Hi Peter

<span style=”color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 12px; line-height: 16.08px; background-color: #f6f7f9;”>Many thanks for your thoughtful reply – it is very helpful. I saw my excellent consultant yesterday and we had a good discussion about the options. I am going to have a further round of chemo. so that…[Read more]

Hi all

The developing discussion on supplements is very interesting!  In the past I’ve never really believed in them but now seems a good time to start!  My view is that they are very unlikely to do any harm and they might just be of benefit.

I am taking a vitamin B12 supplement – I was told that the level of this vitamin in my blood was low b…[Read more]

Hi Cartdaw

I’m in a very similar position to you – although I’m ten years older .  I’ve recently had my second infusion of Bisphophanates and have experienced no side effects – so far.

I am now arranging to see another consultant who I believe can advise me on other possible treatments and trials.

Best of luck to you!

Brian

Hi

Many thanks to Karen, Andy and Mike for their very helpful replies. I feel that I am getting a better perspective on the condition and that has given me at least a glimmer of hope about the future!

I am very keen to investigate treatments that may/can be useful at the smouldering stage.  If I discover anything useful, I’ll start a new topic…[Read more]

Hi Jean

Many thanks for your encouraging reply.  I very much appreciate finding out about the experiences of others in my position.

Best wishes to you and Frank.

Brian

Hi Robert and Martin

Many thanks for your replies and best wishes. It looks like we are in the same position – lots of tests but no symptoms for the moment. (Did not enjoy the bone marrow test!)

My haematologist recommended the infusions because they can – apparently – reduce the possibility of future bone damage.  I was not too keen on the…[Read more]