Hi Sarah your comment about feeliong selfish for working jumped out at me You are most definitely not being selfish and I am sure Gordon doesnt think so either !!In some ways its reassuring when my other haif goes off and does his own thing , it makes life seem more normal if that makes sense On the other hand if you feel the time is right to stop…[Read more]

Hi Gill sorry but as others have already said dex was a part of my recent velcade treatment Mind you it was a fairly low dose taken only 2 days a week so not as bad Stock up on ear plugs , buy yourself an i-pod even and pretend you cant hear for those dex days !!Heres hoping your peace loving hubby wont suffer from too much dexatude though love Bridget x

Hi Amelie great news about Johns remission ,long may it last The only advice I can add regarding infections is to have the pneumonia vaccine which lasts ten years .I had this vaccine 2 years ago and although I did have pneumonia last year it is likely to have been more severe if I hadnt been vaccinated love Bridget x

Dear Roz I am sure it must be very tough for you at the moment .Try and take it one day at a time . What a brilliant amount of money for myeloma uk , you should feel very proud that people who knew Michael felt able to donate love Bridget x

Hi John I would like to add my welcome too , this lovely group of people are the best support you can get . Best wishes Bridget x

Hi Jenny I am sorry to have missed your post until now but you have been given lots of good advice already Would it be possible to take your step mum for lunch or something and try and talk to her on neutral ground. her fears are probably so overwhelming she cant see how you all can help .I hope your dad is continuing to improve , as lots of us…[Read more]

Hi Min I have crossed my fingers and toes too and really hope you get accepted You certainly deserve to do the things you have always wanted too love Bridget x

Hi Michelle I wont tell on you I promise !!! love Bridget x Its the sort of thing my girls would do so now I am off to check their fb just in case there are pics of me in the land of nod ! love Bridget x

Hi Keith I am sorry that you are now relapsed , its a real pig when you hear those wordsBut having heard them myself a few times now take strenghth from the fact that active treatment can get cracking and knock it back again love Bridget x

Dear Roz thinking of you today love Bridget x

Hi Michelle terrific news!! Revlimid certainly seems to be doing the trick for your mumAs for the pain relief I know what you mean . my morphine has just been upped again and I take Severodol for breakthrough but its not that great at the momentHas your mum had radiotherapy? I have an appointment next week with a Professor no less!!!Well I am…[Read more]

Hi Sarah I am glad you have got your admission date now , you will be at the top of the tower great views of London!! I have got quite a few appointments coming up for my radiotherapy so if I can I will pop up and see you Good luck and just remember it really is worth it and you will be home before you know it My recommendation for the boredom is…[Read more]

Hi Ron sorry your wife is feeling rotten ,once the treatment starts to kick in she will feel better Anaemia is very common in myeloma, especially when first diagnosed.I didnt have any negative reaction to the transfusions and it certainly made me feel better. Its all so confusing in the beginning so you have come to the right place to ask…[Read more]

Hi Shirley great to hear you are doing so well not long now till you are home . I know whatyou mean about losing curls though I was upset when mine went last year and when it came back with no curls!! But life would be very boring if our hair stayed the same !! love Bridget x

Dear Roz as David has said you are more than welcome here, you are one of us after all , you have been through every step with Michael. I am sure your experience will be invaluable if you feel able to continue sharing . Celebrate Michaels life and the love you shared on Friday and remember when things get tough he is always with you .love Bridget x

Hi Gill as you know I am also anti-Dex it is a horrible drug ,by far the worst !!So I am glad you have your Stephen back and long may it last!! I am enjoying not being on dex too ,now I just want my body to return to its normal shape Hope you had a good xmas and heres to a very happy and healthy new year love Bridget x

Hi David I know exactly what you mean My tractor moment was doing the washing believe it or not !!It gave me so much pleasure to do an ordinary task myself and the I knew I was home love Bridget x

Dear Roz the poem is so beautiful and moved me to tears too You will do Michael proud My thoughts are with you and Rachel and Lauren love Bridget x

Happry New Year David and all of you great people whom I count as friends May 2011 be a good one for us all love Bridget x

Hi Gavin I missed your post originally but I see you have made your decision now Good luck with the chemo and trial In my experience the care you recieve when taking part in trials is excellentAs for your age being a factor David( Perkymite) has just had his sct at 68 and is doing very well so theres no reason to think age alone would mean…[Read more]