Best of luck with your SCT Carol. I hope it goes really well for you

Kind Regards Gillx

I am so sorry that your dad has reached this stage of mm so quickly. Love and prayers for you and your family Gill x

Dear Joe

I am so sorry for your loss. Please read Min's post "a week of firsts" It is my husband that has mm and sometimes I dread what the future will bring but life will continue in some way or other.

Please stay in touch on here. I know that everybody on here has you and your mum in their thoughts

Kindest regards Gill x

Hi James

My husband was a fairly regular visitor to the gym but had to stop when he was 53 because of mm The trainers had never heard of mm and could only suggest a regime that people with heart problems follow. It was not at all suitable for Stephen as he has collapsed vertebrae

David is right but swimming was out for Stephen as to his…[Read more]

Hi Eve

We live in Orpington and when I visited Stephen in Kings found the train the easiest option 10 minute cab journey to th station this end an a down hill walk from the station to the hospital more difficult back to the station but not lumbered with strange desired morsals of food:-) I hate driving in London and found parking was expensive…[Read more]

Hi Dave
Sorry can´t help with your specific question but did just want to welcome you to the site as we haven´t met here before.
Sorry that your pp is on the rise but over the years prior to treatment (I have had one SCT) my pp fluctuated quite dramatically usually when I was under stress and as soon as things settled down at work etc. so did t…[Read more]

Hi Dave

As you will know mm is a very unique cancer and no 2 people seem to react to either the illness or the treatment in the same way.

Stephen was diagnosed when he was 53 . Unfortunately, although his SCT harvest was really good, he got less than 18 months remission. There were plenty of stem cells left for his second transplant but it…[Read more]

Hi All
Hope this finds you all as well as you can be.
Strange how chemo changes how our hair is. I ought to update my photo as this one is the "before" and it has now come back curly which makes me look as if I have had a perm if there is any damp at all in the air!
Anyway, I might keep this to encourage me not to chop it off when I am fed up…[Read more]

I am in tears over your post but do understand. Who will advise me over our 2naughtie Westies? Who will be there instead of you?

Good Luck Min. I wish you all the best. I am sure that Peter was a rock for you but he was also a lucky man to have found you

Gill xxxxx

Wonderful news Tom

Congratulations and love from Gill xxx

Hi Bridget

What a bummer. Stephen had radiotherapy for pain and when the pain came back was told the same as you They cannot zap the same spot twice. He had spent a week saying that the radiotherapy had made things worse ( he was told it would be worse before it got better) and then at least another week wanting to marry the guy that prescribed…[Read more]

Hi Sarah

Just wanted to wish Henry the very best of luck My husband had 2 SCTs and had very little side effects (oh boy did I take some strange edibles to Kings College Hospital)

One tip When you get him home serve him tiny amounts of food on a side plate It doesn't overwhelm and he can always have seconds. Stephen craved home made Shepherds…[Read more]

So sorry that you have had to join us but welcome. My husband has had 2 SCTs but relapsed quite quickly . He is now on revlimid and (fingers crossed) it seems to be keeping the mm under control.

We were told some time ago that mm is regarded as quite sexy in medical circles ie. It is an illness that doctors are very interested in and are…[Read more]

Hello Jean

Hi jean sounds inapprpropriate 🙂 The rash that you described is just the same as Stephen got to start with. He had been pruning our wisteria using a small scaffold tower and slipped. He landed on his bum and as the day progressed it became painful. He asked me to have look (the things we do for love) it just looked red but no…[Read more]

Nice to have met you in name even better face to face. You have made me feel guilty my picture is quite old I always loved it as Stephen is pinching my bum off camera hence the giggles:-) . I must post a more updated photo. Me fatter and Stephen with less hair. Before chemo his hair grew backwards now it grows forward

PS did you know that you cannot get shingles unless you have had Chicken Pox?

My husband (Stephen was diagnosed in Nov 2008 aged 53 ) has shingles at the moment. He is in agony. It attacks the nerve endings and causes a huge amount of pain. He is sore but he says he can put up with that but the pain is v.v. Bad (this from a man with several collapsed vertebrae who has to rely on walking aids to leave the house and does not…[Read more]

Sorry to see you here but a huge welcome

Gill x

Hi Vic
Welcome – glad to hear from you but sad that it is under these circumstances. I too have a problem with discs and they are monitoring to I will be interested to hear anything too about this procedure.At the minute I am managing with Tramadol with the occasional top up with a little bit of oramorph but even still I have pain.

Best…[Read more]

Hi Terry
I was on the machine for two days and with the needles in each arm and having been asked to lie flat ant to try not to move around and disturb things I couldn´t do much other than snooze and chat to lovely hubby in between.
The only difficulty I had was a lack of calcium but they gave me an injection and a couple of glasses of milk…[Read more]