Hi Sylvia sorry you have had a relapse after a short time , but lots of people have had great results with velcade ,hopefully it will be the same for you When I was diagnosed 4 years ago, after a year of agonising back pain, it was discovered 2 vertebrae had been destroyed and a third was also damaged .Before I could begin treatment for myeloma I…[Read more]

Hi Sharon you must be so frustrated I do hope your leg gets back to normal soon You have done well on oromorph I could only take it for a few days after my surgery as it made me fall asleep all the time , sometimes in mid-sentence! Just a thought have you applied for DLA? You would certainly be entitled with your mobility so compromised and if…[Read more]

Hi Gill that was priceless !!As someone who cant queue without scowling when I am on the lovely dex it strikes a chord!! Perhaps Stephen should wear a hat and glasses for a while in case he is on a wanted list !! Thankyou for starting my day with a smile love to you both Bridget x

It took me a few goes to post my reply to Ron because of inappropriate content!! Eventually realised it was the very hot place some bad people go to when they die !!Haha how much more succinct a four letter word is !Bridget

Hi Ron sorry but Dexatude is a made up word to describe the awful creatures we become sometimes when we are on dex!! It can make you very short tempered at times and impatient ,not very nice for the people around us Hopefully your wife wont have these side -effects though In my case the higher the dose the more likely it is I will be not very…[Read more]

Hi Kay I am glad your doc didnt keep you waiting all day Hopefully you wont have any problems I start Revlimid in a couple of weeks so you wont be alone love Bridgetx

Hi Keith thats a strange one ! I didnt have anything like that on velcade , mind you I wasnt on it as long. I always find dex is the main culprit for taste changes but I would have expected that to be from the outset . Hope someone else can help love Bridget x

Dear Jenny what a terrible time for you all I am glad your dad is in the hospice where he and you will get the best possible care . I hope you do take up the counselling when you are ready to it will help you come to terms with your dads decision I am sure My thoughts are with you love Bridget x

Thank you everyone your support makes everything more bearable. The pain hasnt gone yet but I have had a few hours respite over the last 3 days. I wasnt expecting an instant cure so I am not disappointed Gaye your journey to Barts must be exhausting I could have Zometa at my local hospital bit to be honest its been a long while since I had any…[Read more]

Hi Min sorry to hear Peter hasnt had a good start to his treatment , fingers crossed tomorrow will be better. I hope your sciatica is gone for good , I had it many years ago and it is terrible love Bridget x

Hi Jo lovely to see you at last !!! Doesnt it feel great when you conquer technology? Dont worry about the moon face it irons out the wrinkles !! love Bridget x

Hi everyone well thats my radiotherapy finished !! I have been zapped for five days and it was only on the third that I found a button-through dress to spare my dignity !! As some of you warned I am exhausted , this morning was the hardest I just sat still for hours when I should have been getting ready , so tomorrow morning is a pj one !!In a…[Read more]

Hi Min hope Peter does well on Revlimid and will be watching out for your posts as I start mine in a couple of weeks too It would be nice if they only send me to sleep at night my little power naps are taking over my days as it is so if Revlimid makes me any more dozy I might not even manage to drink a cuppa!! Lucky Peter I am going to be on 20…[Read more]

Dear Gaye I am glad you got week one out of the way without any problems apart from those pesky dex!! The foot massage sounds wonderful too a bit of pampering is just the thing when you feel lousy . I hope they get that back pain sorted very soon and you can dance the night away or run the marathon if you want !! love Bridget x

Dear Gaye how beautifully put Thankyou for sharing with us To a certain extent I am still in denial for a lot of the time too . It was over a year before I even looked at this site In the beginning , like you , I coped by dealing with it on a daily basis and trying to organise everyone else in the family ,as usual. As time has gone on I have…[Read more]

Hi Kay ouch!! there is nothing worse than a painful bmb.Do you have sedation? I would never have a biopsy done without sedation and it should be available to you Good luck with your results love Bridget

Hi Kathleen thank you lovely to have you back I hope you are keeping well love Bridget x

Hi Laura sorry you and your mum are having to go through this but joining this forum was the right thing to do , there are lots of lovely people who can support and advise you There are quite a few of us who were diagnosed around the same age as your mum and a growing number of people under 50 as well It does take time to get over the shock when…[Read more]

Hi Keith great to hear everything is going well . Dex is a monster but it generally does the trick and its wonderful when the pain goes away . Fingers crossed your remaining cycles go as smoothly . love Bridget

Dear Gaye I really feel for you , there is nothing worse. At the moment I take Severodol for breakthrough pain , although morphine based it doesnt knock you out . I also use the heated pads which do help. Hopefully your rt will happen quickly once they have seen your mri results love Bridget x