Hi Helen and Debs I love to hear how well you are both doing and you are so right it is day by day , sometimes hour by hour ! Helen it must make you feel much better now your mouth doesnt hurt so much, nothing makes me feel so wretched even a single cold sore !! I have lost my hair 3 times now and I knew from the outset I was too untidy for a…[Read more]

Hi Alex I am on my 7th cycle of Revlimid and exhaustion has been a constant throughout It seems to be a very common problem too!! All I can say really is go with the flow and when John feels he needs to rest then thats just what he needs to do It didnt take me long after being diagnosed to realise that there is no choice but to listen to my body…[Read more]

Hi Gill I am glad Stephen has got a date at last ,it seems ages since you first mentioned his lump As for the full diary what social butterflies we are!! Thanks for the reminder about the flu jab I am hopeless at booking them so have now left myself notes around the house , like thats going to work!! Take care and good luck for the op Bridget x

Hi Aileen welcome to our merry band!! It is a huge shock when you are first given the news but as you begin your treatment, if any is needed. things will soon become clearer The info line on here is manned by nursing experts who are only too glad to help with questions Last but not least there are so many lovely people on here to support you when…[Read more]

Dear Martin I am sorry you have lost your dad but it seems he passed in a dignified and peaceful way at home which must have been a comfort to you all Please pass on my condolences to your mum Bridget

Hi Eve yes its good to assert yoyrself when you need to and if Slim wont then he can rely on you If only more doctors learnt how to truly listen to their patients though! So glad Slim is on the mend and hope you caught it nice and early As for upchucking on the carpet sounds like a new carpet needed there Eve!! love to you both Bridget x

Hi as I am feeling a bit peckish my word is GNOCCHI and the next one is CHI love Bridget x

Wow Nettie you are amazing there is no way I could do that how brave you are! Well you might be a bit batty but blooming heck that is batty at its best . I will pass the word about sponsoring you Thankyou Nettie for being incredible love Bridget x

Hi Mavis this post really made me smile thankyou Its just the sort of thing that happens to me too !!Tee-hee Good job we are all the same love Bridget x

Hi everyone thankyou what would I do without you to keep me going! Well today I took 20mg in the morning, because thats guaranteed to keep paon away for a few hours followed by a hefty dose of Hydrnorm liquid add an anti-sickness tablet and I was ready to face the world The RT was over in minutes and totally pain free!!Eureka I have found the…[Read more]

Hi Gill glad you enjoyed your course sounds like a lot of fun. I never was any good at spoken french but I can read it ok still Certain words from my schooldays stick in my head, m–de! for example I wonder if they will allow that one on here–haha Love Bridget x the answer was not allowed!

Dear Sarah so sorry your father has passed away , life just doesnt seem fair . But having read your last post he died as he wanted to Grieving will come Sarah but its not surprising you feel numb at the moment with losing both Gordon and your dad in such a short space of time Lots of love Sarah Bridget xx

Hi Tom well yesterday was pretty tough!!Usual long wait for clinic as well My next treatment is going to be Bendamustine as the doc and I agreed I probably wasnt strong enough to cope with a heavy duty chemo regime , but first he has to get the approval of the whole team to fund There was a trial but I am not eligible because they cant measure my…[Read more]

Hi Eve and Sharon I was just wondering if Slim has had a full skeletal survey and bone scan Eve? Mine was done when first diagnosed to give them a base-line to gauge existing damage. In my case the damage is so extensive there are only two places free of myeloma, my left forearm and left thigh!!Everywhere else has more holes than any pepper pot…[Read more]

Hi Tom afraid not this time Just got home but todays appointment was a planning session where I got another tattoo Tomorrow is the first radiotherapy session and there may be another 4 So Onwards and Upwards for a bit longer Tom but I had better look out those dancing shoes!! love Bridget x

Hi Dai what wonderful news to start the day with! Its been hard fought for but you got there !! Heres to a very long remission and no drugs !! If it were me I would be tempted to drop a line to the exceeedingly stupid doctor in Wales who behaved so appallingly I hope you and Janet have got lots of fun things planned so get out there and forget…[Read more]

Hi Solo welcome to our lovely group I do hope you dont need treatment for a very long time to come !!Tumours are quite common in myeloma , they are usually reduced with steroids as they are blood filled When diagnosed a very large tumour was found which had destroyed 3 of my vertebrae so my back has been reconstructed with rods and plates Since…[Read more]

Hi Roz I can only imagine how hard it must be for you ,Min and Sarah , none of us can really know until it happens to us Ido hope you get some counselling very soon as Mari said sometimes you have to nag your gp to get what you need Please dont ever hesitate to post on here about your feelings Roz , I very much doubt anyone could be offended by…[Read more]

Hi Debs I really feel for you what an wawful thing to do to you! I would let them know how it feels when you next see them then perhaps they will take patients needs into account Hang in there Debs love Bridget x