Dear Gaye no wonder you are cheesed off you have been in agony for such a long while now. I do hope the rt starts to relieve it soon . I agree with you about pain relief though it seems to be hit and miss in some areasIn the days fo;;owing my op I was on Oromorph but I wont take that again as I couldnt stay awake longer than 5 mins I have found…[Read more]

Hi Tracy welcome to our world ! I do agree with Min about the information found on some sites , I know on this site the info is relevant and accurate.Have you checked the under 50s as well , there is also another forum for people under 5o which if you are interested there is a link for either Phil or Scotty if you e-mail them they can invite you…[Read more]

Hi Clara I have those injections too and the best advice I was given is not to rub it and it definitely hurts much less love Bridget x

Dear Roz hang in there Today was a bad day but tomorrow will be better So many of your friends on here are wishing you well and sending good vibes One day at a time Roz love Bridget x

Hi Min I am so glad to hear Peter is still feeling good , heres to a lovely week off!! I have just had the worst 2 days ever!!Still very painful and tender to touch , sewating eyc and all in all I just feel dreadful but as I havent got a high temp I am reluctant to see the docs before clinicThanks to you though I am looking forward to next month…[Read more]

Hi Sandra hang in there I am sure you will get a lovely drug free summer . I do know what you mean though ,at times it just seems never-ending But the sun is trying to shine and it helps to make us all feel better love Bridget x

Hi Ron I do understand how your wife feels as I too have lost 3 inches in height and my appearance has changed completely in the last 4 yearsThe main thing though is that she does not have any bone pain. I am not sure whether they would do this procedure on the basis of appearance but its definitely worth asking Please let us know how you get on…[Read more]

Hi Keith sorry you are feeling lousy All you can do is listen to your body and give in and rest when you need to The taste thing is the worst symptom I think , drives me nuts Perhaps someone should open a restaurant for people who are taste compromised?? Could call it Th e Cardboard Cafe? Sorry I am in a silly mood today Hang in there Keith it…[Read more]

Hi I am sure the french health system is a good one and from what others have said they are well up on treatment of myeloma , but I do think consistency and an element of trust are crucial parts of our treatment It can be difficult if you have to go to another uk hospital during a course of treament , I can imagine the possible problems with an…[Read more]

Hi Nigel welcome to our merry little band !! It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm its that it is a toatally individual illness where the variations in symptoms and response to treatments are unique! Being able to share experiences with…[Read more]

Hi Mavis thankyou for your kind words. I am sure I will be back to normal soon , well as near as I ever am !! take care love Bridget x

Hi Roz thankyou it means a lot when all you lovely people on here cheer me up I dont feel sorry for myself very often ( not much point !) but its great to have friends when you do I am hoping to be able to bear my clothes touching me at least tomrrow , otherwise I will be sark naked not a pretty sight Hope you have a good weekend and you are…[Read more]

Dear Min bless you , it really helps to know Peter is feeling better . I have stopped feeling sorry for myself now , till the next time !! I dont have the runs but my tummy isnt right , I think I read before that Peter is on Lanzoperale so am I Interesting that Zometa has made a difference to the water retention , I realised mine has been…[Read more]

Hi Chris I am glad to hear you are doing well after your transplant A trip to Australia sounds wonderful at this time of year , I bet your daughters were happy you made it Do you have grandchildren as well? I am not sure my tale will be much use as everyone of us is different but here goes— I was diagnosed in 2006 after almost a year of…[Read more]

Hi Min what a pain these neutrophils are I am having the same problem!! Is Peter on the GSF injections ? I have been told its likely I will need one or two a week to keep my neutrophils up. what joy !! I really hope you can get some sun soon love Bridget

Great news Min heres to many happy hours doing all the things you want to do !! love Bridget x

Dear Dai I am so sorry to hear you have lost your dog Its hard to say goodbye to them like that , our 16yr old mongrel put to sleep a few years ago , as you say it happens so quickly. People who dont have dogs in their lives often cant see what a big gap they leave , just the same as any family member . love to you both Bridget x

Hi Sarah its always scary to be told you need to start treatment and at first all the information on side-effects etc is just too much to handle .Please tell your mum to take it one step at a time , life will be different and sometimes its a struggle but it does get better as you get used to the treatments and find what works best for you Its…[Read more]