Hi Amanda

Thank you for the response. My 6th cycle of VCD was postponed on 25th July, due to the Velcade side effects. They started me on a new medication to help reduce the nerve pain, which has worked somewhat. I started my 6th cycle on a reduced dose of Velcade on the 2nd July. It didn’t take long for the side effects to re-appear, but at…[Read more]

Hi All

After my horrendous time in Feb on CDT, I am due to start cycle 6 of VCD tomorrow. At this point, I am undecided as to whether or not i am going ahead with this last cycle. The neuropathy from the Velcade is horrendous, leaving me in bed 5 days out of the past 2 weeks!

That said I’ve had a really good response on this treatment my PP…[Read more]

Hi Amanda

Sorry to hear about your lost blood tests, it’s really unacceptable. I generally have bloods taken on the same day as clinic and have results back on the same day, so the consultants and the team always know what they are working with.

Matt…….thank you for the book reference, I’ve purchased a copy and will begin reading it when i…[Read more]

Hi Amanda,

I’m not sure of the process of SCT either, but the information from Matt is useful. I’m just hoping my process of the next chemo cycle is a lot smoother from here.

Beverley

Hi Amanda,

I’m not sure of the process of SCT either, but the information from Matt is useful. I’m just hoping my process of the initial chemo is a lot smoother from here.

Beverley

Hi Amanda,

I’m not sure of the process of SCT either, but the information from Matt is useful. I’m just going my process of the initial chemo is a lot smoother from here.

Beverley

Hi Tony

Thank you for the response. It’s very disheartening, I should have been part way through cycle 3 by now, instead it’s almost back to the beginning. Hopefully this week’s appointment will prove more positive.

Beverley

Hi All

I started CTD on 15th January and I can say it’s been a journey. I convinced myself it was going to be easier than I imagined and I was going to continue working throughout….well the best laid plans!

I came to the end of cycle 1 and was unable to start cycle 2 because my neutrophil count was to low to continue with chemo, so I was given…[Read more]

Hi Pepita

Thank you for the reply. I’m so glad you’re feeling relatively well after your stem cell transplant. My husband keeps saying ‘take it one day at a time’, so i’m trying to do that….very hard to do, as I’ve always been a planner!

I’ll have to just wait and see how the chemo affects me and remind myself (often) that it’s ok to not be…[Read more]

Hi Pepita

Thank you for the reply. I’m so glad you’re feeling relatively well after your stem cell transplant. My husband keeps saying ‘take it one day at a time’, so i’m trying to do that….very hard to do, as I’ve always been a planner!

I’ll have to just wait and see how the chemo affects me and remind myself (often) that it’s ok to not be…[Read more]

Hi All,

Where to start?! I was diagnosed in December 2013 with MM and I’m 43. I have been on the ‘watch and wait’ list with the hospital since being diagnosed, with monthly visits to the hospital. To be honest I have been really grateful with this approach as it’s taken me the 12 months to really come to terms with the diagnosis, but now i can…[Read more]