botope

  • botope replied to the topic hello in the forum Newcomers 10 years, 4 months ago

    Hello Nick I’m also relatively new to the forum, having recently started chemo on the myeloma XI trial. Smouldering myeloma diagnosed for me in April 2012, lesion/plasmacytoma on my rib earlier this year. I had radiotherapy for that, but it didn’t seem to shrink the tumour, then another found in my hip with a high level of activity in the bone…[Read more]

  • Hi Chris thank you for your encouragement, I know I need some positive input just now, and you helped a lot

  • Hello Eve and thank you for your words of wisdom.  All i need to do now is get my act together with the picture…

  • Hello again, it does feel scary to be home alone with a pile of boxes of medication. I guess the idea is just see how you do and check it out next time. Three weeks seems like a long time, it might be an idea if someone called just to check out how you are, I suppose there just isn’t the manpower to do the stuff that would support us all. More’s…[Read more]

  • Hello Alan I’m also a newbie on this forum and also started  chemo – CTD on 1 October – part of the myeloma 11 trial at Southampton too

    I’m glad you’re feeling ok – I’m having a real problem with dizziness and sickness; hoping I’m not going to have that for  the next four months minimum…

    I was diagnosed with myeloma following a routine blood t…[Read more]