Hi All

Just coming to the end of my first week of treatment, the first 4 days were okay, day 5 had pamidronate on drip at hospital and that night was running a high temperature all night and almost called the hospital. Next day the temperature was down but the first day off the dex hit me for six and I felt very fatigued and was unable to…[Read more]

Hi Pennie & Andy

Your journey quite closely mirrors my own, diagnosed 12 years ago, CVAMP and SCT, 7 years remission then Velcade and 2nd SCT and 3 years remission.
I also will be starting Revlimid & Dex next week and the future seems very uncertain and scary. However I am only 53 and my wife is 42.
We are also endeavoring to change our…[Read more]

Hi
I had this pretty bad after Velcade and I believe it is one of the side effects. It does get better but I still feel it from time to time but not so extreme.
I believe I was prescribed Amitriptyline for this condition perhaps you could ask your Doctor for something to help.

John

Hi Lorraine

I am sure your prof knows what he is doing so don't let things get to you too much, I know that no matter how upbeat one is it is sometimes hard to put everything in the right boxes and it is good to offload, I hope you feel better now.
I myself have been living with this disease for 10 years now and have had 2 SCTs, the last one…[Read more]