Hi Helen

Had my transplant in February 2011 and we seem to have had a similar recovery history. I don´t know why my specialist thought I was too "fragile" to carry on with Revlimid although I had lost over 10% of my body weight and generally felt rotten and miserable – also tingling feet etc. My dose was 20mg which I felt was too high but we…[Read more]

Hi Amelie and Helan
Yes, I am in the UK Amelie and as Helen explained I was on a drugs trial and so was provided with Revlimid. What treatment are you on Amelie?
To be honest I´m not really convinced that the Revlimid was to blame but I just never seemsd to "bounce back" too well after the SCT but I do remember that I was just beginning to…[Read more]

Hi – hope the meds are helping with the bone pain. Regarding the tingling feet etc – I have had this for about a year since I have had all the Chemo – lots and lots including Velcade and Revlimid. I describe it as having an electric current though the soles of my feet and although irritating can´t say mine is too bad as the back and general…[Read more]

Chrissie, so very sorry for your terrible loss. I lost Michael to cancer (brain tumour he was 42) twenty years ago. That terrible grief does pass please do believe me and hang on. The best advice I was given was as follows: Concentrate on just breathing and eventually the rest will follow, and don´t on any account make any serious decisions…[Read more]

Eatery (it's been ages since supper)

Fantastic news. Remission is a wonderful word to hear. As for SCT I believe that everyone is very different. Stephen sailed through his first SCT and felt quite guilty as others felt awful, But he was one of the unlucky ones and got very little remission from it
Fingers crossed and the best of luck

Fingers crossed for John I know that in Stephen's case his blood does not give a very bad pp reading but his "boney" damage (spine, hip rib and sternum) tells all.
Good luck gill

Hi Nicola

Glad to hear your dad is improving. You are a super daughter and he must be so proud of you. Please try and look after yourself too although I know it´s really hard when life is so difficult and busy.
Best Wishes
Carol

I have no idea what to say to you but just want you to know that my thoughts and prayers are with you.

MM is a beast of a thing for anybody but for your loved one at his age it is even more unfair

Gill

not been on for a while as in the deepest of France but how wonderful to log on and hear good newa Well done Carol xxx

I will catch up with all posts when I can Here we are stuck in the last centuary lovely people but nobody is surprised when the water or electricity goes off.

And no we didn't buy in this area because it is quaint the…[Read more]

Hi All

I thought I would post an update on how Stephen is faring on the RCD regime. He seems to be coping with this combo quite well. His pp levels have dropped and the "dexatude" is nowhere near the level it was when he was on a higher dose. It was such a shock to come accross "dexatude" as you could not ever ever meet a more laid back and…[Read more]

I'm so hooked on this silly game I end up like "billy no mates" and play by myself

I did think of putting ave and ave nots:-) but that is silly (even for me so I will go with

VOLATILE

ILE

Second from the right????

I have heard of the supplement you mention Min I wish I had remembered it before I got this heavy cold. Stephen (MM person) sniffed twice sneezed once gave whatever it was to me and I got the horrrid horrid cold (so pleased it wasn't him that got it)

I digress think of a word ??

ARCHITRAVE

for the next leaves

AVE

OK I am not an mm person, but married to one. He got a "bit of a cold" I was petrified that it would turn in to all the dreaded stuff that goes with mm.

Result ?? He's fine (thank goodness) I have the mother of all colds.

Sometimes life gives one the ablity to moan and moan and moan (gues what I'm doing) HEY I have MAN FLUE and I am…[Read more]

Are we late birds or insomniacs

I am not sure if places are allowed (told you all I had no idea of any rules)

But I will go for an island that for years I thought was in the Channel (my family settled on Jersey years ago and I STILL have no idea of the geographical layout.

OK I now know that this island is somewehere north:-) (OK very…[Read more]

I don't think it matters what has gone before as nobody seems to remember. (I told you there were no rules)

I am not going for ion as an ending but cannot think what else to do!!!

Hold on. Gill puts thinking cap on, wishes she hadn't logged on so late and comes up with??

???

????

OK not that good but

NEEDLEPOINT

[b]INT[/b]…[Read more]

Hi Bridget.

In my life knitting, sewing, embroidery and watching paint dry had about the same attraction for me as poking my eyes out with red hot needles.

[b]BUT [/b]I am [b]SOO[/b] pleased that your particular mojo is working again and you are enjoying doing things that bring you pleasure.

[b]YOU GO GIRL[/b]