Hi Dai good luck with the velcade issue , if we all ask about the sub-cu then maybe they will hurry it through here ! love Bridget x

Hi Shirley happy easter to you too love Bridget x

Hi Joe I am so sorry you are having to deal with all this but thank goodness your mums tests were negative As for your own tests I agree with Jean and Gina , tell your mum and dad they probably sense something is wrong anyway. Dont bear the worry all on your own share it with them , they will wnt to be there for you just as you have been for them…[Read more]

I am not dead yet sounds good to me Dai Although in my case stage 3 will be " Are you still here?" !! It would be great if we could all arrange to meet sometime in the future , we share such a close bond on here it would be lovely to meet the people behind the posts ! love Bridget x

Hi Gill thats blooming brilliant!!! See there is always a silver lining ! Now you can have a lovely weekend relaxing in the sun love to you and Stephen Bridget x

Hi Jean that sounds like a lively clinic appointment , you should have had a bet on who was right!! Good news though which is great and the fact tht Franks health is good enough to consider an sct should he need it is great Hopefully it wont be for a very long time Have a wonderful weekend with your lovely new grandaughter , I cant think of a…[Read more]

Happy Easter David hope you and your family have a lovely weekend love Bridget x

Hi Min I am so sorry to hear you had a nightmare holiday !! What rotten timing to get a reaction , poor Peter Glad you got home safe and sound and can relax now though We have been promised sunshine all next week so you can enjoy your garden at least love Bridget x

Hi Dave good luck with your sct Hopefully you wont have too many unpleasent side-effects and be home before you know it It is definitely worth going through Hang in there love Bridget

Hi myelomawife that sounds horrible , it must be awful to see your husband like that and not be able to help Is there no other painkiller? I have never had oxycotin but I do have mst slow release tablets which work really well plus severidin for breakthrough pain If it were me I would ring the specialist nurse to talk it over with her and once…[Read more]

Haha so good to know we are all totally BONKERS!!!…[Read more]

Hi Gill I replied about half hour ago but it has vanished , the first time those gremlins got me!! Blooming laptop fell asleep before I did last night but I am always up till at least 2 and often later The annoying thing is the pn in my feet gets me up about 6 am whether I want to or not . I do hope you can get some rest today and it looks like…[Read more]

Dear Gill I had to read your post 3 times before it sank in my god no wonder you are in pieces! I have been told no more sct either but no-one has suggested giving up hence the revlimid Surely we just carry on with the current and most suitable drug and there must be new trials coming up . Steven and I are the same age and it is so incredible to…[Read more]

Hi Chris these chest infections can be a pain to get rid of ! Arent daughters lovely and its always nice when they come to keep you company, not too sure how I always end up cooking thought!! No I am not in remission When I relapsed and was on Velcade for 3 months but it didnt work So now its fingers crossed Revlimid can do the trick , I am just…[Read more]

Hi Andy we we are all whippersnappers really!! As Debs said the under 50 site is great and I think you will find it helpful but I will look out for anymore younguns ! love Bridget

Hi Chris sorry to hear you havent been well , chest infections are really horrible I am struggling with one at the moment!! Hopefully you will be back on top form soon How are you getting on with the lenilimide? I must admit I am struggling with Revlimid , nothing too major just dont feel great most of the time ,mind you I am not falling asleep so…[Read more]

Hi Andy I think you might be right there , an under 30 group would be a very exclusive one !! I should think you were pretty peed off when they gave you the diagnosis, how old were you?!! To be honest I was 51 and still thought I was too young to have myeloma Take care Bridget

Hi Sarah I am on weekly GSF to boostr my neutrophils whilst on Rev . I do occasionally get pain but for the most part its not a problem Hope Frank doesnt have to put up with it for too long . Is there something else he could have or perhaps a lower dose love Bridget x

Hi Eve I wondered if you have tried Maxi-Joule to help get extra calories into Slim? It is a white powder , tasteless which you sprinkle onto or into foods and it bulks up the calorie count It can be put on anything from mashed potatoes , scrambled eggs , in fact just about anything ! I used to have to use it for my very fussy daughter who has…[Read more]