[becki29Participant]

We are all still disgusted in the way it’s been handled and I letter will be going to the practice manager once we are all over the shock.
Been told today that once his dexa scab as been done then the referral for haematologist will be done but to me this should already be getting done. It’s difficult not to look on sites because we have been left know the diagnosis and nothing else so wanted to get our head around it and not be left in the dark. Fingers crossed things start moving a little quicker now. X

[becki29Participant]

That’s great thank you. X

[becki29Participant]

Hi Robert,
He as had on going health issues which resulted in a hip replacement that got infected so had to be removed and 1 yr later a new one put back in but he could not shift the infection this was around 12 months ago. He as suffered ever since with pain in his back so he went to the gp and they sent him for xrays which showed fractures and lesions of the spine and crushed vertebrae. The doctor then did blood tests and Bence-Jones urine test which came back abnormal and the results online say something about a light chain, hope this helps. At the moment it’s like blind leading the blind. Been in touch with gp today and he wants to wait for the dexa scab then he will refer to the next set of specialists. X

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