Hi Min I am so glad you are enjoying your gardening , if anyone deserves a break you do!Perhaps Peter needs a kick up the backide , I bet he doesnt even realise he is being a brat!!So let him fend for himself a bit , even if its only a few hours and I am sure he will realise how lucky he is to have you looking after him. You said you think us…[Read more]

Hi Dai like youI have not had a full nights sleep since being diagnosed 5 years ago!! Apart from the fact that I have to sleep in a semi sitting position I rarely manage more than 2 or 3 hours a night! Mind you I can cat-nap with the best of them ,and Jeff watches me like a hawk sometimes ( I have been known to drop off despite having a cup of…[Read more]

Hi David lovely to hear your clininc had good results for you Even better when you dont have to go back for 3 whole months !Yippee!!! I agree with Dai dont apologise just get on with enjoying yourselves you both deserve it ! love Bridget x

Hi Min I am so glad things are on the up now ! Enjoy the next few weeks without thinking too much about the next stage You and Peter are such a great team you will get him through whatever comes next!! love to you both Bridget x

Hi Min I am so pleased Peter is feeling better, it must be such a relief for you to see him improving Hope you get a good nights rest and they let Peter come home tomorrow love Bridget x

Hi Eve Jo and Dai your posts just highlight the problems when health professionals become so arrogant it makes them more than negligent bordering on criminally deficient In your grandsons case Eve one woman has ruined his chance of a normal life , you must have been heartbroken and to not admit it was their mistake until the very end is truly…[Read more]

Hi Sue sorry I cant help with any info on Bendamustine but I just wanted to wish Michael good luck with the trial From my experience I would say you do get very well looked after when you are taking part in a trial Fingers and toes crossed they get his pps down very quickly love Bridget x

Hi Meike so sorry you have found yourself dealing with myeloma but you will find this site a great help for answers but also support for you and Christin as well . I can remember very clearly what a rollercoaster it was when I was first diagnosed but it does get easier as you get used to all the treatmentand life does become more normal. Its good…[Read more]

Hi Min your post just goes to show professionals are just as capable of stupidity as the rest of us!! The scary thing is these people literally have our lives in their hands so I do expect more from them As for the professional arrogance that doctor showed in not considering that just possibly Peter may have myeloma and doing a simple test they…[Read more]

Hi Jo got a whole bag of new painkillers yesterday at clinic , so will have to see if they work !!Hard to know what Revlimid is doing for me as my paraproteins dont tell the true story( little fibbers always read low even when myeloma is on the rampage!) I have to have frquent mri scans to see whats going on. Lucky you werent at clinic yesterday…[Read more]

Hi Min I have had you and Peter on my mind all day just wondered if he has had a better day today Are you looking after yourself too , I hope so love Bridget x

Hi Eve how you must have wanted to give him a clout!!A similiar thing happened to me when my youngest daughter was diagnosed withCystic Fibrosis , someone who I thought was a good friend said it would have been better if she had died!! I have not spoken to her since!! How old is your grandson? It makes me so cross when people cannot see further…[Read more]

Oh Roz what a stupid stupid man to say something like that to you Its a wonder you didnt punch him on the noseJust goes to show even the healthcare professionals get it wrong sometimes love Bridget x

Hi Mavis well I came home from clinic with a whole bag full of pain relief today !!The Macmillan nurse upped my Oxycontin dose to 70mg yesterday and I now have some big plasters filled with local anaestheticto put on my back plus some Pregabilan Apparently Pregabilan is the posh version of Gabapentin and has fewer side-effects , also much more…[Read more]

Hi Dai glad to hear the pn is lessening and your bloods are behaving It wont be long before you are playing comfortably again , I cant imagine anything keeping you from your guitar for long !! love Bridget x

Hi Keith good to hear all is going well Iknow how you feel about getting away from blooming hospitals and all the stuff that goes with it!!Have a good holiday and it will boost your spirits ready for the sct and after that a very long remission Take care love Bridget x

Hi Mari wow! Thanyou for sharing with us it really does lighten the load to hear of someone doing such an amazing feat after all he has been through Mind you I think you played a big part in his recovery , you make a great team !!Steve must be a very determined man , I cant even ride a bike to the end of the street not due to myeloma just have…[Read more]

Hi Min yes they can write scripts but as I am at clinic tomorrow I think she was being professionally polite , if you know what I mean ! Sorry to hear Peter has had to be admitted again, you must be at your wits end Ithink you can just ring yourself once you are on their books In the short time I have known my Mac nurse I would certainly call on…[Read more]

Hi Angelina reading all these lovely ideas on here has made me realise I too want to leave some memories for my children and grandchildren So tomorrow I am off to buy a notebook and go where the memories take me Thankyou for sharing with us and prompting me .I am sure your girls and Johnare going to love doing their books lots of love Bridget x…[Read more]