bill2009 replied to the topic Myeloma XI Trail in the forum Treatment 12 years, 7 months ago
Hi Amanda
Bill was diagnosed with Myeloma on 5th August. He is 41 an also on the Myeloma XI trial. He is on the RCD arm of the treatment and will finish his first cycle on 5th September.
The only side effects he has experienced are leg pains, tiredness and a temperature without an infection (which goes away with the use of a fan!!).
It is…[Read more]
bill2009 started the topic Revlamid infection. in the forum Side-effects 12 years, 7 months ago
What are people's experiences on revlamid? I'd taken it for 6 days and then picked up my first infection, spending a week in hospital on IV drip. Came in via A&E and waited 9 hours for a bed. Any tips to avoid infection? I have a young family and want to avoid long hospital stays. All tips and suggestions welcome.
bill2009 replied to the topic Hereditary link???? in the forum General 12 years, 7 months ago
Just to add my thoughts. My mum was diagnosed 4 years ago and has had thalidomide and velcade. Having seen what she went through I knew all of the symptoms. Two months ago I felt a popping in my chest (still convinced this is sternum related) and got rushed into A&E with a chest infection. Discharged after a week but still not right. Went to…[Read more]
bill2009 replied to the topic Just Diagnosed in the forum Newcomers 12 years, 7 months ago
Hi Charlie
I'm on RCD on Myeloma 11. Thought I'd go for the best option as I'm only 41 and got two kids. It is confusing but I found the best way is to discuss it with your partner. I found out on the 5th so it is still a bit new.
Good Luck
Bill
