https://forum.myeloma.org.uk/members/brocho/activity/ Activity feed for RochfortBridget . Wed, 15 Apr 2026 05:36:14 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 291283c0a4494e8e2ce8f84a28885b41 http://www.myeloma.org.uk/forums/topic/update-on-michael#post-92733 Sat, 26 May 2012 23:20:50 +0100 Dear Sue I am so sorry to hear things arent going well , no wonder it has hit you hard. Please dont feel guilty , you certainly have no need. Michael can probably see how much you need a break too Try and be kinder to yourself Sue , you are Michaels strentgh and its bound to take its toll , but you do need time away frm myeloma and hospitals etc…[Read more]

]]> 9b1d13ea2be4abecd58df875f7e566e5 http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/3/#post-98784 Tue, 01 May 2012 23:13:46 +0100 Hi Helen and everyone for your kind wishes, I didnt end up in hospital but with another course of oral anti-biotics. B I can honestly say they have only made a minmal difference so I will be taking a bag to clinic this week Most days I cant stay awake for longer than 5 minutes, waliking upstairs is very scary as I am so weak now, probably due to…[Read more]

]]> 27806eaff5255c14914c1cc23260dbb4 http://www.myeloma.org.uk/forums/topic/pain-of-trapped-wind#post-104375 Tue, 01 May 2012 21:14:36 +0100 Hi Tina trapped wind is awful so painful!! Try peppermint cordial with freshly boiled water and rink it as hot as you can You might have to look in the drinks department at supermarket or an off-licence as its not so popular as it was Good luck hope it works it does for me love Bridgetxx

]]> b67ec8cb8c1305d7f1571200bebb7dc1 http://www.myeloma.org.uk/forums/topic/postboned#post-107578 Tue, 01 May 2012 21:06:03 +0100 Dear Eve and Slim my thoughts and wishes are with you and all of your family To lose someone so special to you all must be devastating , stay strong together and remember the love you gave and were given Lots of love Bridget xx

]]> 39fc291d3643e78a529dc93cb3f751ee http://www.myeloma.org.uk/forums/topic/swollen-ankles#post-92460 Tue, 10 Apr 2012 23:50:25 +0100 Hi Ian glad your ankle problem wss sorted out quickly and simply It sounds as if you have a really good doctor which makes such a difference When I have had unexplained pain, such as you have under your arm, my doctor always offers an mri to reassure me which I think shows they see us a whole person not just a set of symptoms . Heres to your CR…[Read more]

]]> e8e57b6920b2cb547a3ce67b3614618b http://www.myeloma.org.uk/forums/topic/ah-so#post-104438 Mon, 09 Apr 2012 20:56:09 +0100 Blimey Dai you dont do things by half!!Thank goodness you have Janet watching out for you she must have been so worried . I think the sweats are likely to be Revlimid , when I was on it I would pour with sweat at the least exertion and I still have the same problem now I am on Thalidomide. It does get very embarassing but I suppose there are worse…[Read more]

]]> 317de6ec5d0ecdb5e609f935cba27660 http://www.myeloma.org.uk/forums/topic/fashion-faux-pas#post-110256 Mon, 09 Apr 2012 20:13:55 +0100 Hi Jean well thats a coincidence , they probably wouldnt be too chuffed if it happened in ten years time ! They are both so beautiful such lovely eyes Hope you are having a lovely Easter love Bridget x

]]> 09f57146ee21c5d1ac00c668c52befe5 http://www.myeloma.org.uk/forums/topic/pig-in-a-poke#post-110249 Mon, 09 Apr 2012 09:36:40 +0100 Hi Eve yes my eldest daughter is fast becoming just like me but she cant see it ! I realised years ago that I sounded more and more like my mum, although Idont want to end up saying the strange things she does since her stroke!! Still thats what makes the world go round and keeps history alive which I am glad to be part of love Bridgetx

]]> 7b3714f7fe809741052cbc2f3e27558f http://www.myeloma.org.uk/forums/topic/pig-in-a-poke Mon, 09 Apr 2012 02:00:02 +0100 Hi everyone just thought I would ask you all if I am normal or just weird as my children and grandson claim !! We were chatting about something one of my daughters had bought when I said " At least you didnt buy a pig in a poke" after much laughter and me explaining it was a saying and what it meant they then ,listed a lot of other things I say…[Read more]

]]> 03ab6c0e676fba061ffff73702232e10 http://www.myeloma.org.uk/forums/topic/bereavment#post-107559 Mon, 09 Apr 2012 01:35:46 +0100 Hi Stephen I relied on the newcomers page Bridget

]]> e96bdf88e5967769c16c4bd1d399acc3 http://www.myeloma.org.uk/forums/topic/back-to-fight-another-day#post-99126 Mon, 09 Apr 2012 01:30:24 +0100 Dear Mavis I have not been up to speed on here lately as I have been a bit unwell so sorry I havent sent you a message. You have really been through the mill yetr your "smile" shines through still . I am glad you are getting your pain sorted even if the juggling does take a bit of time. It sounds as if the hospital is good at getting you the…[Read more]

]]> 27601722bdcedecaefc35489999e15b5 http://www.myeloma.org.uk/forums/topic/immucin-vaccine#post-99133 Mon, 09 Apr 2012 01:15:50 +0100 Hi Keith thankyou that does sound very promising, hope it gets the green light even if it takes 6 years. As you say if it came to it whats a flight to Israel compared to a good result. I knew I should buy a Proper Newspaper on Sundays then I wouldnt miss gems like that But those Sunday Trashies are hard to resist !!!! Take care and hope you are…[Read more]

]]> 9a37b2e5ebe94ecb3c09d154f2ea6fd2 http://www.myeloma.org.uk/forums/topic/swollen-ankles#post-92458 Mon, 09 Apr 2012 01:08:59 +0100 Hi Ian swollen ankles does sound like water retention , worth getting it checked out. I always get swollen ankles and calves when on Dex or Prednisalone . Ferusamide tablets are used to get rid of excess water and you should put your feet up as high as possible when sitting, doesnt mean you get to bew fed peeled grapes though!! Keep drinking lots…[Read more]

]]> 0c958d8f2120b4e43f59434c392a477a http://www.myeloma.org.uk/forums/topic/dawn#post-85771 Mon, 09 Apr 2012 01:01:24 +0100 H i Stephen I am so sorry for your loss Dawn must be missed by all who loved her but for you it must be like losing the other half of you As Eve said hang on to the good times and talk with the children about Dawn a lot it will help you all. How very generous of all your friends and family to have raised all that money for M.M.U.K I for one am…[Read more]

]]> 930a82b32203e906a2b0c066caaa4ecb http://www.myeloma.org.uk/forums/topic/what-to-do-now#post-107557 Fri, 06 Apr 2012 10:54:13 +0100 Hi Nicola lovely to hear from you Wow what a wonderful turnout for your dad you must have felt so proud of him. When I was very young I was scandalised at people smiling and laughing after a funeral its only as I got older I realised its such a necessary part of the grief process Those laughs and stories told at your dads wake are more precious…[Read more]

]]> 3b69dce87305ee6121532b983967ab33 http://www.myeloma.org.uk/forums/topic/heres-hoping-for-some-normal-pain#post-99108 Fri, 06 Apr 2012 10:47:29 +0100 Morning Dai no wonder you have been losing sleep there is nothing worse than having a pain you dont know the cause of . I must admit I am very surprised your doctor dismissed your concern without even doing an x-ray . I think you are right to insist on examination of your shoulder as soon as !If it is mm then it does not necessarily mean your…[Read more]

]]> ebd84ce647279d1c685a2992ba63dcc8 http://www.myeloma.org.uk/forums/topic/joint-pain#post-104422 Fri, 06 Apr 2012 10:39:11 +0100 Hi Kay I agree with whats already been said , you need to be kinder to your body !! Your determination is incredible but you have been through the most challenging treament and your body does need time to recover If you push yourself too hard now you could delay you recovery rather than speed it up so please listen to your body and rest when you…[Read more]

]]> 8258f6121753e2df9a3ee98af2aa2b5d http://www.myeloma.org.uk/forums/topic/hello-to-you-all-x#post-92450 Fri, 06 Apr 2012 10:32:55 +0100 HI Gina its so good to hear from you although I think we would all have understood if you felt unable to post again. You and your family are doing brilliantly as you have all the way through your mums battle with myeloma The memories will get easier with time and there will be more smiles than tears just hang in there. I thought of your mum last…[Read more]

]]> 1887aa251fbfe26585dcdafcd4b98a9e http://www.myeloma.org.uk/forums/topic/tiredness#post-105663 Thu, 05 Apr 2012 12:52:12 +0100 Hi Eve and Dai thought I would join your conversation about morphine! Like you Dai I have been on it constantly for 5 years now The dose has increased from the early days as my pain has increased I have always worried about being so reliant on it but Iknow I cannot manage without it . I take 165mg of slow release Oxycontin twice a day, no need…[Read more]

]]> a1420aeb2946fa1373474c25b83f3d5e http://www.myeloma.org.uk/forums/topic/sct-completed#post-99103 Wed, 04 Apr 2012 00:58:03 +0100 Hi Sarah I am so pleased to hear Henry has done so well You must be relieved he got through it so quickly The hard bit is having patience now and learning to rest when your body tells you to Hope Henry gets a verry long remission love Bridget x

]]> fa2ac1649f9f1b895f7d2105c9f2ccb6 http://www.myeloma.org.uk/forums/topic/dont-google-it-i-couldnt-even-spell-it#post-85752 Tue, 03 Apr 2012 10:49:53 +0100 Hi Neeli as I read your post I found myself getting angrier by the minute There are several people who have had to wait over a year as has already been said gps are unlikely to see a case of myeloma Thankfully M.M.U.K is working very hard to make gps and other professionals aware of myeloma. I also had to wait over a year for diagnosis , many…[Read more]

]]> 3b6df4399056e1422d78b2d8a5102b76 http://www.myeloma.org.uk/forums/topic/just-giving#post-110243 Sun, 01 Apr 2012 00:57:47 +0100 Hi Dai I am not at all surprised that you and Janet have such a lovely kind ,caring daughter as your compassion and giving nature shine off theses pages You must be so proud . I have never had lofty materialistic ambitions for my children , I raised them to be good people and I am also very proud of their care for others If they had made a forune…[Read more]

]]> 853b3904e23c99dc365d9a4c194cbb56 http://www.myeloma.org.uk/forums/topic/just-made-it#post-99095 Sun, 01 Apr 2012 00:49:18 +0100 WooHoo Well done Slim thats the way to do it !! Worth being shattered for . Like you we have quite a journey to the hospital . as you say its cost as well as time so the team at UCH always try and schedule as many tests in one day as they can Although you get home exhausted at least you havent got to face it all again the next day. Well not too…[Read more]

]]> f01d0617abbb702184e18572784c4381 http://www.myeloma.org.uk/forums/topic/another-3-months1333128671#post-92407 Sat, 31 Mar 2012 20:58:04 +0100 Hi David it always makes my day to read a post like yours. Heres to many more posts like it and hopefully they might give you a longer time between clinic appointments Go and enjoy yourselves lots of love Bridget x

]]> 671f1c013a1d92c106a64be9dae76e7f http://www.myeloma.org.uk/forums/topic/relapse-after-5-years/page/3/#post-85714 Fri, 30 Mar 2012 01:48:36 +0100 Gill you certainly arent the only one !! We all have our way of handling things . I know that if Jeff ever said that I would freak out , yet its ok for me to say it !! love Bridfget x

]]> 0fd6abd37ad89d4052a3667f189f9360 http://www.myeloma.org.uk/forums/topic/fuel-bills#post-110207 Thu, 29 Mar 2012 00:35:02 +0100 Hi Paul well we all need to claim what we are entitled to these days, I am still looking for the letter with the name of the scheme on it though!! So pleased you got sorted at least thats one less worry for you and Rachel Scotland sounds good have a great time and post some pics to make us jealous love to you both Bridget x

]]> 4f473c4475f33cae10a39566dd338d0e http://www.myeloma.org.uk/forums/topic/new-birdish#post-92386 Wed, 28 Mar 2012 22:10:16 +0100 Hi Kirsty a big welcome to you although this site must be the last place you thought you would need. I am glad you found it though as it will help you get your head around being diagnosed with myeloma Try not to look elsewhere on the internet as a lot of the info is out of date and some of it is just plain scaremongering You must still feel…[Read more]

]]> d0eebe94fd45da11e53124afa01b0308 http://www.myeloma.org.uk/forums/topic/board-activity#post-110209 Wed, 28 Mar 2012 17:27:17 +0100 Hi Dai funnily enough I have been thinking the same thing lately I really miss the chatty lighthearted moments on here This board is brilliant for finding out facts re mm and even more so for support but its so nice to be amongst like minded people and relax too. I probably have been a bit quiet lately si I will get back to normal I think love Bridget x

]]> efe3f730011c8c1cf472e7580bde6ef2 http://www.myeloma.org.uk/forums/topic/fuel-bills#post-110204 Mon, 26 Mar 2012 09:48:10 +0100 Hi Eve the media furore is what prompted me to be concerned I find it very disturbing that people can be misled by a few emotive headlines without looking at the facts Hopefully common sense will prevail before things get any worse love to you and Slim Bridget x

]]> 076002da42295c9c07d1589a9a3b5d1c http://www.myeloma.org.uk/forums/topic/my-beautiful-brother#post-107537 Mon, 26 Mar 2012 09:44:00 +0100 Dear Jean I am so sorry your brother has gone From your description he sounds like a lovely man Hang on to a lifetimes memories Jean he will always be a part of you . I hope Alex is able to celebrate her birthday too I hope you can take some comfort that you were able to be with him Jean . lots of love Bridget x

]]> fa15c9f91f321b31c0c1d78faa9b0102 http://www.myeloma.org.uk/forums/topic/will-there-be-anything-else#post-99022 Mon, 26 Mar 2012 09:33:59 +0100 Dear Gill what a bugger!! I really hope it turns out to a minor blip ! Gill having been at the point Stephen is on more than one occasion my advice is dont panic yet ! Stephens doctors will be actively looking for the best possible trerment for him There is radiotherapy as one possible option , longer term there is Bendamustine which although it…[Read more]

]]> 0f27700f7211140a60c2ecc992714dbd http://www.myeloma.org.uk/forums/topic/fuel-bills#post-110202 Mon, 26 Mar 2012 01:03:02 +0100 Hi Dai you are so right the lack of information to people who could be eligible for benefits is a disgrace Especially when there are politically engineered media campaigns to shop benefit cheats, the latest being anyone claiming DLA It makes my blood boil that they think we are all so gullible and stupid and could be conned by these manipulations…[Read more]

]]> 798ac96f973fa4d72a3eaa70e8005fc0 http://www.myeloma.org.uk/forums/topic/fuel-bills Sat, 24 Mar 2012 23:33:42 +0000 Hi everyone just thought I would share my latest find with you all Apparently every fuel company has a fund with which to help those suffering hardship I think the criteria is if you are elderly or chronically ill eg cancer, registered disabled you can apply for a one off payment of £120 to help with electricity costs . All it took was a phone…[Read more]

]]> 3513c5f43ab86f4ea62e16a1b8e272b1 http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/5/#post-98822 Sat, 24 Mar 2012 23:17:50 +0000 Hi Tom sorry didnt see your post this morning, mind I dont see much in the morning I am a bit like a zombie before 10 am !! Thats the trouble with Thalidomide it totally knocks me out at night and I am useless when I first wake up!! You wouldnt believe the times I have dozed off with a cuppa in my hand If I shut my eyes my grandson usually…[Read more]

]]> 990102965e10744810d12480f576554f http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/6/#post-98824 Sat, 24 Mar 2012 23:08:27 +0000 Hi Carol sorry to hear you are having pain trouble it can really get you down cant it Still great news that the mri ruled out anything nasty though Hopefully this spell of warm weather will help a little If nothing else the sun makes us all feel a bit more cheerful Keep smiling your lovely smile love Bridget x

]]> 0c64f385a64572574ec91866ee55ebf8 http://www.myeloma.org.uk/forums/topic/dr-terry-wahis-highly-recommended#post-92363 Sat, 24 Mar 2012 23:03:30 +0000 Thanks Dai it never hurts to be reminded how important it is to eat healthily love Bridget x

]]> 29ee42b2cae37c5985ebd8fa0de86d10 http://www.myeloma.org.uk/forums/topic/toms-jubilee-walk-for-myeloma-uk#post-92370 Sat, 24 Mar 2012 23:01:30 +0000 Hi Tom and welcome to the best support group you could wish for Good luck on your walk I look forward to hearing how you get on Bridget

]]> 151abd91094a1aa8e816918d4cb6529f http://www.myeloma.org.uk/forums/topic/10-march-2012#post-107512 Sun, 18 Mar 2012 23:42:08 +0000 Dear Michelle I am so sorry you have lost your husband far too soon to this lousy illness . It must be a comfort to know all the people who loved him were with him at the end The days ahead will be hard for all of you but together you will get through it Hang on to those lovely memories of your life together . Although Phil is not here physically…[Read more]

]]> 03b4233d72c80a260896a1feeb8cf982 http://www.myeloma.org.uk/forums/topic/dexalicious#post-104404 Sun, 18 Mar 2012 22:17:47 +0000 Hi Dai the lovely Dex a necessary evil we love to hate!! I have had the mouth tingling too , not too troublesome though just a minor annoyance . I also have trouble passing water at times which I found puzzling but I think you have hit the nail on the head it is likely to be Dex I just hadnt thought of it before Both these side-effects are just a…[Read more]

]]> 58f1977c90f883af13a89cefd813328c http://www.myeloma.org.uk/forums/topic/rip-dad-140312#post-107504 Sat, 17 Mar 2012 01:13:08 +0000 Hi Nicole I am so sorry you didnt have longer with your dad but take some comfort that he is no longer in pain . He was with the people he loved and that must have meant a lot to him .He will always be with you try and remember all the good times to get you through As Helen said live your life well that will be the best tribute to your dad Stay…[Read more]

]]> f3c4c82764c8bbf8f1db3f75935a1c14 http://www.myeloma.org.uk/forums/topic/so-far-so-good#post-99002 Wed, 14 Mar 2012 01:33:06 +0000 Hi Dai I am so pleased for you It is such a boost when test results are good and as you said now you know Rev and Dex are getting on with the business of getting the beast back in its lair!! I hope it gets rid of your shoulder pain quickly , no wonder you were feeling down pain like that is so unrelenting Heres to the future Dai its looking good…[Read more]

]]> 6a55c78c031418d7719f13e46afed05f http://www.myeloma.org.uk/forums/topic/sudden-sickness#post-104381 Tue, 13 Mar 2012 00:37:11 +0000 Hi David hope you start to feel better very soon love Bridget x

]]> a52ea8e451fa1df9a2304176d9917400 http://www.myeloma.org.uk/forums/topic/relapse-after-5-years/page/2/#post-85705 Tue, 13 Mar 2012 00:28:37 +0000 Hi Janet no wonder you are devastated five years is a long time to be in remission As Nettie said though there are so many new treatments available now and more in the pipeline which look promising Remember your doctors can suggest a treatment but the choice is yours! If you really dont want to go through an sct again they will suggest other…[Read more]

]]> 183bd78c537339747c07c2cac1c6f80e http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/5/#post-98810 Mon, 12 Mar 2012 23:56:02 +0000 Hi Dai I second that the world is definitely a nicer place for all of us if the sun shines!! Like you I dont miss alcohol To be honest I only drank on rare occasions , mainly because it acted like poison and caused 2 day hangovers from hell !! No problem when I was young and out all the time but my consumption dropped when I had children and it…[Read more]

]]> 65ef923a5d5eb4cf9bae000076e5c391 http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/5/#post-98808 Mon, 12 Mar 2012 21:40:10 +0000 Hi Tom I am not too bad thanks You are so right about the warmer weather nothing makes me more miserable than being cold!! A little sunshine makes everyone happier , even getting served in a shop is nicer cos the staff smile back at you on a sunny day!! Unfortunately wine is a no-go for me , I havent had a drink since I was diagnosed 5 years ago ,…[Read more]

]]> 83c65b8ea1c9487f59c1d9749ad10f1d http://www.myeloma.org.uk/forums/topic/new-need-to-talk#post-106273 Mon, 12 Mar 2012 10:04:01 +0000 Hi Helen I know what you mean about facebook I dont think I could handle tweeting just cant get my head around it somehow!! I hope you shake off the pneumonia very soon it makes you feel wretched doesnt it Like you I was never ill till myeloma reared its ugly head but I have had pneumonia twice in the last few years I suppose chemo is as much to…[Read more]

]]> 6a2eb9163c2d92dd4275c4484ca4b85a http://www.myeloma.org.uk/forums/topic/new-need-to-talk#post-106271 Mon, 12 Mar 2012 10:04:00 +0000 Hi Helen this week has certainly been better than last !! I am coming to terms with the situationbut at the same time there are some questions I need to ask my doctors about possible treatments. I was thinking tonight that it would actually be easier , in some ways, if I were less aware about mm and the implications of various treatments , we…[Read more]

]]> 89bda034e63a82af5884bd3e8045159c http://www.myeloma.org.uk/forums/topic/new-need-to-talk#post-106269 Mon, 12 Mar 2012 10:03:58 +0000 Hi tmc? as Helen said you are not burdening anyone we are all here for each other and most of us will need to let it out sometimes . I can understand a little of how you feel as since my diagnosis 5 and a half years ago I have been on every possible treatment since my sct All have failed to work for more than the shortest time and now I have no…[Read more]

]]> afbbc1686e96afd1e1303b38efd7b2b1 http://www.myeloma.org.uk/forums/topic/cdt-then-pads-now-dt-pace#post-98952 Sun, 11 Mar 2012 21:29:44 +0000 Hi Andy good luck for Tuesday hope you dont have too many side-effects love Bridget x

]]> c7b94260114d2ff564899dbe2a102028 http://www.myeloma.org.uk/forums/topic/here-we-go-again-/page/4/#post-98806 Sat, 10 Mar 2012 23:50:28 +0000 Hi Debs thankyou and please dont be sorry for not seeing the post I have seen your facebook posts and its great to see you are getting back in the swing of things and feeling beeter than a few months ago So I am glad that you havent got time to come on here You are doing amazingly with your ball preparations I am totally in awe as I wouldnt know…[Read more]

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