[bijouParticipant]

Thank you – this has been the longest week of my life and it’s only Wednesday !! I don’t understand how I can be told I may have cancer and then just left in limbo like this. I know from the cat scan that I have lesions on my ribs , my breast bone, my hip, my shoulder blades and in several places in my spine. That does’nt sound like first stage! – and surely I should be having some treatment as a matter of urgency. Sending me home for 10 days in limbo like this is just agony. I cannot believe that it takes 7 days to analyse a blood sample 🙁

[bijouParticipant]

Thank you Andy, I guess I’ll just have to wait. Apparently I’ll be going into hospital on Tuesday for more tests ( biopsy ? ) . How long am I likely to be in for ? , It is my daughter’s wedding on the following Saturday and I need to be out of hospital by Friday so that I can travel to the hotel prior to the wedding. My head is spinning with it all  !

[bijouParticipant]

Sorry to be asking so many questions but I’m feeling so confused. Today the hospital told me they had’nt lost my blood sample after all but that it would take a week to be analysed. A week ??? – that seems a terribly long time to me I  forget what the test was called but it was to determine if the cancer was in my bone marrow or not. Does this sound right to you ?

[bijouParticipant]

I’m feeling like Alice in Wonderland in this strange crazy world of Light chains and stem cells – none of it means anything to me at the moment as I hav’nt been appointed a specialist yet and don’t yet know what kind of Myeloma I have. I was awaiting the results of a blood test today which would tell me more but when I phoned the hospital they had lost the blood sample so I have to go back tomorrow morning to have another lot taken. It all seems so bloomin incompetent given that I first went to my GP with rib pain back in September and the hospital totally missed the lesions shown on my cat scan in April , it would would be funny if it were not my life on the line ! . Also today I’m noticing it harder to breathe – i can only describe it a bit like having asthma, is this usual for Myeloma ?

Trying hard not to panic but feeling very scared .

 

 

[bijouParticipant]

Thank you to everyone who has replied offering advice and positive stories. I fully intend to beat this and refuse to be defined by the fact I have cancer. I should hear the result of my blood test this week hopefully begin the fight back .

[Author]

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