Dear Min when I read your post it made me a little sad You have been a towethat you are able to move on , as you said r of stregth to so many of us , always good sensible advice tempered with kindness , even when things were really tough for you Thankyou for your kindness and wisdom . Whilst you will be missed by so many of us I am pleased for…[Read more]

Hi Dai I will cross fingers and toes that you get that 0.5% you need Good luck love Bridget x

Hi Mavis thankyou for posting your photo its lovely and so nice to see your smile love Bridget x

Hi David sorry you have got landed with a nasty cough hopefullly you wont have it long If your temperature stays on the high side it would be worth a visit to your gp to be on the safe side though. Get well soon love Bridget x

Hi Sarah I am glad Henry has got the date for his sct and I hope they get his infection under control quickly . Having somewhere for you to stay will make it a lot easier for you too just make sure you look after yourself too Hope all goes well and it wont be too long before Henry gets a long remission and you can get back to some normality love Bridget

Hi Jean poor Frank isnt having a good time bless him . I know I had Pregablin and they made me feel very odd and I stopped after a couple of doses too , mind you for the life of me I cant remember why I was on them !! The trouble with shingles is it can take some time to show itself and the pain must be awful I hope others can give you more…[Read more]

Haha sorry me too I should have read your post properly sorry Good luck with the harvest Bridget

Dear Sue thank you for thinking of me when you and Michael have so much on your plate too. I know how Michael feels about not knowing being the worst it is making me nervous too Today is the third day my dex pulse 40 mg a day for 4 days to try and stop the tumour from getting any bigger and crushing the spinal nerves Trouble is dex is just awful…[Read more]

Hi Liz thankyou I feel very lucky to have the support from you and all my cyber friends on here its what makes this site so special Take care and hope you have a good weekend love Bridget x

Dear Mavis thankyou for your kind words you always put things so well from the heart. I am lucky in being mobile still but that causes the medics to panic as I dont react the way they expect me to!! When I was diagnosed they couldnt work out how I was able to walk when 3 vertebrae had been destroyed and this time they are really anxious as the…[Read more]

Hi Terry good luck for Monday it wont be a walk in the park butit doesnt last for ever and to be drug free and have a long remission makes it worthwhile. I agree with David a laptop and phone are essential to stop boredom and you wont feel so isolated Perhaps you could ask if you can take your own pillow in hospital pillows are horrible npoisy…[Read more]

Dear Sue I can only imagine how tough the last few months have been for you both , it really seems so bloody unfair after all you have been through . I hope that radiotherapy does the trick , as you say its been caught early and from what I have read the success rate is pretty high. I can understand how poerless you must feel when there is no…[Read more]

Hi Kerry no wonder you are scaredits so bewildering and frightening at first but it will get better The plasmacytoma can be treated with steroids initially to reduce it and then radiotherapy is amazing at getting rid of tumours , I dont know if thats appropriate for your partner but I am sure his doctors will be looking at the best and quickest…[Read more]

Evening all I have now ordered the laptop from PC World who say I am saving £220 , well dont believe that but I am saving a £100 so very chuffed !! And it will arrive on Thursday yippee !What a difference a day makes love Bridget x

Hi Roberta lovely to hear from you and thankyou for your kind words. Sorry you have been unwell I hopethings start to get better for you very soonStay in touch when you are up to it love Bridget x

Hi Dai sorry I havent got round to answering you yet Revlimid , Velcade and Bendamustine failed to make any impact over periods of more than 3 months Each time a new tumour developed the latest is not the most painfulbut seems to have become very large in a short space of time so a bit scary especially the risk of paralysis I will certainly enjoy…[Read more]

Hi Dai it is such a nuisance when you cant get the results when you need them! Like you I used to be very responsive to blood tests until after my first relapse , since then I have become a non-secretor This is likely to excludeme from some trials as they will be unable to measure performance It is so frustrating so I know how you feel although…[Read more]

Hi Jean I got a bad fit of the giggles reading your post I could just picture it!! The other thing that struck me is how innocent people were in the fifties, so different from now Roll on Sunday evening ! love Bridget x

Thankyou John, David and Min how good it is to have friends who care I am as calm as can be really Had to tell the kids in a very matter of fact way so that they dont panic which helps me get a grip As you say Min tomorrow is another day and there is no choice but to get on with it! Mind you there might be a bit of whinging after 4 days of the…[Read more]