batterboy58 started the topic Fundraising and Awareness Day. in the forum General 13 years ago
First of all apologies for having to fragment my post as the system won't accept it all in one go.
Fundraising and Awareness Day
Even though I am on treatment at the moment and feeling pretty rubbish, I have an overwhelming desire to do something to give something back. Sometimes we are all so busy working to make a living and there is…[Read more]
batterboy58 replied to the topic Revlimid in the forum Treatment 13 years ago
Hi All
Just coming to the end of my first week of treatment, the first 4 days were okay, day 5 had pamidronate on drip at hospital and that night was running a high temperature all night and almost called the hospital. Next day the temperature was down but the first day off the dex hit me for six and I felt very fatigued and was unable to…[Read more]
batterboy58 replied to the topic Revlimid in the forum Treatment 13 years ago
Hi Pennie & Andy
Your journey quite closely mirrors my own, diagnosed 12 years ago, CVAMP and SCT, 7 years remission then Velcade and 2nd SCT and 3 years remission.
I also will be starting Revlimid & Dex next week and the future seems very uncertain and scary. However I am only 53 and my wife is 42.
We are also endeavoring to change our…[Read more]
batterboy58 replied to the topic restless feet in the forum Side-effects 13 years ago
Hi
I had this pretty bad after Velcade and I believe it is one of the side effects. It does get better but I still feel it from time to time but not so extreme.
I believe I was prescribed Amitriptyline for this condition perhaps you could ask your Doctor for something to help.
John
batterboy58 replied to the topic Need to offload in the forum General 14 years ago
Hi Lorraine
I am sure your prof knows what he is doing so don't let things get to you too much, I know that no matter how upbeat one is it is sometimes hard to put everything in the right boxes and it is good to offload, I hope you feel better now.
I myself have been living with this disease for 10 years now and have had 2 SCTs, the last one…[Read more]