Myeloma Forum | JohnBanks | Activity https://forum.myeloma.org.uk/members/batterboy58/activity/ Activity feed for JohnBanks. Thu, 30 Apr 2026 04:10:16 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 fca4947e72839d92f1d10211130c7608 JohnBanks replied to the topic "Is this the best news in years" in the forum General http://www.myeloma.org.uk/forums/topic/is-this-the-best-news-in-years#post-93372 Sat, 25 Aug 2012 09:52:12 +0100 Interesting link here from 2010

http://trialx.com/curetalk/2010/12/stem-cell-and-umblical-cord-transplantation-as-treatments-for-multiple-myeloma/

]]> 53cbd659055b657cd10def3b01cf8aa5 JohnBanks replied to the topic "Is this the best news in years" in the forum General http://www.myeloma.org.uk/forums/topic/is-this-the-best-news-in-years#post-93371 Fri, 24 Aug 2012 18:15:08 +0100 Hi Michele

I've never had the pity, I have had "Oh you are brave" to which I say "Theres no brave about it I am not brave I have no choice because as I understand it, if you don't take the medicine you will die pretty quickly."

Even so I think I would take the pity to help raise the awareness but that does depend a lot on what state I was…[Read more]

]]> 38ff2c2466dcb7cb8402142e01f70498 JohnBanks replied to the topic "Is this the best news in years" in the forum General http://www.myeloma.org.uk/forums/topic/is-this-the-best-news-in-years#post-93369 Fri, 24 Aug 2012 15:10:12 +0100 The thing about this is that if it is do able it will require huge funding and support and therefore even more reason for us all to do what we can to raise the profile of our disease to the same or better status and funding than Leukaemia in order that we can help to drive this and other treatments and even potential cures.
Our biggest enemy as I…[Read more]

]]> 91b783440f1b6da762c4cf86c618203e JohnBanks replied to the topic "Is this the best news in years" in the forum General http://www.myeloma.org.uk/forums/topic/is-this-the-best-news-in-years#post-93366 Mon, 20 Aug 2012 20:09:10 +0100 Try this one sorry.
John

http://www.facebook.com/pages/The-Clock-Fish-Chip-Restaurant/169343793123093?ref=hl

]]> d2caefa2e9b2af3cfb14bc1d5c75f8b3 JohnBanks replied to the topic "Is this the best news in years" in the forum General http://www.myeloma.org.uk/forums/topic/is-this-the-best-news-in-years#post-93364 Mon, 20 Aug 2012 19:14:42 +0100 Hi

I have done a little research on this and it could be a while away because as with everything these things take time, especially when it comes to the vested interests of the giant pharmaceutical companies,

A lot of what I have read leads me to see that we are talking about placenta's here which at present are routinely disposed of after…[Read more]

]]> 36d5115e669ebaade47567eca7d971b8 JohnBanks started the topic "Is this the best news in years". in the forum General http://www.myeloma.org.uk/forums/topic/is-this-the-best-news-in-years Mon, 20 Aug 2012 06:33:43 +0100 Hi everyone

Saw this in yesterday Sunday Express and got really excited, need to check out more about how and why it works but it looks good.

http://www.sundayexpress.co.uk/posts/view/340603/Stem-cells-save-cancer-victims

John

]]> 98abddf6daed1eb229e4d07e1f10ec32 JohnBanks started the topic CALLING DAI!. in the forum General http://www.myeloma.org.uk/forums/topic/calling-dai Sat, 18 Aug 2012 21:38:15 +0100 Hi Dai

I have been trying to get in touch with you urgently, hope you are okay, can you give me a call 07752 399212

Regards John

]]> 3804cb7f9dc60b62c7eadaff5a2776d0 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day/page/2/#post-93328 Fri, 17 Aug 2012 10:31:04 +0100 Hi Dai

I have sent you a message on Facebook and need to speak to you asap to confirm your offer to play at our event.
Please check your Facebook message and gice me a call.

Regards John

]]> c117f5c6a0619a59bfd7b8db503b24bc JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day/page/2/#post-93327 Sun, 12 Aug 2012 17:24:27 +0100 I can now confirm that Alan More " The UKs No1 ELVIS Tribute Act http://www.elvis.uk.com/ will be with us all day and will be performing his full show in the Steakhouse Bar Mablethorpe next door to us in the evening. The Steakhouse have pledged 40% of their taking to MyelomaUK also.
John

]]> bafabc8c38ab278e9410492e8c6fe22c JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day/page/2/#post-93324 Fri, 10 Aug 2012 21:12:28 +0100 Hi Tom
Yes we all have MM t shirts lined up for the day.

]]> 70b7792aaf49f2f30fd6f3433d1a4a5c JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day/page/2/#post-93325 Fri, 10 Aug 2012 20:41:50 +0100 Hi Dai

That would be really great, we have such a lot planned and I want to make a programme of events once we have everything in order and you would be most welcome to come along and play. I used to play guitar myself in a duo but just for fun nowadays. Bit rusty really.

I will keep in touch
Regards John

]]> ecf769d24a50302f942f5ba76283e9b8 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93321 Fri, 10 Aug 2012 09:08:12 +0100 http://www.facebook.com/pages/The-Clock-Fish-Chip-Restaurant/169343793123093?ref=hl

Look forward to seeing you Tom

John

]]> 954c58130431b21da8a53c8bc5547a24 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93318 Wed, 08 Aug 2012 18:42:48 +0100 Hi Tom
Thank You
Hey remember the song, "Theres a guy down the chip shop thinks hes Elvis"
Well I think I have managed to secure an Elvis to spend the day with us entertaining the customers and performing a show in the evening.
Two of my staff are doing Tandem Skydives, My son is organising a sponsored night golf event with Glo Gear and the…[Read more]

]]> 177d3dfbe39260834bdc8199c15de797 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93316 Wed, 08 Aug 2012 09:39:46 +0100 I have also now set up a page at Just Giving where people can help sponsor our event and donate directly to Myeloma UK
http://www.justgiving.com/John-Banks0

Cheers John

]]> 2df5613122c59f6e6b75810cb8788c56 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93315 Tue, 07 Aug 2012 23:56:55 +0100 I have to say that I have been disappointed with my performance on Revlimid & Dex, because by contrast when I had the now primitive chemo CVAMP by slow infusion through a Hickman Line 11 years ago and there were side effects, I did manage to function largely and work and life was relatively normal except for some mild sickness and fatigue from…[Read more]

]]> ea6332803fe7e125b9312d20fff94e98 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93314 Tue, 07 Aug 2012 23:01:58 +0100 So all in all although I have had a pretty crappy few days on the Revlimid and Dex and haven?t been able to work as such I have been spending my time organising this and have made myself feel pretty good inside. I am really excited about it.
I will keep everyone informed of how things are going and how much we eventually raise and if any of you…[Read more]

]]> 4d3e2969a407d75fbb4c1d3e936973e9 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93313 Tue, 07 Aug 2012 23:01:25 +0100 Also we are hoping to secure the services of an entertainer for the day of some sort we are trying to come up with ideas for this and it is still a recently borne idea, maybe some sort of themed character or something (if anyone on here has any ideas then feel free to throw them into the pot).
All my staff have kindly volunteered to give their…[Read more]

]]> f14889c1a4d668a9ee9321eaf0d8b38b JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93312 Tue, 07 Aug 2012 23:00:54 +0100 Of course we also wish to give as big a cheque as possible to Myeloma at the end of it, so what began life as a spark of an idea a couple of days ago has now really taken off and is at an advanced planning stage with the help of Myeloma UK, our local press who have a team working on it already buzzing with ideas to make the day a success.
We will…[Read more]

]]> c609a21e5a010a37361b1cc98a29bab7 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93311 Tue, 07 Aug 2012 23:00:26 +0100 One of the things that always strikes me about Myeloma is how few people have even heard about it and yet it is I believe the second most common blood cancer, often confused by people I find with comments like Oh skin cancer to which I have to always go into long drawn out explanations of what Myeloma actually is. So part of my aim is to promote…[Read more]

]]> 12475a157ff32e050a52d747ab581ee3 JohnBanks replied to the topic Fundraising and Awareness Day in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day#post-93310 Tue, 07 Aug 2012 22:59:40 +0100 So what tools do I have at my disposal to carry out my plan, well although I have my business up for sale I still have it at the moment and it seems like a good vehicle to use to carry out my plan which is to hold a Myeloma Awareness and Fundraising day at my Fish & Chip Restaurant in Mablethorpe in Lincolnshire.
What I am planning is for Friday…[Read more]

]]> b59788293d9cfec368af0aea613174a7 JohnBanks started the topic Fundraising and Awareness Day. in the forum General http://www.myeloma.org.uk/forums/topic/fundraising-and-awareness-day Tue, 07 Aug 2012 22:59:06 +0100 First of all apologies for having to fragment my post as the system won't accept it all in one go.

Fundraising and Awareness Day

Even though I am on treatment at the moment and feeling pretty rubbish, I have an overwhelming desire to do something to give something back. Sometimes we are all so busy working to make a living and there is…[Read more]

]]> 2d6baf41896ab3ca0e2c53348b33b826 JohnBanks replied to the topic Revlimid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid1341948392/page/2/#post-99845 Thu, 02 Aug 2012 21:36:56 +0100 Hi All

Just coming to the end of my first week of treatment, the first 4 days were okay, day 5 had pamidronate on drip at hospital and that night was running a high temperature all night and almost called the hospital. Next day the temperature was down but the first day off the dex hit me for six and I felt very fatigued and was unable to…[Read more]

]]> bae5e27658a7cb1e236e36c053ae4bf8 JohnBanks replied to the topic Revlimid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlimid1341948392/page/2/#post-99842 Fri, 20 Jul 2012 00:19:41 +0100 Hi Pennie & Andy

Your journey quite closely mirrors my own, diagnosed 12 years ago, CVAMP and SCT, 7 years remission then Velcade and 2nd SCT and 3 years remission.
I also will be starting Revlimid & Dex next week and the future seems very uncertain and scary. However I am only 53 and my wife is 42.
We are also endeavoring to change our…[Read more]

]]> 85404e50315a7e562681a8a8b98f1b89 JohnBanks replied to the topic restless feet in the forum Side-effects http://www.myeloma.org.uk/forums/topic/restless-feet#post-104578 Sat, 30 Jun 2012 21:51:23 +0100 Hi
I had this pretty bad after Velcade and I believe it is one of the side effects. It does get better but I still feel it from time to time but not so extreme.
I believe I was prescribed Amitriptyline for this condition perhaps you could ask your Doctor for something to help.

John

]]> f9e758fa4459b045739a5023be74dc14 JohnBanks replied to the topic Need to offload in the forum General http://www.myeloma.org.uk/forums/topic/need-to-offload#post-90407 Fri, 13 May 2011 22:53:56 +0100 Hi Lorraine

I am sure your prof knows what he is doing so don't let things get to you too much, I know that no matter how upbeat one is it is sometimes hard to put everything in the right boxes and it is good to offload, I hope you feel better now.
I myself have been living with this disease for 10 years now and have had 2 SCTs, the last one…[Read more]

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