Hi Mari
So sorry that you have had such an awful shock. I had a similar one a few years ago and then it went down again after a couple of months. At the time I personally put it down to the shock at the loss of my son in law in a road traffic accident (aged only 32 and Daddy to a little boy aged 5)but who knows with MM? – not sure even the…[Read more]

Hi Terry and welcome although I´m truly sorry that we are meeting here!

You really have been through it I´m afraid haven´t you? I was going to mention Revlimid (which seemed to work ok for me apart from the side effects and it brought my paraprotien level down prior to SCT but I have just read Scott talking about it to you. Might be worth as…[Read more]

Hi Ted
So glad to hear that you are continuing in fairly good health – long may it continue!
We live in Halifax and I am beginning to think that it´s going to rain forever here!

Take good care of yourself.
Love Carol xxxx

Please accept our sympathy and very best wishes at this very difficult time.
Carol Bradley

You are not a burden Mari I am so sorry that Steve did not have better news but hold on in there the figures might change. When do you see the consultant again?

I am sure that we all have our cyber fingers crossed for you both.

Do keep in touch Good luck and love from Gill

Yuck Roz I hate kedgeree 🙁 But what a great word for the game

ERRONEOUS was my first try but, thinking it might be a bit too racy, I thought of ERSTWHILE.

I leave it to others to choose whether to be racy or not 🙂

I too believe that treatment is cost led to a point. Our health insurance would only fund Stephen on 3 lots of Zometa this time round as they had already paid for Velcade during the past year. Gill xxx

I am So Pleased to hear your news Dai. Long may it continue. Yes do make some plans that's what people do when the sword of Damacles (sp) has moved away for a while.

much love Gill xxx

PS you owe it to all of us on here to go and have some fun 🙂 xxx

PPS I think the Ether Elves are still about I have lost this thread (or the plot) twice now

Congratulations Nettie. What a brave lady you are. Well done xxx

Hi Terry

We must indeed be almost neighbours, as we live in the last road on the right at the bottom of Poverest Hill. We are about half way along where the semis are. (The one with the iron gates).

Stephen hasn?t attended Kings since his last SCT so it was not us you saw. Mind you I just love the idea that we have doppelgangers that are the…[Read more]

Gosh Eve. He is cute but for a moment I thought it was you 🙂

Hi Terry and Welcome

If you are attending Sidcup you cannot be very far away from us we live in Orpington. Stephen (husband with mm) was diagnosed in 2008 and has relapsed after his second SCT failed. He is under Prof Schey at Kings.

I am not very up on the success rate of all the different drugs, but I don't think velcade is a last resort.…[Read more]

Hi Etta and Welcome

It is my husband Stephen that has mm (diagnosed 2008) You will get a great deal of support and information on here, there are even silly games and jokes cracked sometimes.

Don't trawl the internet too closely would be my advice. Most of the information is out of date and can be quite scary. There are trained professionals…[Read more]

I do hopr you had a great day Jo I think I must have missed your original post.

46 years! Fantastic. I am sure your right. Keep squabbling. I know it keeps us on our toes 🙂

Love from Gill xx

TENACIOUS

I am quite pleased with that for this time of night

OUS is next

Hi Min

I thought I had replied to your post but the Ether Elves seemed to have grabbed my reply. I too have posted regarding another category being added to the site. What a good idea.

Much love from Gill xx

PS Sarah enjoy France especially driving your convertable and quaffing Champagne. Not at the same time obviously xx

Hi Shirley

I hope you feel a great deal better very soon. Do let us know how you are getting on.

Love from Gill

Hi Wendy

I do wish I had an answer for you but one thing I would suggest is to go on the USA mm line I have not got a www address but I don't think it will be too hard to find.

When I looked (quite a long time ago) it seemed that they were doing a much bigger range of transplant options with some amazing results. Please don't trawl the…[Read more]

Hi Dai

I was trying to work your anagrams out and then realised that you know my surname already so made anagrams out of Gill Seaward and Gillian Seaward (yes I am a Gillian but I only ever got called that when my Dad was cross with me!)

Although we are married I never took Stephen's name (apart from on legal French documents as it is a…[Read more]