Myeloma Forum | Blessthischick | Activity https://forum.myeloma.org.uk/members/blessthischick/activity/ Activity feed for Blessthischick. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 2d80b57501436cfae5c99cb4c2517bd7 Blessthischick replied to the topic We think it's on the way back in the forum General http://www.myeloma.org.uk/forums/topic/we-think-its-on-the-way-back/#post-115933 Wed, 11 Jun 2014 20:06:24 +0100 Hey there VickiMeek

Just to send you best wishes and to say I’m thinking of you guys. I can’t imagine how this feels because as a smoulderer I haven’t been there…yet. But I went through my expartner being diagnosed with advanced cancer last year and I remember the worry I had for him. I thought my heart was gonna break as I watched him being so…[Read more]

]]> 0300af008ab0b30297d2fc3f9d553764 Blessthischick replied to the topic For those of you who wish a more indepth understanding of Myeloma... in the forum General http://www.myeloma.org.uk/forums/topic/for-those-of-you-who-wish-a-more-indepth-understanding-of-myeloma/#post-115932 Wed, 11 Jun 2014 19:47:39 +0100 Dear Rebecca

I am pretty sure that there is nothing on this educational tool for nurses that you do not already know and that is EXACTLY why I do not understand why this information could not be made available for us all should we want it. Obviously it would need to be in a slightly different format & without the continuous assessments that are…[Read more]

]]> b96c31edaa3f0646047120768a7a71ca Blessthischick started the topic For those of you who wish a more indepth understanding of Myeloma... in the forum General http://www.myeloma.org.uk/forums/topic/for-those-of-you-who-wish-a-more-indepth-understanding-of-myeloma/ Wed, 11 Jun 2014 10:45:30 +0100 Hi Everyone

I am aware that we are all different both with our Myeloma experiences and our need for knowledge. I have spent the last 8 months at different stages of my learning curve trying to grapple with the internet, most recently, in the process of exploring and trying to UNDERSTAND genetic abnormalities of which I have a few.

I was…[Read more]

]]> e0091877f64dccc205fde0e4913b9f6e Blessthischick replied to the topic ALAmyloidosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/alamyloidosis/#post-113814 Wed, 19 Mar 2014 09:31:51 +0000 Hello Anita

I am the same age as you & had a trip down to the NAC last Oct. I was told I do not have Al Amy but that I may develop it so they check me really closely and so far things have been been fine. I am sorry you find yourself in this situation & I can imagine it must feel pretty scary. Just wanted to send you a link to an American…[Read more]

]]> 6b254b8f03defea2c0bc335576f39433 Blessthischick replied to the topic Tracheobronchial AL Amyloidosis in the forum Related conditions http://www.myeloma.org.uk/forums/topic/tracheobronchial-al-amyloidosis/#post-113810 Wed, 19 Mar 2014 02:11:54 +0000 Hello Duncan

Just wondering if you have heard of Amyloidosis Awareness on Facebook? It’s a great site with links to other ones. I am being checked regularly for Al Amy after the found some Amy tissue in my skin. Take care.

🙂 x

]]> 991335b07641c7568f3cfa0a33d6a444 Blessthischick replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment http://www.myeloma.org.uk/forums/topic/start-new-regime-on-monday-20012014/page/5/#post-113809 Wed, 19 Mar 2014 02:06:52 +0000 Just wanted to add my best wishes to you Tom. You r a real trooper. Lots of love and best wishes 🙂 x

 

]]> 31bc15da4792c3fe23861697c5556c24 blessthischick changed their profile picture https://forum.myeloma.org.uk/activity/p/1583/ Wed, 19 Mar 2014 02:00:36 +0000 0 9e6b826944cea594efe8c46d011536a9 Blessthischick replied to the topic Second Opinion in the forum General http://www.myeloma.org.uk/forums/topic/second-opinion-2/#post-113808 Wed, 19 Mar 2014 01:53:46 +0000 Hi there

I asked for a second opinion last week and got it no probs. In fact my consultant was lovely about it. Furthermore some1 told me that I could ask for a third opinion if I want.

The only things my consultant wanted prior to referring me was a repeat bmb and a chat about what I want to achieve from the referral. I just said I wanted to…[Read more]

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