StephenBurwood

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  • #103008

    beefy1805
    Participant

    Hi Tom

    I suppose I was being a bit of a drama-queen with the side effects as a couple of weeks of a sore throat is just like having a cold for a while!

    Good luck with everything- it can be done if you trust the experts an d live a normal life (which does involve certain real ales and wine!).

    Steve

    #103009

    beefy1805
    Participant

    Thanks guys

    Yes, 9 years is apparently exceptional. It would be nice if any MM suferers who have been in remission for more than the average 3-5 years could post their length on here and give the newly-diagnosed some uplift.

    Thanks for taking the time to reply.

    Steve
    x

    #103005

    beefy1805
    Participant

    Hi Eva
    Thank you so much for your reply.
    i am lucky in that I normally have no problem with anymedication I have been prescribed. The Revlimid ensures I get a good night's sleep!
    My consultant took me off Dex as it gave me insomnia but no boost in energy unfortunately.
    Anyway, I owe it to my fantastically supportive family to go through a short period of rubbish.
    I am hoping that BUPA will fund this as they have been with the Revlimid (open-ended incidentally).
    I am seeing my consultant in August when I will tell her I want to go ahead with the transplant – let's see if I get another 9 years!

    Thanks again

    Steve

    #103003

    beefy1805
    Participant

    Hi Eve

    Thank you so much for your advice.
    I have decided to go for another transplant as the only ill-effects I had were while I was actually in Bart's. Once I was home I felt stronger every day.
    I suppose I just needed a little reassuring!

    Thanks again

    Steve

Viewing 4 posts - 1 through 4 (of 4 total)