[beefy1805Participant]

Hi Tom

I suppose I was being a bit of a drama-queen with the side effects as a couple of weeks of a sore throat is just like having a cold for a while!

Good luck with everything- it can be done if you trust the experts an d live a normal life (which does involve certain real ales and wine!).

Steve

[beefy1805Participant]

Thanks guys

Yes, 9 years is apparently exceptional. It would be nice if any MM suferers who have been in remission for more than the average 3-5 years could post their length on here and give the newly-diagnosed some uplift.

Thanks for taking the time to reply.

Steve
x

[beefy1805Participant]

Hi Eva
Thank you so much for your reply.
i am lucky in that I normally have no problem with anymedication I have been prescribed. The Revlimid ensures I get a good night's sleep!
My consultant took me off Dex as it gave me insomnia but no boost in energy unfortunately.
Anyway, I owe it to my fantastically supportive family to go through a short period of rubbish.
I am hoping that BUPA will fund this as they have been with the Revlimid (open-ended incidentally).
I am seeing my consultant in August when I will tell her I want to go ahead with the transplant – let's see if I get another 9 years!

Thanks again

Steve

[beefy1805Participant]

Hi Eve

Thank you so much for your advice.
I have decided to go for another transplant as the only ill-effects I had were while I was actually in Bart's. Once I was home I felt stronger every day.
I suppose I just needed a little reassuring!

Thanks again

Steve

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