#post-119981 Tue, 16 Dec 2014 06:48:58 +0000 I found when taking Dex as part of CDT treatment for 8 months last year I put on about 20 lbs and gained 6 inches around the waist. Fortunately all these gains all went within 8-10 weeks of stopping treatment so don’t worry, it will go.

After 9 months plateau I’m have now been on Dex again with Velcade and Cyclophosphamide  and have gained al…[Read more]

]]> 86de96b0ea2ac3b3343d6fbc0c1a1260 BasingUnit replied to the topic All food tastes horrible in the forum Side-effects http://www.myeloma.org.uk/forums/topic/all-food-tastes-horrible/#post-115854 Mon, 09 Jun 2014 03:45:02 +0100 I’m glad to hear that you are able to enjoy Guinness again, there is light at the end of the tunnel.

]]> 675cb5987ad068f03deeb96f90ae0e8e BasingUnit replied to the topic Eye floaters affecting vision in the forum Newcomers http://www.myeloma.org.uk/forums/topic/eye-floaters-affecting-vision/#post-115428 Tue, 27 May 2014 20:14:20 +0100 I had floaters in one eye for about 5 months whilst on CDT but then cleared up on it’s own. It was mostly  when looking down, it did play havoc with my golf for a while.

]]> 095ab9b36be0fad317f7bfc6cc884039 BasingUnit replied to the topic All food tastes horrible in the forum Side-effects http://www.myeloma.org.uk/forums/topic/all-food-tastes-horrible/#post-115427 Tue, 27 May 2014 19:52:13 +0100 Hi Mavis,

Thanks for that, I remember the only foods I were able to enjoy were pickled gherkins, I think the vinegar and saltiness helped the same as your salt and vinegar munchies.  Ice cream was ok as well!

Take care

Richard

]]> 72624e19339b3aafa7ee95e0d79f25b5 BasingUnit replied to the topic All food tastes horrible in the forum Side-effects http://www.myeloma.org.uk/forums/topic/all-food-tastes-horrible/#post-115161 Fri, 16 May 2014 14:05:43 +0100 Thanks jcr, I have just bought some pineapple and will give it a try.  I’m told frozen grapes might help as well.

On another subject, the Dex has definitely made my arthritic fingers much less painful, every cloud has a silver lining.

]]> b2c7d332671268943a030558d0fe8bce BasingUnit started the topic All food tastes horrible in the forum Side-effects http://www.myeloma.org.uk/forums/topic/all-food-tastes-horrible/ Tue, 13 May 2014 09:22:07 +0100 I was diagnosed with myeloma 18 months ago and all the time I was on CDT all food tasted very bitter, even chocolate!! Once the treatment had stopped things slowly started to improve and after 6 months was left with a metallic taste. Three months further on I’m now on Velcade and Dexamethasone and everything tastes really nasty again, has anyone…[Read more]

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