Hi Paul

Just hoping that things are going a little better and that your not feeling too rotten.

Thinking of you lots with fingers crossed for you both.

Best wishes

Love Carol xxx

Dear Siobhan
Thank you so much for making such a brave effort to come and tell us about your Mum. To say she will be greatly missed is such an understatement as you, better than anyone else will know.

I think you must be very much like your lovely Mum and I know for sure that she is very proud of you. Keep listening as I know she will keep…[Read more]

Dear Siobhan

Although I spoke to your mum on the phone I never met her in person.

You have thanked people on here for being her friend but believe me she was a true friend to all of us and will be sadly missed.

Like others I have cried buckets since hearing of your mum's death. She was always one of the first to greet you when you…[Read more]

I am shocked and saddened to hear of Bridget's death. She was a friend to all of us, an avid poster and will be sadly missed.

We maybe saying goodbye to her but I am sure that we will always remember her. I know that she was an avid knitter of headgear and crotchet She made hats for many people on here for when their hair was not their…[Read more]

Hi Kay
Sorry for the long delay in reply but only just popped back on the website as we are staying in Spain for a couple of weeks to see if it helps the pain I have in joints and bones.

Glad to hear that slowing down is helping. I don´t have to go out to work now but I do look after quite a big house and two VERY big horses. My husband is…[Read more]

Dear Dai

Thank you for your reply. Stephen had shingles a little while ago and was in great pain so I am sorry to hear that Bridget is suffering with it and having it effect your eyes must be horrendous. When Stephen was told by one of his chemo nurses that some people get it in their eyes he felt very lucky that it was only down one leg and…[Read more]

Hi Liz
So sorry that you have had the news that all of us who are post transplant dread getting . it´s back. I can only imagine what a blow this is to you both but you sound pretty practical and a great coper.
Hope the treatment goes well and that you have better news soon.
Best wishes to you both
Carol xxx

Hi Antoinette

I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.

I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.

If it helps, I was diagnosed with this rotten…[Read more]

Thanks and apologies

Thank you all for your good wishes and sorry for my bad language.

I very rarely use those words (never anything worse) but when angry enough well— you saw the sort of thing I burst out with and believe me I am so so angry. This illness is such a horrid insidious thing. It does bring out anger.

Thank you to the…[Read more]

It sounds as though you are moving on Roz.

Good luck for the future

Gill x

I have not been on here for a while as we were away and Stephen (mm person ) was not very well.

I was concerned not to see Bridget on here.

I do hope you are feeling a little better Bridget. Do post if you can and I think I speak for all of us when I say we are thinking of you.

Much love Gill xxxx

Gosh such memories SCT, Prof. Schey, Davidson ward, limited allowable foods (a great many eggs hard boiled for 10 minutes, salad cream and a few other bits) Always a daily paper.

We are not too far from Kings (we live in Orpington Kent) but still a darned long walk from Denmark Hill station to Kings.

Good luck to everybody with SCTs coming…[Read more]

So nice to hear from you Min

I am pleased that you moved on but have missed you no end, especially missed someone to moan about regarding our 2 naughtie little Westies (I swear they get worse and Stephen spoils them more and more)

I hope your sight remains OK (I am very, very short sighted and know one day I will be told to stop driving etc…[Read more]

Hi

We have been in France for the last few weeks and Stephen (mm husband) was not very well but although we have internet access it is not always there (blinking French countryside!!)so I am only just catching up with the posts on here

Gail your post really hit home. Dexemethasone is the most evil drug in the world. It does a great deal of…[Read more]

Welcome Rosie
Wow! you sound as if you are a real seasoned campaigner – after going through so much I can understand how you might not want to go through another STC – not much fun I do agree.

Glad to hear your coping with everything in such a brave and positive way – you must have picked up lots of information and experience along the…[Read more]

Hi Vicky – that´s the very question I would like to know the answer to.
I have decided that because the cancer didn´t develop fully until I was 52 after my stem cell transplant in February it might take another 52 years to come back again!!!! (Well one can dream).
Please let us know if you do get an answer.
Cheers
Carolxx

No Problem Gail I think your very brave to be coping so well.
Take care of yourself too and try and have a little treat every couple of days – even if it´s only a chat with a girlfriend or doing your nails!
Love Carol
xxx

Hi G
So sorry you had to join us but there are lots of good people on this site who have lots of experience of just about every emotional and practical aspect of coping with MM.
It´s nice to know that you can always come on here and ask/say the things that maybe arn´t quite so easy with family and friends. I really have found it a real s…[Read more]