[bill2009Participant]

Hi Amanda

Bill was diagnosed with Myeloma on 5th August. He is 41 an also on the Myeloma XI trial. He is on the RCD arm of the treatment and will finish his first cycle on 5th September.
The only side effects he has experienced are leg pains, tiredness and a temperature without an infection (which goes away with the use of a fan!!).

It is a steep learning curve but we are now starting to know what to expect. The days on the dexmethasone are the best for him.

Hope this helps
Bill and Helen

[bill2009Participant]

Just to add my thoughts. My mum was diagnosed 4 years ago and has had thalidomide and velcade. Having seen what she went through I knew all of the symptoms. Two months ago I felt a popping in my chest (still convinced this is sternum related) and got rushed into A&E with a chest infection. Discharged after a week but still not right. Went to see the doctor two weeks ago and mentioned the similar symptoms – rib and back pain and asked for a blood test. Within 48 hours I was hooked up on a drip trying to get my calcium levels down. Now on RCD (Myeloma II) with a positive attitude. It seems awful long odds that this is just a co-incidence. Maybe my mum worked in an industry that contributed towards her MM whilst pregnant with me. Needs further invesigation. I have two young kids and they will be closely monitored. Don't want them suffering. Waiting for my first MRI. Early indicators are that I have thinning of the humerous and they want to monitor my spine. Fingers crossed. 🙂

[bill2009Participant]

Hi Charlie

I'm on RCD on Myeloma 11. Thought I'd go for the best option as I'm only 41 and got two kids. It is confusing but I found the best way is to discuss it with your partner. I found out on the 5th so it is still a bit new.

Good Luck
Bill

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