Hi Min how crazy to expect Pter to make an arduous journey like that let alone the risk of others bugs etc Having only recently seen how much authority the Macmillan nurses have I agree they probably have more chance of finding a solution thats best for Peter It does seem unfair that those who shout loudest get the best care but thank goodness…[Read more]

Dear Sarah it shows how many people cared about Gordon to have such a good turnout , it must be a help for you to know that . I bet Gordon would be pleased his red tractor is sitting idleand I am sure he watches over your son. What a wonderful family you have Sarah , to raise such a fantastic amount of money , especially as it must have been a…[Read more]

Hi Gina good to hear your mum is feeling better It is so frustrating to be stuck in hospital when you start to feel better but I am sure she realises hospital is the best place for now .I hope the results were good its about time your mum had some good news love to you both Bridget x

Hi Nettie, Jo and Dai I dont know for sure what comes next as clinic isnt until next week , hopefully I will have had the ct scan by then . Jo its funny but I had completely forgotten about Thalidomide and as I havent had it before it may well be my next treatment either on its own or with something else . I am assuming that as Revlimid hasnt…[Read more]

Thankyou what would I do without my lovely cyber friends to keep me going Sarah thank you so much for your post I have been thinking of you this week . Dai it is definitely a myeloma tumour , the mri showed an increase in myeloma apart from the tumour . I think the plan may be radiotherapy , hence the ct scan to get precise measurements, possibly…[Read more]

Great news Jet !! There really is no place like home and a spell in hospital certainly makes you appreciate it all the more . I hope your throat heals quickly , it is horrible when you cant eat or drink Dont forget take it slow when you get home ! love Bridget x

Hi Min I hope everything is going ok so far How disappointing that they dont have an isolation room for Peter , I would have thought that was the highest priority for sct patients I agree with Mavis its a good job Peter has you to watch out for him , but it saddens me that you should have that extra burden at a time when all you want is to help…[Read more]

Hi Eve I just read your post and am now hopping mad , alright I am on a dex comedown too!! How can a nurse come out with such a c**p comment about the PICC line and really what is her opinionin the scheme of things!!! I thank goodness the team at UCH look at my overall welfare first and foremost , whether it is side-effects or the extreme…[Read more]

Hi Eve well at least you have a plan now and the waiting is over I always find waiting makes me more anxious Velcade is a great drug and works well for a lot of people The first time I was on it constipation was a big problem but the dose was lowered and I took 3 forms of laxative every day Unfortunately the second time I was on Velcade it was…[Read more]

Good morning Ted I hope you have a wonderful birthday celebrating !! I think it doesnt matter how old we are we all want to have the best we can out of life! The trouble with myeloma is very few doctors who havent treated myeloma patients will have come across it and they read up on the bare facts without realising all the different elements to…[Read more]

Hi Keith good to hear you are home where you belong and you conquered another obstacle with style!! Your wife and family must be pleased and relieved to see you getting better too Enjoy the lovely sea air just dont overdo things this is one time in your life when it is better to ignore any chores or things you have been putting off , they will…[Read more]

Dear Dai you have had the rottenest luck with Velcade , no wonder its getting you down! I d hope your leg and ankle continue to shrink being unable to get about as you normally do is so frustrating Over the last 5 years and countless treatments there have been several times when I had thought a problem was solved following logical thought…[Read more]

Hi Roz wow the garden is lovely you must be very pleased with it The bench is so unusual did you have it made? You will be able to enjoy sitting out there and I am sure Micahael will be right there with you Hope you are doing okay love Bridget x

HiHelen good luck with your sct tomorrow . It is definitely worth doing and hopefully you will get a long period of remission and no heavy treatment ( thats the best part!!) I am sure you are well organised but just a thought take your own cup or mug with you When you are feeling a bit queasy tea in a plastic cup just makes it worse !! I hope you…[Read more]

Hi Ted welcome to the crazy gang!!Seriously you couldnt find a better place for support, advice or just a place to vent your worst fears There are lots of lovely people who are at various stages of the myeloma journey Its brilliant to hear you havent needed any treatment yet whilst we all get anxious on clinic days just try and enjoy these…[Read more]

Dear Gaye you have been in my thoughts a lot lately and it is lovely to hear from you Not so lovely to hear you have had a rough time though. I can understand your decision to stop treatment completely Initially we are all for fighting the fight but these treatments that give us extra time take their toll, mentally and physically. I realised a…[Read more]

Hi Gina your poor mum is really having a tough time lately it doesnt seem fair. I hope they get the answers they need from the tests very soon and they can then give her the treatment she needs. She is bound to feel down but hopefully her mood will pick up soon , she seems like a very strong minded lady and I cant imagine she will stay down for…[Read more]

Wow what great photos it would have been such a shame if they had remained unseen you are so very talented!!Thankyou for sharing them with us and I am sure the exhibition will be a huge success best wishes Bridget x

Hi Gina sorry to hear your mum is still poorly but its amazing sometimes the difference a few days can make Paraproteins are coming down nicely and this should continue even if they halve the Velcade. I too thought anti-inflammatories were not good for us. Good luck and hope your mum feels better this week love Bridget x