There is some great advice on here which I hope you are picking up on. MM is very scary but you can read some fantastic stories on here of people putting it behind them. The treatment can be rough and some of us get side effects (I have neuropathy in my feet which can be discomforting) but life does go on. The only reminder for me is…[Read more]

things do get better. I had the collapsed vertebrae that led to the diagnosis of MM and it was a shock. I had never heard of it and when I understood what I had I thought my life had ended. That was 24 July 2014 and I am still here. The treatment can be hard at times and I had the SCT this time last year which was hard as well but it’s…[Read more]

take the precautions recommended but to be honest get him back to normal as soon as you can. The odd germ won’t do any harm and will help the immune system do what it’s designed to do. Also get him out for fresh air and exercise. Good for the body but also the mind. Hospital for SCT was mind numbing and I was glad to get out and do normal…[Read more]

i had thalidomide and it caused me neuropathy which I still suffer from. However, I recently completed my first 18 holes on the golf course. There are meds for neuropathy so ask your consultant. The pins and needles and numb feet are still there but manageable.

Good luck.

for those going through SCT sometimes it’s better not to know! I was out after 19 days which I thought was good but well done to those out earlier. Day zero is transplant day and I was told day 10 I would be unwell. Close, it was day 9 and for the next 3 days I wanted to end it all! I honestly thought was all the effort worthwhile? Then I…[Read more]

And for for those that can’t find that energy for life, don’t beat yourselves up as that won’t help. Try and find it bit by bit. I was lucky to be offered free councilling at the hospital I was at (given the fees I’m sure it wasn’t free!) and this helped a bit but I realised after 3 sessions (I was entitled to 8) that I had…[Read more]

its hard to stay positive and focused when all we have been doing is this during the treatment. When the treatment stops and we are in remission, where do we go from there? I have wrestled with this and finally concluded this is as good as it gets so I may as well enjoy it whil it lasts and embrace life. I remember the times in hospital,…[Read more]

my consultant briefly talked about maintenance but we quickly decided against it. I am not on any trial (I wasn’t offered it) but like others here, I wanted to get off the drugs and try and lead a normal life. I had a SCT in February and was back to work by the beginning of April mice had the odd chest infection but otherwise ok. One of…[Read more]

I was diagnosed last year in July, had chemo from August onwards and had my transplant in Feb 2015. My focus was always on the next part of the procedure, such as the next chemo session. Once chemo was finished, the focus was on the SCT and then during this, it was all about returning to work, which I did at the beginning of April (quite…[Read more]

I am taking Pregrabalin for neuropathy and it does help with the symptoms. However, I have encountered severe itching in the last month which quite frankly is driving me crazy. My Dr’s don’t believe it is the Pregrabalin although one of the side effects listed is itching and a rash. I’ve found people on US forums who have complained of…[Read more]

I am in cycle 4 of my chemo treatment which has been going very well. My consultant is thinking of  moving onto phase 2 of my treatment involving harvesting my stem cells from my bone marrow, freezing them and then hitting me with heavy dose chemo before transplanting my cells back again. I am both excited and terrified by this. For those of…[Read more]