Hi Roisin welcome I hope we can be some help to you .There is nothing worse than watching someone you love suffer If the chemo is palliative is it easing his symptoms?Just wondering why they are giving it to him as it is a tough regime . Recently I had a similiar problem with my 85 year old mum who had a stroke last year.I try and help as much as…[Read more]

Hi Mari I know what you mean about not feeling old! In my head I am much younger than in reality so I have to avoid all mirrors!! Happy birthday for tomorrow I hope you have a lovely day and are spoiled rotten love from one teenager to another Bridget x

Hi everyone I too was born in 1955, a very good year Tom!! I live in Houghton Regis Bedfordshire, a few miles from Luton airport My hospital is University College Hospital in London The haemotogoly team is led by Dr Kwee Yong who is well known in myeloma circles , they are brilliant I had to retire when I was diagnosed but I used to work for…[Read more]

Hi Chrissie so sorry Davids mm has gone up , no wonder you feel devastated Hopefully they will come up with the right combination to bring it down very soon All fingers and toes crossed for you.The trouble with all these anti-cancer drugs is they are so toxic we risk damaging our kidneys all the time I always worry that mine will just pack up one…[Read more]

Hi Chrissie so sorry , I didnt think about using the abbreviations and there is nothing worse when you are just getting used to the jargon. The induction chemo is the chemo used to lower the paraprotein levels to as low as possible before a stem cell transplant High dose steroids are usually given as well . The bmb is bone marrow biopsy , used…[Read more]

Hi Gina congratulations on your wedding I am glad it went well and you enjoyed Although your mum wasnt well enough to be there she must have been so proud of you. You look so beautiful in the photos and the children are gorgeous too, thank you for showing us . I am sure your mum loves looking at your photos . In looking after your mum at home…[Read more]

I am with Helen 4th from the right is my guess love Bridget x

Hi Mvis that was a great brainwave! Your idea about recording our symptoms etc would be a good one perhaps our moderators will read your post and suggest something I am getting expert at doing the injections now and most of the time it doesnt hurt at all !!The other plus factor is I dont have any bruising when I do it whereas my tummy was black…[Read more]

Hi Chrissie it did take several months before I felt the benefit , I was diagnosed in August 2006 I then had induction chemo before having a stem cell transplant in April 2007 It took most of that year to feel well again and then I had to have a hip replacement as the steroids had destroyed my hip joint! I agree with Eve one day at a time helps…[Read more]

Hi Chrissie I know its awful when you first hear the words that tell you your loved one has myeloma At the moment I am sure everything seems very scary with all the drugs and terminology But things will get easier as he carries on with his treatment and you will see him looking and feeling better . It sounds as if his doctors are being cautious…[Read more]

This just what I need ENERGISATION leaving ION Sorry I know we have had this before love Bridget x

Hi Wendy thankyou the article was very interesting . I dont have any pn symptoms at the moment but I will certainly mention this treatment next time I am in clinic love Bridget x

Hi Sue sorry I was convinced I had replied to your post the other day. Gaga! Sorry Michael is having more problems with his pn, it really is a horrible side-effect, I hope it eases off soon My mystery rash seems to be fading now and the doctors arent worried about it so I am ignoring it! The tiredness , I think Thalidomide is the culprit , is…[Read more]

Hi Ted good to hear from you and very glad to hear you are well . I think we all get a little bit anxious about catching bugs at this time of year, I certainly do after having pneumonia twice! So heres to a winter of being as well we can and no coughs or colds !! love Bridget

Hi Stuart I have had similiar problems posting inappropriate words in the past and it does get frustrating so any changes you can make to the list would be great Thanks Bridget

Dear David I am so sorry for your loss To lose someone young and full of life seems very cruel and unfair. love Bridget x

Hi Gill I have been cracking up since reading Dais post and I will definitely check who is behind mme in future ! However since being on Revlimid I have been lumbered with squeaky bum syndrome so any tips to ease the embarrassment are very welcome , there are only so many times you can cough without giving the game away!My grandson thinks it is…[Read more]

Hi Gill it sounds like you are well organised so try not to worry too much( easier said than done I know!) Have a wonderful time it will recharge your batteries Whats a bit of frostbite anyway haha! Safe journey love Bridget x

Hi Roz you must be so frustrated at the lack of response when you asked for help , it doesnt seem right . I am sure Macmillan would be able to offer counselling , they have lots of experience that could help you as the partner of a cancer patient . I hope you can get some help very soon love Bridget x