Hi Ali welcome to you and Guy as others have said we are all here for each other so if you need answers ask and if you just need to offload when things get too much this is the place to do it! It really will get easier as Guys treatment gets underway and you will get some normality back in your life before too long .I hope Guy gets home soon love Bridget x

Good Morning David what brilliant news to start the week !! You must be so relieved to have got the all clear, now you can relax . I hope the niggle in your neck is just that love Bridget x

Dear Susan I am so sad to hear Kevin has gone, my thoughts are with you and your family. I can fully understand his decision to have some control over this wretched illness and his bravery does not surprise me one bit . I am sure you have a lifetime of happy memories to get you through the hard times and it was a privelige to have known even a…[Read more]

Dear Tina I am so sad to hear Patrick has gone , your posts allowed us to know him a little and he must have been an amazing man The memories you have of your life together will get you through the dark days hang on to them Lots of love you Bridgetxx

Hi Mavis thank you for your lovely kind words where would I be without you all !! I had a phone call today but the radiologists report of my mri wasnt ready Apparently they are going to discuss me in the team meeting on Monday though so fingers crossed Today I had to go to UCH to check out the swelling on my leg It wasnt a clot but they think it…[Read more]

Dear Lorraine of course you should offload sometimes and where better than here , we all understand what you are going through! As for the pains in your arms etc one of my problems with Rev has been the weekly cycle of absolute agony in my arms as well as everywhere else .I think in my case it is the Rev but whether it affects me more because I…[Read more]

Hi Marian I can see you have already been given lots of good advice and I cant add much except to say it will all make sense soon Far better they take their time getting all the right information to treat your dad so that his treatment will be just right for him and worth the wait Good luck to your dad and dont forget we are all here when you need…[Read more]

Hi Fi sorry you are in the position of needing to join us but welcome Myeloma is such an individual illness it would be nearly impossible to guess whats going on with your dad as it needs the whole range of results rather than just paraprotein There is an excellent helpline on this site where medically trained people will be able to give you…[Read more]

Hi Roz thankyou I do feel much more positive that was just one of those nights when the pain got too much and ended up in dark thoughts I am sure we all have those nights !! Mri today and hopefully have results by the end of the week Mind you the pain has been gone since I took my steroid dose so maybe it wont come back! I hope you have a good…[Read more]

Morning Eve away with the blubells sounds good to me !!Cant think of anywhere nicer in fact As for the offense dont worry we have all done it I am sure and it was probably a minor thing How was Slim last night? Are you able to get any rest? Try and take a little time to recharge your batteries away from the hospital its exhausting visiting anyone…[Read more]

Hi Jean nothing wrong with being a nutcase !! sorry poor humour sounds like counselling was really helpful for you Myeloma affects so many people not just the patient , my poor mum is not the same person since I got mm and she worries so much it affects her health too Snap I have an mri tomorrow too , I hate them !!Pain has disappeared since…[Read more]

Hi Min I know what you mean individually the side-effects sometimes seem not worth a mention but as a total they dont make for a happy life. Peter seems to have been very unlucky as far as his diarrhoea , that must be so depressing. I am at the point where the endless chemo in one form or another can get me down , in almost 5 years I have only…[Read more]

Hi Kathlean and Jean no wonder you are tired and on edge I really do think its easier being the one with mm , husbands and wives are the ones who shoulder the burden .I am about to make a sexist remark so all males please close your eyes!! I think as wives and mothers we are used to being in control of our loved illnesses I am sure you know what…[Read more]

Hi Min yes I agree Revlimid makes life very unpredictable doesnt it !!. I cant say its the easiest of drugs to live with and initially I thought it would be less evil than the others. Has Peter got a cough? I think its all the extra musus being produce rather than infection biut it is turning into a really nasty cough which has me gasping for…[Read more]

Morning Dai how true tis is !!There is nothing better than listyening to Howling Wolf or Muddy Water when you are fed up and realise we aint got it so bad!! As for Leonard Cohen thats for the seriously depressed and works just as well love Bridget

Hi Angelina poor John is really having a rotten time but as you say he is in the best place at the moment. I didnt have any diarrhoea when on Velcade , my problem was severe constipation. It was explained to me that velcade affects the nerve endings in the bowel and intestines in the same way it affects fingers and toes, it sounds as if John has…[Read more]

Hi Angelina thankyou for your caring words. I phoned my nurse today and she is going to make sure the mri report is seen this week and will phone me on Friday bless her!! She has also suggested Fentanyl patches for the pain. But its very strange I have had no back ache this afternoon and evening , thank god,all I can think is the weekly steroid…[Read more]

Thankyou everyone your support means such a lot. Wobbly moment over but I am definitely going to ring my nurse tomorrow as this pain is more than can be blamed on dusting unfotunately !! lots of love Bridget x

Hi Dai good luck for tomorrow . I didnt find velcade too bad at all really , no sickness or nausea but constipation was a bit of a problem, best to take laxatives early on love Bridget x