[botopeParticipant]

Hello Nick I’m also relatively new to the forum, having recently started chemo on the myeloma XI trial. Smouldering myeloma diagnosed for me in April 2012, lesion/plasmacytoma on my rib earlier this year. I had radiotherapy for that, but it didn’t seem to shrink the tumour, then another found in my hip with a high level of activity in the bone marrow biopsy.
I also felt as though I was swept along once I had accepted that chemotherapy should start; didn’t know what was going to happen next and felt quite scared by the whole thing, to be honest.
I have had two cycles so far, just started my third, and it is tough to be contemplating Christmas with chemo, I agree. But I will be with you, too! And others, I know. I’m going to hope it’s not so bad and look forward to Christmas 2015 – by that time we might be running around like Santa’s elves again!
I hope your consultation on Thurs goes well: my chemo (CDT) includes dexamethasone, a steroid, and I read somewhere that it helps with the pain, and I have to say that it does seem to have had some effect on my two “hot spots”
All the best

[botopeParticipant]

Hi Chris thank you for your encouragement, I know I need some positive input just now, and you helped a lot

[botopeParticipant]

Hello Eve and thank you for your words of wisdom.  All i need to do now is get my act together with the picture…

[botopeParticipant]

Hello again, it does feel scary to be home alone with a pile of boxes of medication. I guess the idea is just see how you do and check it out next time. Three weeks seems like a long time, it might be an idea if someone called just to check out how you are, I suppose there just isn’t the manpower to do the stuff that would support us all. More’s the pity.

Sorry you’ve had a bad night. I didn’t feel the effects of stopping the steroid, myself, think my problem is the thalidomide – but as you say, got to grit my teeth and get on with it. There  is light at the end of the tunnel, just can’t see it yet

[botopeParticipant]

Hello Alan I’m also a newbie on this forum and also started  chemo – CTD on 1 October – part of the myeloma 11 trial at Southampton too

I’m glad you’re feeling ok – I’m having a real problem with dizziness and sickness; hoping I’m not going to have that for  the next four months minimum…

I was diagnosed with myeloma following a routine blood test in Feb 2012, having had MGUS for some time I believe (only veiled hints to me at the time).  I now have lytic lesions in my ribs and pelvis, although the pain from the rib was alleviated by radiotherapy.

I stopped work at the end of Sept tho had done little since Nov last year – still feels strange not having that responsibility. I have two grandchildren two cats and one husband. He’s been very supportive indeed.

[Author]

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