Myeloma Forum | jillsykes | Activity https://forum.myeloma.org.uk/members/beverley/activity/ Activity feed for jillsykes. Mon, 13 Apr 2026 12:06:18 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b0badafbc3882a98b89fe47ccdd1db3e beverley posted an update: Can your blood results be affected by stress especially […] https://forum.myeloma.org.uk/activity/p/136531/ Fri, 20 Dec 2019 19:11:32 +0000 Can your blood results be affected by stress especially paraproteins? Mine have been stable for years between 10 and 13 but they are now at 15. I have recently been diagnosed with a mass in my abdomen and therefore I am having a hysterectomy on Monday. This has all happened in the last 6 weeks, my other bloods are relatively stable and my free…[Read more]

]]> 0 857ca244eefedc4045b0da4fcfecc1db jillsykes replied to the topic Curcumin? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/curcumin-3/#post-126892 Sat, 13 Feb 2016 19:54:00 +0000 Thank you, it seems that a lot of people are taking it and and seem to think it does them good. So definitely going to try it.

Bev

]]> 1446eb991fd3683b5527941657e81a0c jillsykes replied to the topic Curcumin? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/curcumin-3/#post-126861 Wed, 10 Feb 2016 06:53:08 +0000 Hi Jan
Thanks I will look into it further

Regards
Bev

]]> e2165d37832ee453a97b78da8166334b jillsykes started the topic Curcumin? in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/curcumin-3/ Mon, 08 Feb 2016 20:02:53 +0000 Hi,
Has anybody had any experience of curcumin? I have been reading “Margarets Corner” and she raves about it. I researched the Dr she quotes in Texas but he seems to be under some sort of investigation. There has been other research (in Australia), but these only used about 25 smouldering patients (probably any more would have been a fire…[Read more]

]]> 57e9c0236327991e37fef4530e03d124 jillsykes replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/3/#post-115949 Thu, 12 Jun 2014 19:57:04 +0100 Hi
The radiologist will know all about MGUS and smouldering and it will dictate what he looks for if he has all the information.
I am a radiographer specialising in diagnosing breast cancer and there is nothing worse than a GP or surgeon only giving you half a story. If you have all the information it can change your diagnosis.
Anyway feel free…[Read more]

]]> e869f42b15c9f5b1d420fba1476dc75a jillsykes replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/3/#post-115947 Thu, 12 Jun 2014 18:44:05 +0100 Hi Susie
Who asked for original lumbar spine X-ray? They
should have given all your clinical details to the radiology department including any pre exsistng conditions and what their clinical diagnosis was. As far as I am aware myeloma shows as lytic lesions on X-ray where as osteoporosis is a general loss of density. You could ring the MRI…[Read more]

]]> 357d41893bbfe3c956a5c8191552fe64 jillsykes replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/2/#post-115684 Sat, 31 May 2014 11:33:10 +0100 Hi
I struggled with insurance as no insurance company can seem to understand smouldering, they only deal with active, and then don’t cover that!! But I am with Columbus and they have covered me, and for not much more than what a dear friend called “normal people”. That remark cost her coffee and cake

Love
Jill

]]> 1d6765dcc76a7ad499eafa916a623196 jillsykes replied to the topic How confusing is this journey? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/how-confusing-is-this-journey/page/2/#post-115298 Sat, 24 May 2014 21:54:33 +0100 Hi
I was diagnosed in 2011 after blood tests for irritable bowel!!! I had a bone marrow biopsy to confirm MGUS but unfortunately I was a bit further on and was diagnosed as smouldering. I have an outpatient appointment every 4 months and I haven’ t a clue what any of my blood results are. This is my way of dealing with this silly disease and it…[Read more]

]]> 71514c3ab8424b0b3710204623320032 jillsykes replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma/page/2/#post-86254 Sat, 14 Jul 2012 16:43:19 +0100 Hello Anne
You will need time to get used to this I had 2 weeks off work sick as thing were getting too much and I needed some time for me. My mum had died in March from breast cancer, I had my cat put to sleep in June and I was diagnosed in August (not a good year 2011!!!). By the time November came I was ready to take someones head off. You…[Read more]

]]> 553af63a3f08ff63064a66e7cc78095c jillsykes replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma/page/2/#post-86251 Fri, 13 Jul 2012 06:34:48 +0100 Hi
Thanks to everyone who has answered my e-mail. I actually feel a lot more positive about things. I was starting to get despondant about it but everyone has been really supportive and it is obviously not all doom and gloom (shouldn't have read some other web sites!!). As a radiographer I only see people in the later stages of this disease and…[Read more]

]]> 2f800518339d19f4967ec202cc0c4e57 jillsykes replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma#post-86240 Mon, 09 Jul 2012 20:48:05 +0100 Thanks I have been trying to ignore it for a year hoping it might go away!! I think it is called burying my head in the sand. Nice to know I am not alone

]]> c65a8d4b8155b80a4ed439fb28f00b68 jillsykes started the topic Smouldering myeloma. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma Mon, 09 Jul 2012 20:12:32 +0100 Hello
I am 52 and was diagnosed with smouldering myeloma last year after a blood test for an unrelated problem. I had a skeletal survey and MRI all of which were normal. I have bloods every 3 month (just waiting for results of latest ones)

I work in the NHS diagnosing breast cancer so find it difficult sometimes.

It seems that smouldering…[Read more]

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